emo Sorry, but Australia is going to have to be Geoblocked

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6 years 2 months ago #16737

So sorry to read this :( Aussies set this up and now they pay the price for their bravery??!! But dr F is very clever and will find a way.
Generics getting more accepted in England now. I will always be grateful to Fix Hep C.
#love #duck #flower


Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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6 years 2 months ago #16738

Don't be sad people and thanks for the support to those o/s for your kind words to us in Australia and yes here it is again: (louder) EVERYONE HAS NOT GOT THE PBS LIKE A BAG OF LOLLIES HANDED OUT IN AUSTRALIA WE NEED GENERICS TOO. Ty.
Now I have said that for the hundredth time.....

Re this internet access issue, I hinted at it in my reply when I said VOIP and mentioned Netflix, ie; there are ways around everything it's a matter of spending time working it out.
Beaches virtually explained how without listing the names of the best proxys, VPNs.
We can get around this.
Aussies get someone to assist you if necessary because this is our forum yes we deserve access. There's information out there available to non IT geeks with how to info.
Some charge a monthly fee some are free. You can stream just about anything from just about anywhere.

And then hope that we don't get into trouble for breaking some silly law. Covering James back is most important. I urge us to all be mindful of his integrity and be circumspect.

As to this interesting question "who complained"
It could easily be anyone on this forum; reality check. I'm well aware of the risks of this forum. It's fantastic yes, but it also contains personal stories and I recall the times very lovely people have been hassled just for no reason by other members. So who complained? Well likely an Australian. But we don't really know who is behind the words and it could be anyone. It could be Gilead. It could be a Govt run Org. We don't know

I feel the main thing to remember is that we need to be respectful of Dr J.

Ariel


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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6 years 2 months ago #16739

Nicely put Ariel, sometimes, as with almost all of us humans there's a knee jerk reaction and we / I need to vent the frustrations and sadness felt at the prospect of losing touch with such newly found friends like yourself and the other "Awesome Aussies" we OS'ers have come to know and care about as much as they care about us on this forum.
... Thanks for that optimistic outlook, don't ever lose it. :)
You're right about Dr. J, we need to support him, whatever he needs to do, just as he has supported us all.

Matt


GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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6 years 2 months ago #16744

Like I said earlier, the content of this site can be posted anywhere, and as GT elaborated there are ways around the geoblock. It's interesting to me, because in USA we get ads on prime time TV from the pharma companies. Harvoni is advertised almost daily!

I'll just say this, and let me preface this remark by saying I hope I am completely wrong, but I think once TPP goes through there is going to be a real shit storm over these generics.

I see my blog here has over 4000 views, I hope that maybe 200 people in USA were able to feel confident enough to get generics from that. So at a discounted rate of $50,000, that means Gilead lost out on $10 million in revenue. They are not going to stand pat and not try and do something, and multiply my efforts by 1000 from this site and that is $10 billion USD they lost.

Fuck em! :cheer: :+1:


Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
Last Edit: 6 years 2 months ago by Greedfighter.
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6 years 2 months ago #16747

Clearly the TGA have had their heads up Big Pharma's arse for too long and now they've got shit for brains.

This isn't advertising TGA.

THIS is advertising!



So is Greg being hassled too or are they just directing their energies at easy targets? I want to fight this.

Not because of hep c.

Just because I'm over being told what to think.

Seriously, fuck off!

I didn't go to all this effort to be told what to think.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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6 years 2 months ago #16748

So if I write to the TGA they're going to have to geoblock all Gilead's ads like the above aren't they?


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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6 years 2 months ago #16749

Wait a minute...do you get these ads for Harvoni on TV or online in Australia? If so you should organize protests! Why is that not considered advertising? That ad is on TV in USA every day!


Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
Last Edit: 6 years 2 months ago by Greedfighter.
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6 years 2 months ago #16750

Online. You're in the US aren't you GF? Yeah, make no mistake about it. This is pure censorship.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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  • Cured with generic DAAs. Hep C kills. Treat now!
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6 years 2 months ago #16751

Well, here's a thought. Monopolies are supposed to be illegal in most "free" countries. I really don't see how having a monopoly on a lifesaving medication is much different than say having a commercial monopoly on emergency telephone calls. If you could only use one telecom carrier to dial in for a life threatening emergency, the price of the call was $94,000, and you couldn't pay for the call up front - you'd die. Ridiculous, right!?

It is ridiculous.

So world governments, how much will it cost in terms of gross national product and lost revenue NOT to treat hundreds of millions of citizens who will eventually stop producing anything except skyrocketing medical costs?

Why not simply save hundreds upon hundreds of billions up front, negotiate a reasonable settlement to buy the rights to the medications, and pay off the sordid corporate pirates in a lump sum? Note: You can borrow the money from China if you have to. They'll end up producing the medications anyway.


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 6 years 2 months ago by fitz.
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6 years 2 months ago #16752

I'd been thinking what a stretch it is to call talking about Sofosbuvir advertising when, ATM, there is no competition.

Well other than having HepC.

How come I never see any ads telling me why chronic HepC is so much better than Sofosbuvir?


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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6 years 2 months ago #16753

Chester, yes I am in USA. We get these ads for Harvoni and everything else you can think of on TV, print and online. It's all legal here.

Fitz, I agree but here is the truth in USA, the pharma companies charge whatever they want. Insurance companies either cover it, or they don't. The cost of illness is forced on the government, but also on the individual. For example:

Gilead has a program for people who are not covered by insurance. It's called 'Support Path' You apply to them for care, because you have no insurance. They want you to apply for medicare, and be denied for coverage. Under medicare you need to be destitute and have under $5000 net worth. If you have more than $5000 then you need to use the money or assets for treatment. Then they will pay for Harvoni.

If you are poor, and qualify for grants like I did, they still want you to pay. I qualified for $73,000 in grants, Gilead wanted me to get a loan for $23,000 and then I could get Harvoni.


Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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6 years 2 months ago #16754

The TGA is Australia’s equivalent to the FDA




Unfortunately, in the modern world of murky large political donations by vested interest groups, whoever pays the piper calls the tune … :sick:

Attachments:

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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6 years 2 months ago #16755

Kim Jong un took over aussie?

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  • The life you save will be your own. START TREATMENT
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6 years 2 months ago #16756

Greedfighter wrote:

Wait a minute...do you get these ads for Harvoni on TV or online in Australia? If so you should organize protests! Why is that not considered advertising? That ad is on TV in USA every day!

I have not seen the ad but then I don't watch much commercial TV


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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6 years 2 months ago #16758

Wait all is not lost we still have the notice board at the local liver clinic :woohoo: :woohoo:

On a more serious note Dr Freeman has created a wonderful resource to assist with treating Hep C and to aid in the procurement of safe and reliable meds to treat this virus for people worldwide. Given that Aussies now have access to PBS meds it's only logical that Fixhepc has become more relevant to overseas sufferers. The ball is in and has for some time been in the court of our overseas members I guess when it comes to furthering the cause that the Doc has started.

Cheers


Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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