emo US Moderator announces our drugs are ILLEGAL

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6 years 2 months ago #16517

I kinda like debauchers. They're good for the priests and ministers in the forgiveness business.
Sinners are far more interesting than the snake-handling, tongue speaking people at the other end of the moral spectrum...

AsTwain said:
Go to Heaven for the climate.
Go to Hell for the company.


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 2 months ago by mgalbrai.
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6 years 2 months ago #16860

This thread has been up for a while, but I think it deserves a 'bump'.

There are alot of seriously ill, seriously frightened people (with Hep C) who after years of hiding in the shadows, are desperate for ANY hope or support available.

My observation (as has been pointed out by others) is that the (aforementioned) dephi forum is a self aggrandizing cult of personality, which is really just there to feed and stroke the ego of the forum owner, who in turn toadies to big pharma to be able to continue dispensing nonsense to those desperate and timid enough to be taken in by her self serving drivel.

I may have come across the delphi forum breifly on my way to finding the Fix Hep C forum. Honestly, I just don't remember. After all, I was looking for a solution, and anything that didn't offer a solution (and there were many) was quickly identified as garbage, and tossed aside along the way here.

Someone said earlier that we don't have time to simply 'wait'. That's exactly right. After decades of suffering the subtle, and sometimes not so subtle effects of this illness, with no cure in sight, I can tell you that an army of self styled, self serving gurus, naysayers, and 'gate keepers' could not have persuaded me into "wait" mode. Not for one minute.

More than 20 years ago, a well meaning specialist informed me I would probably die of this disease - eventually.

Well, I'm still here, and after believing for decades that I was most likely terminally ill - there is a cure, a real honest to god, cure.

Nothing could have stopped me from coming here, and seeking that cure. And God willing, I will have it!


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 6 years 2 months ago by fitz.
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6 years 2 months ago #16861

Amen, Fitz!
Amen....
There IS a truly helpful Delphi forum.
The address is in my signature.
As for the other....
Gilead toadies...
Couldn't be more accurate. She probably gets a stipend...
m


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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6 years 2 months ago #16989

Yes there has to be some dirty business with that site, she's still beating that same old drum trying to scare people away from accessing the generic cure that's here now within their reach.

And real damage is done there; for example, I've lost count of how many on there I've seen that while after many appeals they may have been allowed to have sovaldi, but are still told they have to take ribavirin with it instead of daclatasvir (when they could get generic dac instead of suffering with ribavirin) and then you see them writing in for months later telling how much they are suffering from the ribavirin effects.

Its really shameful.


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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6 years 2 months ago #16990

If that evil woman IS in cahoots with Gilead, she should be put on trial for manslaughter.
If she isn't, she's just plain stupid or bat shit crazy...


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 2 months ago by mgalbrai.
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6 years 2 months ago #17000

In one of my files there is a snarky letter from my insurance company stating that they have specifically denied my specialist's requests for Harvoni, that a cheaper regimen (which is known to damage the liver during treatment), and additionally includes Ribavirin, is my only choice - and wait for it - (in bold print, referencing Harvoni) "You may have this presctription filled, but (insurance company name redacted) will not pay for it."

Someone actually took the time to add that bit to the rejection letter, and went out of their way just to rub my nose in it.

I found myself asking "is it me"? What did I do to deserve that sort of searing hateful condescension? The answer is, that after having waited a year for an appointment with a specialist, I did absolutely everything required of me.

However, rather than accept the inevitability of the second rate course of therapy offered, and intolerable tone of snarky condescension being rationed out by my insurer's anonymous representative, I chose to take them up on their offer to explore other options, and found the Fix Hep C community.

In another thread, Dr. James posted a graph of project joins. fixhepc.com/forum/fixhepc-admin/1014-we-...ss-needle.html#16243

Through volunteer work I have done previously, I am familiar with the type of trajectory represented in the above graph . The graph looks nearly identical to one associated with a project I was privileged to help administrate, and in short what the graph tells me is that THIS project is reaching a point of critical mass with regard to the number of people it is reaching, and that from here, the numbers of Fix Hep C community joins are likely to increase exponentially.

As this critical mass is reached (and I believe it will be), users will learn about the Fix Hep C Buyers Club, and will reject online communities which fail to offer tangible and viable paths to solutions.

