emo US Moderator announces our drugs are ILLEGAL

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6 years 6 months ago #4907

DAMN, As soon as I woke up and checked, all the good stuff was already gone! I missed all the fun while I was sleeping.


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

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6 years 6 months ago #4909
The following user(s) said Thank You: 2b, Chejai

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6 years 6 months ago #4913

Thanks for preserving those Kevin, wow---probably wore out their fingers on the delete button, must have had their heads spinning around, all that factual info to have to delete, delete, detete, delete..... that was a fun read, they chased me out of their with stones and pitchforks before when I mentioned getting undetected with generics.


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
The following user(s) said Thank You: klhilde

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6 years 6 months ago #4915

Maybe somebody whose not banned like me yet can go on there and help this guy, maybe both a post in forum and PM him. I found his thread washing around in 'current tx and drug trials" section, he's from Canada and he actually mentioned going to India for generics, but I don't think he has up to date info, he thinks daclatasvir isn't avalable yet, of course he was strongly advised to wait for the gilead velataspir,,,he's 73 YEARS OLD and has ALREADY RELAPSED and they are telling him to KEEP WAITING!

om: Dawin70 Dec-4 8:44 PM
To: pamelajean1 DelphiPlus Member Icon (48 of 54)
47513.48 in reply to 47513.47
Pamelajean, I am highly grateful to you for sparing time and providing me necessary guidance as to how should I proceed considering my profile. I fully agree that Velpatasvir is a highly effective antiviral & that too for any genotype.

As regards my status I am a Canadian. Frankly, I have almost NO choices. I will explain in this way that I am a retired person with limited bank balance, no Insurance and no Pension. That is why, all this time I was waiting for a Clinical Trial, but unfortunately it was failure for me. I am not going to India specially for Tx but my long planned visit just happened to coincide with my relapse of HepC. Hence, I am only trying to take advantage of the visit to get myself treated as well. Otherwise, there are not many choices in Canada as there are for hepC patients in US. If I do not get a Tx in India on my coming visit, then, I will have to keep waiting for some Trial as I was doing for 3 years earlier since I cannot afford to buy such drugs.

As regards Indian market, Daklinza is expected to be available by next month and for Velpatasvir there is no news so far.

Thanks for taking interest to sort out my problem relating to re-treatment.

Dawin


He received this helpful advice, among others,
"I don't know anything about the generics, and I don't think there have been any studies on them. Personally, I would wait for the pangenic drugs that are set to be released soon, probably 3/12/16 or thereabouts


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
Last Edit: 6 years 6 months ago by 2b. Reason: info
The following user(s) said Thank You: klhilde, Chapel

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6 years 6 months ago #4923

Hi 2b,

Okay, I'm back in and pm'd.

You missed the fun. ;)

G


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: klhilde

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6 years 6 months ago #4925

I know, theres no way I can keep up with your hours over there, same deal with those mods.
looks like she is temporarily laid up (i saw something about she fell on some ice) and turned over some of her duties to another vigilant crusader--still, you have the time advantage to go hog wild while they are sleeping...

unless they wise up and enlist somebody in your hemisphere to stand watch while they nap, :)


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

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6 years 6 months ago #4926

Oh crap, I found ANOTHER ONE, this one sounds worse off than the other guy, sounds she might not make it much longer even, sounds bad, she can't get meds, told to wait, wait, wait...she's even complaining about the "wait"...but of course, no one there is going to tell her about this option, instead she's told maybe you will find a "miracle". This one is in their "vent whine and moan" section, titled " Im in the twilight zone".

From: Ellen (richieellen1) Dec-6 8:43 PM
To: All (1 of 4)
47547.1
Uuhhhhhggggg I'm so depressed, so tired of all this bs..going for a yr. To doctors being told , I'll get u the meds, I'll get you the meds. GI said he'd go to pharm. Co. And gets meds. For me after state(Illinois) denies me for coverage cause I'm on Medicaid through our state. He looked at me the other day and said try in a year. WTF I can't do anything.. I have no strength, I'm having pee pee accidents, swelling, but loosing weight now, was gaining. On and on...and he just looks at me and says well your not going to drop dead. I wanted to choke him out. I don't know what to do or where to turn. Going to talk to fam Dr. I think I need a skin specialist for sure, and maybe a heptologist. Any opinions???


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
The following user(s) said Thank You: klhilde

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6 years 6 months ago #4927

Gunna spend today rereading Sun Tsu.
:P



Edit: Okay....that don't sound good, war can wait.


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 6 years 6 months ago by Gaj.
The following user(s) said Thank You: klhilde

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6 years 6 months ago #4928

Comedy gold. Great job guys.

My account's still active. So I've PMed Darwin. Figured posting was probably a waste of time.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
The following user(s) said Thank You: klhilde, Vororo, zhuk

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6 years 6 months ago #4929

Well, its kinda fun seeing you guys baiting the heck out of the Delphi waiting-for-Godot-survivalist-moderators (geez, did you see all those guns in the "Cumin Safe" thread? Evidently, no censorship necessary there).

But since the sentries to heaven are now well-armed and on the look-out, does anyone want to try going in command-style and try to get a PM to those poor souls stuck behind enemy lines?


Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 6 years 6 months ago by Vororo.

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6 years 6 months ago #4931

wow, that carrerra-porsche-gun guy probably can't wait to vote for Mr. Trump. He has put stuff out there elsewhere about being invested in Gilead stock. As you know, we have a bit of a gun issue here. Maybe you Aus guys have all already seen this little video, it appears to be made in Australia, its pretty cool, I send it around here in the states to some people. But it occurs to me, even if you are a die hard gun nut, what kind of gun nut advertises his arsenal on a hepatitis site?? that's really weird.


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
Last Edit: 6 years 6 months ago by 2b. Reason: typo
The following user(s) said Thank You: Joy, Vororo, Jan-Dowling-facebook

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6 years 6 months ago #4932

Ellen done too.

I said to my current guest who is heading up to SE Queensland in a week or so after seeing yesterday's news that they got smashed by another violent storm, "SE Queensland has damaging storms at the same rate you guys have mass shootings - about once a week." :) :(


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12

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6 years 6 months ago #4933

Too flipping true, thanks 2B, it is getting pretty scary living in the mass shooting capital of the world. Anyone want to move to OZ?


Tx naive, HepC since 1984
Geno 1a
VL 15 million
F4 , AST 189, ALT 295
Started APIs from Mesochem 11/24/15, will be doing 24 weeks
First blood test will be 1/5/16
Huge thanks to buyers club, Dr. Freeman, Emilio, all who helped and cared
Fingers crossed, no real sides from tx. feeling good

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6 years 6 months ago #4934

Well, you never know.

Back when I started telling people I had $144,000.00 worth of drugs maybe I shoulda had a gun!
:P

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6 years 6 months ago #4936

Me, I'm swallowing about 2 Kalashnikovs per day in US prices.


Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 6 years 6 months ago by Vororo.
The following user(s) said Thank You: zhuk

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