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TOPIC: Any Post-Treatment Reflections?

Any Post-Treatment Reflections? 3 years 7 months ago #14414

  • Annasnow
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Pat, so beautifully put, It is like a new start at your life that, for me was in fog and on hold...hope I keep the new clarity. Perhaps a relationship without the shadow in the cupboard. Once I get to tame my sleeping too I will be better. It has been a strange shift.
All the best A.
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Any Post-Treatment Reflections? 3 years 7 months ago #14416

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Thanks for an after midnight loud laugh !
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Any Post-Treatment Reflections? 3 years 7 months ago #15447

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Hi folks, Oor Wullie here!

Well, heer I am, just aboot twelv wiks after ma treetmint (that's EOT+12 in sientifik langwidge), an still feeling richt as rain...

Onyway, nuthin reely speshul tae repport except that ah ma pals are tellin me that the bald patch on the top o ma heed is startin tae disappeer! At furst ah thoot it wus jus Soapy Souter gi'in me the usuel wynd-up cos after ah, ah havnae git eyes in tha back oh ma heed... But yesterday ma gurl-frend Primrose took a photo o the top o ma heed tae proov it, an ah swear its true! ... Ah'm sprootin fresh little hairs all ower the place!! Ah dinna unnerstand the sience behind it, but ahm sure its ah linked tae gettin rid o the famous virus. Jings, if it carries on like this, its gonna cost me a small fortune at the barbers!

Hus onyone else hud a similar eksperience??
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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Any Post-Treatment Reflections? 3 years 7 months ago #15452

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Ha Vovoro, :cheer: I have just finished tx, if I get hair growing back, knowing my luck it will come out of my chin. Nothing else to report, feel the same as on pills, which is extremely well compared to the whole rest of my life.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Any Post-Treatment Reflections? 3 years 7 months ago #15455

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Buyers club could start selling DAA's as hair growth promotion and make a billion dollars! or 30 ! :silly:
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Any Post-Treatment Reflections? 3 years 7 months ago #15457

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Wullie,

What wonderful news! :woohoo:

I just stood in front of the mirror with iPad in hand and it's early days for me yet but I may hold off from investing in a Capillus 272™ Laser Cap.

G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 7 months ago by Gaj.
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Any Post-Treatment Reflections? 3 years 7 months ago #15461

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Hey Gaj, :idea: :idea:

If only FixHepC would ship one of those with every 12-week treatment, they'd out-sell Gilead in no time!?
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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Any Post-Treatment Reflections? 3 years 7 months ago #15462

  • tweakmax
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Vororo wrote:
Hi folks, Oor Wullie here!

Well, heer I am, just aboot twelv wiks after ma treetmint (that's EOT+12 in sientifik langwidge), an still feeling richt as rain...

Onyway, nuthin reely speshul tae repport except that ah ma pals are tellin me that the bald patch on the top o ma heed is startin tae disappeer! At furst ah thoot it wus jus Soapy Souter gi'in me the usuel wynd-up cos after ah, ah havnae git eyes in tha back oh ma heed... But yesterday ma gurl-frend Primrose took a photo o the top o ma heed tae proov it, an ah swear its true! ... Ah'm sprootin fresh little hairs all ower the place!! Ah dinna unnerstand the sience behind it, but ahm sure its ah linked tae gettin rid o the famous virus. Jings, if it carries on like this, its gonna cost me a small fortune at the barbers!

Hus onyone else hud a similar eksperience??

My bald patch still there u so lucky
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Any Post-Treatment Reflections? 3 years 7 months ago #15464

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Hey Gaj, I actually purchased a laser comb a few years ago as I was so worried about my hair falling out! :lol: It didn't work and was a right hassle, recently sold on eBay for a fraction of the price.......Tried all sorts over the years and found nourkrin worked the best but gave it up pre tx in preparation and, as yet, touch wood, no big shed! In fact my hair is getting quite thick! I really can't explain it as it had been the bane of my life for years. Amazing. I'm quite taking it for granted now, but it did stop falling pre tx.....Or maybe it was my prayers.......it did used to really upset me.

