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TOPIC: I am struggling to negotiate the site

I am struggling to negotiate the site 2 years 11 months ago #14930

  • jstigwood
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I need to order Harvoni to be delivered to the UK. I just cant find where or how do it please help!

Also is the product insured in case it goes missing in the post?

jon
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I am struggling to negotiate the site 2 years 11 months ago #14931

  • Gaj
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The Getting Treated drop down menu towards the top of the page will cover many of your most immediate questions but:

For ease of UK access, probably your most suitable option is via the Redemption eTrials fixhepc.com/redemption-imagine-freedom-from-hepatitis-c

These will result in supply of HCV generics manufactured by pharmaceuticals companies that are well known to the UK medical establishment for their supply of other generic medications. You will also gain access to the Monkmed team to provide HCV related medical advice during treatment.

Please feel free to post in the forum if you have general questions that members may be able to answer while for specific Redemption trial questions your best option is to contact This email address is being protected from spambots. You need JavaScript enabled to view it.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 2 years 11 months ago by Gaj.
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I am struggling to negotiate the site 2 years 11 months ago #14932

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You may also find this recent thread on the same topic useful.

fixhepc.com/forum/patient-stories/854-ha...uk.html?limitstart=0
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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I am struggling to negotiate the site 2 years 11 months ago #14934

  • Debs
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I'm pretty sure Monkmed guarantee to get it to you (they Fed Ex it) as part of the redemption trials. Also you need to start off by making an appointment to get your script from GP2U.
Hope this helps.
Any questions, please ask :)
Cheers #flower
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
Last Edit: 2 years 11 months ago by Debs.
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I am struggling to negotiate the site 2 years 11 months ago #14942

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Thank you - I eventually found the redemption trial application link so my next question was how do I get the script!?! Do I have to pay for an on line consultation to get one or can my GP here write out a private script from the UK?

Alternatively can my friend who is a doctor in Australia simply write me a private script?

My hepatologist here in London has agreed to monitor bloods because bloody NHS England can't get it together to offer everyone their legal right to treatment!
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I am struggling to negotiate the site 2 years 11 months ago #14944

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The UK's laws on import of prescription medications are quite liberal, the main issue seems to be getting UK doctors to write scripts. Your GPs script will be fine and I assume would be based your hepatologist's advice as to type and length of treatment?

Otherwise a script from an online consultation with www.gp2u.com.au or your Australian based doctor would also work. In those cases you would need to supply your medical history for HCV including genotype and liver fibrosis stage, etc.

That your Hepatologist is prepared to monitor is great news.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 2 years 11 months ago by Gaj.
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I am struggling to negotiate the site 2 years 11 months ago #14948

  • Debs
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Really pleased that another person is getting NHS monitoring for generic hep c drugs! Yay! :+1: ( Wonder if your consultant went to the liver conference last weekend?)
If you have to go through Gp2U for a script it's very reasonably priced, can't remember exact figure at the mo.
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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I am struggling to negotiate the site 2 years 11 months ago #14970

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Yes my consultant did go and he was also very impressed with fixhepc. I don't think he can officially saction by-passing the NHS but is more than happy for me to use the generic versions from India.

Even though NICE have approved the new Gilead high priced regimens in the UK, NHS England does not the budget to treat everyone, so it is being rationed on the basis of either those who shout the loudest - or those with higher fibroscans. Despite my LFTs and fibroscan being normal i suffer the most debilitating fatigue. I also keep suppressing my VL to very low levels - I yoyo from millions to (at my last count (10,000). there was one 12 month period in which I yoyoed between totally undetectable and a few thousand VL like clockwork every three months!

My Doctor friend in oz is nervous about writing the script - is there anything he should know?
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I am struggling to negotiate the site 2 years 11 months ago #14971

  • LondonGirl
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Hi there, don't know of any Drs who will write the script in the UK, will PM you - Great re monitoring :) I wouldn't push yr consultant too far .
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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