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TOPIC: The miracle of drinking lots of water

The miracle of drinking lots of water 3 years 9 months ago #10940

  • kenbasman
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Hello all,
I know this gets mentioned all over the place here in different threads, but for me it has turned out to be such an important part of how I feel during tx I thought it was deserving of it's own thread.
For me, the one thing that almost always works to help ward off the side effects of the meds is drinking insane amounts of water. I am probably drinking 8 to 10 litres daily. It helps with the headaches, sore muscles, indigestion etc. More than any med I have taken to alleviate symptoms. Besides the fact that I am insanely thirsty all the time.
I know this is not news to most everyone here, but again, I thought it deserved it's own thread. So drink up and feel better!
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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The miracle of drinking lots of water 3 years 9 months ago #10944

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Hi Ken,

:+1: Seems to work for me too! My experience has been much like yours in that keeping well hydrated seems to make a big difference to the sides particularly things like headaches which I can feel fading away as I increase my water levels. I don't drink quite as much water as you but at least 2.5 - 3 litres plus other fluids such as coffee, juices, etc. (plus I eat a lot of fruit) but that increases a lot in hot weather.
What I do is drink enough water to be just this side of being really annoyed by having to pee all the time, so if I'm going every hour or so I figure that is acceptable from both a comfort and hydration level.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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The miracle of drinking lots of water 3 years 9 months ago #10966

  • DrJames
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Besides the fact that I am insanely thirsty all the time

Get your blood sugar checked. Finger prick or urine dipstick - there should be no sugar in your urine.

There are much higher rates of diabetes in HCV patients, and treatment can set it off in some.

Thirst is the most common symptom of diabetes.

From the SVR point of view if you are diabetic ask for metformin to start. SVR rates are better if diabetes is managed properly.
YMMV
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The miracle of drinking lots of water 3 years 9 months ago #10971

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Thanks Doc! I actually am type 2 diabetic for the last 10 years or so. The weird thing is that I never have high blood sugars anymore, but I do crash quite a bit and get hypoglycemic. This started about a year ago when the hep c made me lose my appetite and I lost a lot of weight. Now on tx it is even more pronounced. I wonder if the exaggerated thirst is a symptom of diabetes whether ones blood sugars are high or not. I test myself regularly. I never even get prediabetic readings anymore. I control the diabetes with diet and exersise.
In my other post you mentioned taking vitamin B12, supplements which I am doing. The thing is my haemoglobin count came on the high side on my 4 and 8 week blood tests. Is it still a good idea to take B12 if your haemoglobin count is high?
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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The miracle of drinking lots of water 3 years 9 months ago #11009

  • CJ
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wow, 10 litres a day of water seems a HUGE amount!!

Sometimes you can drink too much water, I wonder if the doc thinks that's excessive?

I believe the amount should be not in excess of around 3.7 liters for a bloke & a little less for a female.

If you can drink some sports drinks containing sodium, that can help to balance out all that increased water intake so one doesn't get hypernatremia.( think that's how it's spelt?)

Cindi x :)
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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The miracle of drinking lots of water 3 years 9 months ago #11011

  • CJ
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OH!! :ohmy: maybe NOT energy drinks are good!!

Just saw Doc James's post about Taurine & saw that the energy drinks contain Taurine :ohmy:

So while on tx probably steer clear....sorry :(
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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The miracle of drinking lots of water 3 years 9 months ago #11018

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Yeah, Kenbadsman, as CJ pointed out there is such a thing as drinking too much water - hyponatremia which causes the sodium levels to drop too much and therefore 'hold' water in cells in response - apparently anything over 4 ltd a day. On average we need around 2.5 l, varies by size, sex and health factors. We get a lot of water from food and other beverages. If we're sweating a lot, or diarrhoea, then we're losing water and body salts which is why electrolytes are recommended.
I'm thirsty all the time too and have a water bottle constantly at hand even at night.
I don't think i've been tested for diabetes, so I might get that checked.

