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Emilio's Place 8 years 6 months ago #11577

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Look at us "old timers"/ graduates of Dr. Freeman's 12 week miracle cure party. Now as we become cured, we move onto some higher plane of consciousness? from waiting to get cured, to being in the process of getting cured, to being cured, to .....?????
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Emilio's Place 8 years 6 months ago #12191

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Hey everyone

No further news this end still feel amazing. Just received a bill from my last blood test which is unusual here in Australia. Anyone else being asked to pay for pathology services as part of ongoing tx and post tx?? No drama however I've never been asked to pay for any testing prior to the last one?

Hey 2b, old timers for sure mate. But I now have a spring in my step, energy to burn and lead in the pencil lol. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
The following user(s) said Thank You: Ariel, zhuk, isaing4

Emilio's Place 8 years 6 months ago #12192

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Hey stranger ;)
Yep more path is going to be billed
There's a petition you can sign actually it goes to govt tomoz
The links on my Facebook wall
I have had bills previously too at random times
Anyway good to hear you're feeling dangerous
I have a month to go how fast and easy is this stuff eh? Ty buddy for switching me on to the good dr J and my cure
Splashes at ya
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

Emilio's Place 8 years 6 months ago #12350

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Hi Ariel,

Just caught up with this. Do you have direct links to details for those of us who don't FB.
Too late to sign current petition I guess? but would still like to know what the go is. Thx.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Emilio's Place 8 years 6 months ago #12354

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Hi Em,

Under Medicare we can get 2 x quantitative and 4 x qualitative per patient, per year. I guess we must have hit one of those limits. I did not think we had.
YMMV
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Emilio's Place 8 years 6 months ago #12358

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I also received a bill for my last test, maybe they have new rules now?
G2B - DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
UND @ WEEK4
FINISHED TREATMENT 26/4/16
UND @ WEEK 24
ALT 12 AST 15
MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN
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Emilio's Place 8 years 6 months ago #12375

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Gaj wrote: Hi Ariel,

Just caught up with this. Do you have direct links to details for those of us who don't FB.
Too late to sign current petition I guess? but would still like to know what the go is. Thx.


Here is the link, no not too late to sign, all Aussies sign away. My bestie surf mermaid buddy is a path nurse and this going to be a nuisance. She explained to me the issues she sees, and of course we all see the big picture, less people going in for path etc means less diagnosis of all sorts of things, more hospitals groaning with patients, more lives being cost...just not a good situation. I think that the elderly, single parents, and may I as a mum of two of these... tertiary students are sorely affected here, it is hard enough for them to afford doc visits and they do need to be extra vigilant with health check after all we were all young once...who can remember ;) I have real concern that the younger gen will avoid testing just because of finances...
I get the budget agenda here, but why not just adjust the tax threshold of the medicare levy rather than do this dodgy stuff? Oh well politics aside....

Here is the link: www.dontkillbulkbill.com/
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Gaj, zhuk

Emilio's Place 8 years 5 months ago #12811

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Thanks everyone

I guess I'm happy to pay $70 for an UND any day of the week lol. Yep I'm thinking I must have gone over due to clinch with a test at week 6, apparently they didn't draw enough blood and I doubled up on one of my pathology referrals? And yes it is a sign of the times with our revised system.
Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Emilio's Place 8 years 5 months ago #12909

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emilio wrote: Well Sir,

A good day! SVR 2 for this bloke, early days I know but that was a big one for me mentally I guess. Negative and ALT 15 post 2 weeks. :P :+1: Em


Yay! Congratulations for SVR2!!!
Every SVR is reassuring for us and is inspiring.

Wish you all the best and only UND!
#duck #love #flower
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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Emilio's Place 8 years 5 months ago #13009

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WOOHOO MATE!!
So good to read that news for you,
I've run off some fat since I saw you, just ran 2 1/2 miles on the treadmill thing (still crappy outside here), for me that's a lot, cause i wasn't getting any exercise before, now its a whole new day!

Congratulations!!
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

Emilio's Place 8 years 5 months ago #13072

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isaing4 wrote:

emilio wrote: Well Sir,

A good day! SVR 2 for this bloke, early days I know but that was a big one for me mentally I guess. Negative and ALT 15 post 2 weeks. :P :+1: Em


Yay! Congratulations for SVR2!!!
Every SVR is reassuring for us and is inspiring.

Wish you all the best and only UND!
#duck #love #flower



Am I reading this wrong. Em is reporting his First SVR at four weeks in the post quoted above
I think someone read this and assumed it was SVR two at week 12.

Or am I going mad.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.

Emilio's Place 8 years 5 months ago #13456

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Hi Everyone

Six weeks after tx still UND and LFT is looking good, ALT 13, AST 20 and GGT 28. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
The following user(s) said Thank You: DrJames, Joy, LondonGirl, mgalbrai, Paul-Jarman-facebook, Ariel, Gaj, Lynne-Francis-facebook, zhuk, isaing4, jay kim

Emilio's Place 8 years 5 months ago #13457

congrat Emilio!!
hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range

Emilio's Place 8 years 5 months ago #13458

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Bloody fantastic, em :cheer:

Woohoo :)

You have got some great numbers there, glad to hear mate.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

Emilio's Place 8 years 5 months ago #13467

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Looking good Em! :+1:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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