emo US Moderator announces our drugs are ILLEGAL

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6 years 6 months ago #9985

I'm not surprised, that place is a monument to ignorance.

So far the forbidden word list I have been advised of includes the following words:
"generic(s)" , "other countries", "India", "China", "Bangladesh", "international", "buyers" , "club", "Freeman".

The acceptable words are "God", "Jesus", "Gilead", "Pray", "Wait", and "Hugs".


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
Last Edit: 6 years 6 months ago by 2b.
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6 years 6 months ago #9987

2b wrote:

I'm not surprised, that place is a monument to ignorance.

So far the forbidden word list I have been advised of includes the following words:
"generic(s)" , "other countries", "India", "China", "Bangladesh", "international", "buyers" , "club", "Freeman".

The acceptable words are "God", "Jesus", "Gilead", "Pray", "Wait", and "Hugs".

Thx for the laugh for today. :lol: :+1:


contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
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6 years 6 months ago #10001

I just hope the REDEMPTION link can help some people.
M


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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6 years 6 months ago #10003

You got up the Redemption Link in the pit of Joy? and its still there!

Nice work Mike :+1:

saw your post in the Hep Forums and from the looks of things its getting a lot of attention.


SVR 24
Last Edit: 6 years 6 months ago by Tina-Hill-facebook.
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6 years 6 months ago #10076

Looks like Joy zapped volleybosses' entire thread...


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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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6 years 6 months ago #10078

Well,VB, at least it lasted 12 days and received some exposure. Probability says
you saved at least one person which was your goal. I must say that was fun though.....e.


contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
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6 years 6 months ago #10081

Thanks R,
I plan to follow up with whoever runs that whole show. I will ask them why a link to a government registered clinical trial was censored. I am contacting NPR if I don't get a satisfactory explanation.
This is simply unacceptable.
M


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 6 months ago by mgalbrai.
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6 years 6 months ago #10093

What a shame it was removed - total ignorance on their behalf. I like your plan Mike something needs to be done about it. Total censorship and withholding of legitimate of FDA approved information about the Redemption Trial to people who need that medication to live is abhorrent.


SVR 24
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6 years 6 months ago #10096

Yes. Two people contacted me who saw the REDEMPTION link there.
The woman should be ashamed of herself.
I sent the central Delphi people an email today. I hope they respond. Censoring sanctioned clinical trial information should not be tolerated.
Lives are at stake here.
One way or another I am going to get an answer from them or go to NPR with the story.
Mike


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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6 years 6 months ago #10097

I think she is scared of someone stealing her thunder, to me it comes across that Joy takes pleasure in having these vulnerable, ill people perceiving her as some kind a saviour and to be saved you must first worship her.

This woman has some serious issues and Dephi Forums need to be advised of misconduct (to put it mildly) that is happening on their platform.


SVR 24
Last Edit: 6 years 6 months ago by Tina-Hill-facebook. Reason: spelling
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6 years 6 months ago #10101

Flat out, bible thumping nuts; Gilead/Jesus/God saved her and she will HEAR NO BLASPHEMY!
way to go Mike, it just aint right.

If she allowed the info and then just spouted off her uninformed opinion, that would be stupid, but ok, But to totally censor legitimate info because of her own bizarre fears and prejudices is way out of line.


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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6 years 6 months ago #10124

Delphi's contact info and posting policy excerpt:

Notify Delphi Forums of the problem by giving notice via e-mail to This email address is being protected from spambots. You need JavaScript enabled to view it.

Rules of Online Behavior
Delphi Forums does not screen or edit messages posted in message boards, comments made in chat rooms, blog entries, or any other user-created content. However, Delphi Forums reserves the right to monitor said content and to remove any objectionable material at any time, in our sole discretion. By viewing and/or participating in message boards, chat rooms, blogs, or any other services provided by Delphi Forums, you acknowledge that you may encounter material that you find offensive. Delphi Forums disclaims any responsibility for said material.


I have contacted both Delphi and HepatitisCentral.com about this issue. So far no response. I posted the link again, got a reply and then it was gone. So, I posted a link to another HCV trial, but it is being "reviewed". It seems all my posts are now being vetted. How can their policy be so clear, yet not be followed?
M


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 6 months ago by mgalbrai.
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6 years 6 months ago #10138

Now this is interesting!!
How has it survived??



From: pamelajean1 DelphiPlus Member Icon Dec-20 9:29 AM
To: All (3 of 5)
47591.3 in reply to 47591.2
fixhepc.com/getting-treated/how-to-do-it/buyers-club.html

So Here Are The Steps

Get a script for the required medication from your doctor, or an online doctor service like GP2U Telehealth;
Send that script, the authorisation agreement, and your payment to the Buyers Club;
Get your tested medication in the mail ready to use.
Notes

This is the fine print, fully sized.

Gilead's patent gives them the legal right to control import/manufacture/export from Australia so it is not possible for the Buyers Club to send medication to addresses outside Australia if the medication in question ever entered the country.
To survive the Buyer's Club must obey every letter of every law.
The Australian personal importation and poisons laws means that you as a patient must see a doctor in Australia and get a script.
If you happen to be outside Australia you could see a doctor online through a service such as GP2U Telehealth who are supportive of patients seeking medication access. If you are in Australia you can see any doctor, although many are not supportive.
An Australian prescription provisions a personal importation, and this can legally be sent anywhere in Australia. Hypothetically if this medication was then exported it is clear this export was not performed by the Buyers Club. Please note that we do not recommend or encourage the notion of shipping medication to a friend in Australia and then asking them to export it to you because that would be illegal, even if it worked fine which it probably would.
The Buyers Club can arrange for medication to be shipped directly from manufacturer to you in the event you live outside Australia and testing can be done on your medication. We are working on making that happen in your country of origin, thus avoiding import/export issues.
The Buyer's Club can not make guarantees about your personal importation of medications.
- See more at: fixhepc.com/getting-treated/how-to-do-it...sthash.GvIySEro.dpuf


Could it be because it is buried and simply hasn't been noticed?


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 6 months ago by mgalbrai.
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6 years 6 months ago #10145

There is a new sheriff in town....
Its more like the sheriff ran the local rabble rouser out of town and the scoundrel went and started a new town and appointed himself sheriff.

I need a some computer savy posse members to deputize.

I really don't have a clue how to best set up our new community of "joyous" outcasts.


forums.delphiforums.com/generichcvtx/messages/2/1

Mike


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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 6 months ago by mgalbrai.
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6 years 6 months ago #10146

:woohoo:
hey Mike awesome! CheekyAz has been on and has vouched to what you are saying.


SVR 24
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