Like everything else - Moderation - you can have too much of a Good Thing :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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The miracle of drinking lots of water 3 years 9 months ago #11023

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Lots of people with hep seem to get Insulin Resistance , it must be caused by the virus, It's got nothing to do with weight as I had it & I wasn't over weight.
But I got rid of the IR quickly by doing MORE exercise & going on a low G.I. diet.

Now that I'm hep free, I still do plenty of exercise, but I'm not as strict with diet as I allow myself some Gelato now and occasional drink, but once you cut down the sugar, you'll find the cravings cut down as well!! :cheer:
so not so hard really. :)

Also I've continued with drinking more water & always have a water bottle with me.
A good habit to have!

Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
Last Edit: 3 years 9 months ago by CJ.
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The miracle of drinking lots of water 3 years 9 months ago #11036

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Thanks for the info on too much water everybody. I had no idea. I will start water withdrawal tomorrow. Lol. Only 2.5 weeks left of tx and then I assume my water cravings will lessen....
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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The miracle of drinking lots of water 3 years 8 months ago #12519

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Here's what the Mayo Clinic suggests is an adequate intake of water:

So how much fluid does the average, healthy adult living in a temperate climate need? The Institute of Medicine determined that an adequate intake (AI) for men is roughly about 13 cups (3 liters) of total beverages a day. The AI for women is about 9 cups (2.2 liters) of total beverages a day.

www.mayoclinic.org/healthy-lifestyle/nut...h/water/art-20044256

Anything over 4-5 litres is a worry as it can cause low sodium (which can be a real health hazard) and if it is driven by thirst can represent a sign of diabetes in particular.
YMMV
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The miracle of drinking lots of water 3 years 8 months ago #12521

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When I had those tricky blood tests and they couldn't get blood, I was told drinking water helped. (I have found it does) but the 1st time , I went a bit OTT just before the blood test and my sodium came up low !

An infectious deseases nurse friend of mine said "Keep hydrated but don't over-hydrate" .
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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The miracle of drinking lots of water 3 years 8 months ago #12532

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Thanks Doc.,I started slowing down on the water some weeks ago after reading how it could be problematic in this very thread. Luckily in the last couple of weeks of treatment my intense craving for water has diminished as well. I stopped feeling like a dried out old husk, so backing off the water wasn't such a big deal. But nonetheless drinking water has helped with lots of the sx to a surprising degree...
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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The miracle of drinking lots of water 3 years 6 months ago #17157

I was advised by members of another forum to drink loads of water whilst on DAA treatment. I mentioned it to my hepatologist and he said that he wasn't aware of any medical reason why one should have to drink more fluids on DAAs but said it was generally a good thing to keep well hydrated.

My experience has been that for the first few weeks of treatment I needed to drink more fluid and I felt thirsty a lot of time. I'm not a big fan of water but I made myself drink 3 litres or more a day. But from week 4 onwards the need for water lessened and I only went back to drinking my usual amount with not ill effect or return of side-effects.
45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
Null responder interferon/ribavirin 2008;
4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but...
6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.
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The miracle of drinking lots of water 3 years 6 months ago #17159

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I'm 1 week away from EOT :woohoo: and still get thirsty. Drink water as I need it.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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The miracle of drinking lots of water 3 years 6 months ago #17164

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Hi everyone
I'm nine weeks past EOT and still keeping my hydration at a premium and intend on continuing same. It's a great habit to carry a water bottle.

My skin is slightly dry from Harvoni after Peginf damage to it and I was advised by my GP to continue my water intake and I wear a moisturiser too now with spf50+ it is organic and cost a lot. The combination of good hydration and the creme has helped achieve glowing skin by comparison to b4 this tx.

Re liver health, which is the most important thing:
My ALT is <9 at mo and I truly believe that the daily water intake has helped achieved this amazing healthy function.

My gums have been affected by Harvoni. They are still sore. This may be because of my earlier tx or just the DAA I won't ever really know. Again, water rinse is soothing and cleansing.

I think it's great how the Harvoni made me thirsty.... it's improved my habits because I used to drink a lot of electrolyte drink but now just water to hydrate. So, happy H2O friends

Bottoms up!
Cheers!
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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