Anyway that's my twopennerth worth, oor Wullie, glad to read about your unexpected bonus! :) Wonder if it's happened to anyone else?
#flower
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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Any Post-Treatment Reflections? 3 years 7 months ago #15468

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Well, we may need to keep an eye out for a generic version of the cap, the brand name one costs about 50% more than FixHepC sourced treatments. :blink:

Not sure if my little bald spot has filled in yet but overall my hair does seem thicker and healthier since I commenced treatment. :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 7 months ago by Gaj.
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Any Post-Treatment Reflections? 3 years 7 months ago #15779

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Hello friends
Just entered week 6 post EOT my time flies
A visit to the eye specialist yesterday brings excellent news.
I have worn spectacles since my early 20s. My script was not high but I needed them set at distance for my music stand. Over the 20+ years of teaching my script made the usual mild incremental changes never anything alarming. Not Coke bottles yet.
I went through peginf and progressively my script changed to wearing mutifocals full time and changed a whole increment of +1 in a single year.

That's often a sx of preginf, a bit of a + needed for the peepers I read in my personal research and wasn't worried.

However my pressure tests were a worry all of a sudden post peginf
The reading sat uncomfortably at 22-23 and my eye doctor urged me to a specialist.

I have had a LOT of chemicals pumped into me since diagnosis with HCV and so wasn't too concerned myself I always thought it best to wait until I had no HepC before checking macular degeneration and ringing alarm bells wildly so I let it wait

My pressure test is now LOWER THAN THE MEDIAN FOR MY AGE GROUP.
So either the macular degeneration was a peginf thing or an HCV thing but it has REVERSED

I'm bringing good news to the table
I hope others who may have had similar experiences are encouraged by this report regarding eye health

My pressure reading has dropped nine points!
My new specs will be ready Friday hee hee but that's okay it's the pressure test I wanted to report here.

Happy SVR times
I have more follow ups to do but this is terrific news.

Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Any Post-Treatment Reflections? 3 years 7 months ago #15782

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Hi Ariel,

Thank you for your news! That's absolutely amazing! It seems like a lot of us have been staggering around for half our lives as if we had extra 50Kg on our backs, and then suddenly all that weight is thrown off and Good Things start happening...

(for me, as posted previously, mostly minor health improvements all over, but the total difference is quite astonishing)

Cheers,
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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Any Post-Treatment Reflections? 3 years 1 month ago #22314

  • rohcvfighter
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I just found this thread and made some reflections...
I would like to write here about the things related to my person that enabled me to get treated:
- Knowing I cannot be treated via the NHS system, made me think that I have to "do something different"
- I had to start asking questions about the generic drugs - thankfully I could find this place and a doctor who does answer to e-mails ;-) :+1:
- I had to challenge myself to step out from my comfort zone ( it would have been so easy to just give up, do nothing and simply wait for the mercy of .... whoever could have decided the treatment for me... ) and take a decision for me.
- I had to break many boundaries for getting treated with generic drugs (not being afraid that I might break the law (was not the case), not being afraid that I could lose the support of my doctor, not being afraid that generics might be scam, handling not only my own fears but also the fears of friends around me, deciding to invest my money in the "uncertainty" of generic drugs, etc)

Strangely, for other cases I do not argue so much whether to take a generic pill or a branded one. I take the generic one (like aspirin) as I do not want to pay 5x - 10x more for the branded one.

RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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Any Post-Treatment Reflections? 3 years 1 week ago #22954

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Hi folks, Im now 9+ months post tx, good to see the ball is still rolling along, no idea what the locals are doing as I have dropped of the radar completely, feeling great, mind and body, going into new/old career again, good luck all, if I get some bloods done will post again soon, good to get the data in I guess, you all take care and keep taking those little pills, thanks mesochem, thanks incepta and thankx Doc Freeman, cheerio jim
Tx sof dac 19 dec 2015
Und at 4 weeks
Svr 12 may 2016 und
Thanks everyone
Last Edit: 3 years 1 week ago by jimmy42.
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Any Post-Treatment Reflections? 2 years 7 months ago #24330

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Hi a mild depression is a possible side effect and I have experienced it during and still (only 10 days) after treatment (though better now).
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