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Afraid to take the meds due to severe anxiety 6 years 5 months ago #14980
 Fantastic news Hope.    I hope you stuck your tongue out at your doctor in front of everyone in the waiting room!!!  G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND |
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Afraid to take the meds due to severe anxiety 6 years 5 months ago #14994
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I was too happy to do anything
 anyway we talked on the phone  GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND |
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Afraid to take the meds due to severe anxiety 6 years 5 months ago #14999
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Congratulations Hope
I'm very happy for you waiting is tough and even more lonely with a rude medico to put up with You got this now which is just so fantastic I just woke up to your awesome news so happy for you Big hug Splashing happies for you Hope Love from Ariel Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
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Afraid to take the meds due to severe anxiety 6 years 5 months ago #15011
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Congratulations Hope!
Onwards and upwards. NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct. Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. A thousand thankyous to Dr James and the amazing FixHepC team. |
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Afraid to take the meds due to severe anxiety 6 years 5 months ago #15019
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Oh Hope, such great news.
SO happy for you!! ....Would've been fun to do what Gaj suggested  xo J the young dragon slayer is:
HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! |
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Afraid to take the meds due to severe anxiety 6 years 5 months ago #15021
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That's so good, Hope.
So that nasty excuse for a medical expert can go to the far queue  Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
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Afraid to take the meds due to severe anxiety 6 years 5 months ago #15064
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Hi Hope,
That is such fabulous news. What shocking behaviour from your doctor but a great outcome for you. I was a slow responder but never lost faith that I'd kick it in the end. Well done you! Coral G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16250
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Hey all, I'm not opening a new thread, but if I would, it would say something like "Hope's reached EOT".
It's been quite a ride for me. Only last 3 weeks were a bit easier. Now I have a perfect blood picture, I'm hepC free and I'm REALLY hoping it stays like that. So it mos def was worth the troubles! Hitting some alcohol, garlic, mangos and fresh orange juice now Thank you all for caring and turning the world in to a beter place! Forever grateful to Gregg and Dr.Freeman  GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16252
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Fantastic HOPE congrats on EOT and HepC free
I'm so happy for you it's been a bumpy ride and I wish you smooth sailing to SVR now You sound wonderful yay! No more meds Splashes of happiness for you Ariel  Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16253
Wow, you drink interesting cocktails Hope! ......but 'salut' to you reaching EOT. Looking forward to hearing of your successful SVR.  G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16254
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Hi Hope, so very good to hear from you.
Yes most definitely an interesting ride for some. Congratulations on achieving a perfect result. Very much worth the ride hey! Wishing you the very best for all SVR's X gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16259
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I've only just read this thread and it's such a beautiful read. Incredible support by everyone and way to go Hope with your perseverance and successv
This post by LondonGirl is just brilliant, love it, so positive & comforting to anyone feeling anxiety about the meds.
reg nurse and wife of:
genotype 3 (probably since '75), f4, cirrhosis, Tx naive Oct '15 - Dx hcc Pre Tx -- VL: 330,000......, AST 202, ALT 137, Bil 24, ALB 30 04/11/15 -Sof & Dac 30/11/15 -VL: 80................, AST 28, ALT 18, Bil 12, ALB 32 06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34 01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36 . |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16275
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Hope, you wrote:
I also have high glucose which I never had before...apart from my high level of iron. Anybody else got this? I'm on a low carb diet, my intake of sugar is low, and I drink plenty of water... Hi Hope My fasting glucose level has shot up to 11.9 ... unfortunately, it wasn't tested immediately prior to treatment ... the last time it was tested, in 2012, it was 6.2 and then 6.0. I too am on a low carb diet, drink plenty of water ... and I exercise every morning. I was wondering if the increase in blood sugar affected your treatment? Also, how long did it stay high? At first I was pretty worried about it. However, I'm feeling really good, and feeling better as time passes, with no side effects. So, I'm hoping that the raised blood sugar may only be temporary while on treatment. Regards GT2 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected , FBG 11.9  17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 (Accu-Chek Mobile & Omron Auto BP Monitor) |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16292
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Hi GT2, my glucose was high only around week 4, by week 8 it was ok and EOT it's fine. I didn't worry that much about it and it passed... worried more about high iron but that passed too. Funny thing is that usually iron is not monitored during hcv tests so I'd say manny might have it high but don't even know.
Monitor it and hope it's gone soon thank you for all your wishes folks...a lot of beautiful ppl here GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND |
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Afraid to take the meds due to severe anxiety 6 years 4 months ago #16295
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Well done Hope!
I am delighted to hear such good news from you. You will join all SVRs clubs soon. Happy EOT and only UND! 
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive, started 12 wks Twinvir on 06.12.2015. Feeling great and grateful virus not detected 06.02.2016 & SVR24 This email address is being protected from spambots. You need JavaScript enabled to view it. |
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