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US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4937

2b wrote: Yes, just have to give up on them and let them 'hug' each other and WAIT and pray in peace., horse to water and all that stuff,
must be some kind of Australian expression for this kind of thing.


Yep I can think of quite a few but we all share a few global expression for it haha ...

I read another post here where someone said that one of the posters who is saying "wait" has already had treatment thru clinical trials...Well that just increases my global expression for it 10 fold

Good on you to the ppl here who are trying to post there to help ppl.
reg nurse and wife of:
genotype 3 (probably since '75), f4, cirrhosis, Tx naive
Oct '15 - Dx hcc
Pre Tx -- VL: 330,000......, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80................, AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36


.
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US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4938

  • Gaj
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Vororo wrote:
But since the sentries to heaven are now well-armed and on the look-out, does anyone want to try going in command-style and try to get a PM to those poor souls stuck behind enemy lines?


Ninja mask already washed, ironed and donned.

It's fun taking the piss with the mods but a bit futile in the big scheme so some subtlety or subterfuge for the future. (I do retain the right if I get bored) :evil:


Chester,

I picked up Dawin earlier, thanks for getting Ellen.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: klhilde, Vororo, Chejai

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4939

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Thanks Tricia, sending a generic message (no pun intended!) is a very good idea. Here's a simple example:

Dear Friend and Hep-C Sufferer,

This is a friendly message to let you know that relatively affordable and completely legal treatments (between about $1000 to $2000) for hepatitis C are now available from several sources around the world. Please visit fixhepc.com and see for yourself!

Best wishes from the fixHepC team!

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
The following user(s) said Thank You: klhilde, Chester, Joy, Chejai, Gaj, zhuk, Tricia

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4940

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Vororo wrote:
But since the sentries to heaven are now well-armed and on the look-out, does anyone want to try going in command-style and try to get a PM to those poor souls stuck behind enemy lines?


Ninja mask already washed, ironed and donned.

It's fun taking the piss with the mods but a bit futile in the big scheme so subtlety or subterfuge from now on. (I do retain the right to flame if I get bored) :evil:


Chester,

I picked up Dawin earlier, thanks for getting Ellen.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4941

Good message Vororo. I was trying to make mine sound personal so they knew I wasn't a spammer or scammer but they ended up a bit long winded as a result. That's nice and succinct but still has the personal touch. Will use.

I think I'll save my two spare ip addresses for this purpose in case she gets wind of things and deletes my Gilead shmilead account.
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
The following user(s) said Thank You: Tricia

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4942

I need help navigating this site :)

I just edited my last post here cos I want to say something to someone privately but I'm unsure if the private chat is actually private, probably a dumb question, sorry... But is the private chat like a DM or does it come up on public chat?
reg nurse and wife of:
genotype 3 (probably since '75), f4, cirrhosis, Tx naive
Oct '15 - Dx hcc
Pre Tx -- VL: 330,000......, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80................, AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36


.

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4943

There are two private message systems on the site ... to PM using the pop-up one in the lower right corner, click on a person's name and it will pop up a second box which is private .. but it can be a chore to find your old messages there.

The other is in the right side of the forum header and is easier to navigate ... but warning ... you have to unclick the "send to trash" and then click the "copy to self" boxes or you'll have no record of your conversation.

And you have to pay attention to either of them or you won't notice when someone has sent you a message.
The following user(s) said Thank You: Tricia

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4944

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Hi Tricia,

Not sure if I'm the best to advise given my double post just now but yes private chat should be private. Use the tab above here rather than the lower pop up to make sure you are in private. Or PM - at the top in small letters on the right.

Chester,

I was the same with making personal, Vororo's message looks good ( and I've got a few IPs in my back pocket)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Tricia

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4945

Thanks Klhilde & GAJ. I've done it and I think it worked but I'm too slow and probably too late now, but no matter, alls good, cheers to you both for your quick responses.
reg nurse and wife of:
genotype 3 (probably since '75), f4, cirrhosis, Tx naive
Oct '15 - Dx hcc
Pre Tx -- VL: 330,000......, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80................, AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36


.

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4946

I just learned something new ... the tab on top of the forum header is linked to the pop-up chat in the lower right corner. And it has all members names ... if you scroll through you will see unread messages ... I just found one. And it saves old conversations too.

So to recap, one message system is in both the lower right pop-up and the tab above the forum header. The other is inside the forum header on the right side.
The following user(s) said Thank You: Tricia

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4951

Hmmm ..... with a little work we can rule The Evil Joy's Little Kingdom!!!!
:evil:

I looked at something and it certainly appears there are only 51 members of that forum, including the Evil Despot .... and 8 of them I can identify from here. It appears we have already infiltrated to the point that we are 16% of the Kingdom's lowly serfs.

If one of you secret agents that is sending messages could quietly work your way through the remaining 42 unfortunate inhabitants and get the FixHepC message of The Revolution to them we can then all leave The Evil Queen to her own delusional glory.

We might want to go in one at a time, in case a brain-washed victim identifies you as an agitator / enemy spy / traitor / freedom fighter. Then there will still be others left to complete the task.

Keep a list of all that have been rescued and all that can be identified as the Queen's henchmen. Slowly, quietly we'll evacuate those that can be saved.

(Strategy ... make first contact with a question as to whether or not the person has already been treated/cleared. All such people can be assumed to be allied with the queen. Save the others first before revealing yourself to her accomplices.)
The following user(s) said Thank You: 2b, Chejai, Gaj, Tina-Hill-facebook, Tricia

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4959

Lol :lol:

Like covert ops hey Klhilde, top special agent and reconnaissance work there, sounds like you should be the commander too (or what ever the top title is) :)
reg nurse and wife of:
genotype 3 (probably since '75), f4, cirrhosis, Tx naive
Oct '15 - Dx hcc
Pre Tx -- VL: 330,000......, AST 202, ALT 137, Bil 24, ALB 30
04/11/15 -Sof & Dac
30/11/15 -VL: 80................, AST 28, ALT 18, Bil 12, ALB 32
06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36


.

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4961

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And file the white car man with the gun fixation as henchman and Gilead shareholder based on response to "new fibrosis drug thread"


yup!

I am watching.......but of course I have a vested interest.....more ways than one!



smilin~ s t i l l !

g


Lower case g is him not me

G
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4962

Has evil Joy made an appearance?
SVR 24

US Moderator announces our drugs are ILLEGAL 8 years 3 months ago #4963

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Not under her profile.

And BTW, figured they are not blocking by machine/IP addresses. Just email address and cookies. So new email address and clear cookies, reboot and "Hello new member". ;)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Tina-Hill-facebook
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