My prediction is that eventually, forums like the one mentioned earlier in this thread will rightly be exposed as the servants of greed that they are, and that their membership rolls will begin to shrink as people learn that real solutions are available today, here, and now through fixhepc.com.


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 6 years 2 months ago by fitz.
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6 years 2 months ago #17003

ALL, points well made fitz, Mike and 2b. Thanks for giving this thread a "bump" with your comments and analysis.
It has become all too apparent that there are those who like Col. Jessup (Jack Nicholson) in "A Few Good Men," feel they need to act as self appointed "gatekeepers" against the hordes of evil, generics supporters trying to climb the wall, Big Pharma has put up to keep people from being cured of Hep C. Enjoy this snippet from the scene, "You Can't Handle the Truth!"
(feels all too familiar, doesn't it?)


GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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6 years 2 months ago #17072

They say generics are ILLEGAL but how many get DENIAL?
dailyhealthrecords.pw/how-sick-must-hepa...-get-help/#comment-2


Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!
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6 years 2 months ago #17174

So the insanity continues on that evil site, this poor bastard who happens to be 2b geno, writes in May that although he's approved for sovladi, they will only give him riba with it (standard usa deal for geno 2's here), he knows daklinza would be better for him, but he can't get it from insurance and no one on that site will tell him the truth that would save him...later, this month he says he just got tested and it showed a little pot in his system cause he uses it for his hepc issues and now he says they probably wont give him anything...and Joy tells him to pray...his May post below in red:

"Well, I just got off the phone with my nurse. The Daklinza is not yet approved by FDA for geno 2. It can be prescribed but Medicaid isn't going to cover it. I'll look into PAP programs with that company. The nurse was working on my paperwork for the tx when I called, still trying to get approval for an abdominal CT. A bit slow in Alabama, worst State for Medicaid but I'm not complaining, at least I get to see a doctor.

Sort of funny, I had to sign for a FedEx box today and almost had a panic attack, I thought maybe the drugs had arrived (no). I'm not ready for it. I have to wrap my mind around three months of Riba, and maybe three months to recover from it. I'm not as physically strong as when I did my first tx, 2001/2."


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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6 years 2 months ago #17175

2b,
I have a "clean" UN over there. Did you try to contact your 2b brother? Does he know about FHC? What's his UN and I will give it a whirl.


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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6 years 2 months ago #17180

hey Mike, I haven't im pretty much banned there, he goes by this (un below in red) it says, last time I tried to pvt message someone in that predicament they reported me to the witch for trying to "sell poison"...

Vector (Saugahatchee)


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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6 years 2 months ago #17197

Mike,

Just a thought, but attempting to reach people who are scared to death, fundamentally brainwashed, and held captive in a closed venue by a false narrative is likely to be an exercise in futility.

Basically, you are going up against a heavily funded barrage of 24/7 non-stop advertising by big pharma across practically every conventional media platform, underpinned with forums and venues which are specifically designed to direct US Hep C sufferers into a sales funnel and keep them there, until the captors are paid off, or the captives die - whichever comes first.

As tempting as it may be to attack the saccharine harpy where she lives, frankly I think your time, experience, connections and considerable energy are far too valuable to expend attempting to claw away, and rescue her captives one by one.

Your efforts are to be applauded, and I think you are on the right path with an alternative site. When you get back from vacation, please get in touch with me at your convenience about some ideas I'd like to toss back and forth with you.

Fitz


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 6 years 2 months ago by fitz.
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6 years 2 months ago #17199

"saccharine harpy"!!
that's great, lol.


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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6 years 2 months ago #17204

"Saccharine Harpy", "Servant of Greed", "Spiritual Vampire", "Succubus from Hell" - We all know who and what we're up against.

No use wasting energy attempting to plant the seeds of truth in poisoned earth. There is plenty of fertile ground elsewhere where truth can spread and flourish.

Here for example :)

This site currently has over 1600 members. If all of us could spend just a little of our time every week planting seeds of truth here and there, utilizing resources that are cost free, and focusing on areas where Hep C infections are highest, we can eclipse those nasty little corporate funded weeds with a sea of truth as far as the eye can see.


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 6 years 2 months ago by fitz.
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6 years 2 months ago #17205

I can understand where you are coming from Fitz,but if Mike and a couple others hadn't reached out to me on that other site I would still be circling that cesspool.


G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 24
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