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NEED GUIDANCE 6 years 10 months ago #3976

Hello, I am new here. I am not too sure of exactly what all of this is. I am in America and I need treatment for genotype 1A. I have had chronic hepatitis c for under a year and I am a very young woman. I am trying to get treatment as soon as possible so that I can live the life I deserve to.
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NEED GUIDANCE 6 years 10 months ago #3979

You are in the right place for advice, it is a genuine site to help cure Hep C. For an ASAP cure, read everything on here about getting treated and plan a trip to Australia to pick up your meds. If you have never treated before the meds cost A$2300 approx. This site runs a Buyers Club which I used and there are also chemists offering the required meds for the same price. Other people have couriered to the US but this has suddenly become harder.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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Last edit: by Chapel.

NEED GUIDANCE 6 years 10 months ago #3981

Hi, From what I've read the US customs don't like to seize medications for personnel use but there seems to be no definitive policy?, there are people on this forum who have imported mesochem API DAA's from China to the US and I'm sure as soon as one of these guys reads your post they'll be able to offer some good advice if you chose to import yourself, of course testing these powders would be expensive but mesochem is a pretty reliable outfit, or you could fly to Australia have the medications tested and encapsulated start treatment for a couple days then fly home with your meds, a more expensive option to be sure, but reliable, the good news is you've got time to decide.

Best of luck to you
GT 3, F3, Contracted 1993 Tx Naive
V/L 1,267,000 AST 67 ALT 65 6/10/15
commence Sof/Dac (Mesochem) 6/11/15
AST ALT normal 24/11 *
*V/L UNDETECTED 24/11*
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NEED GUIDANCE 6 years 10 months ago #4026

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Hey Cassidy welcome to the forum

What Chapel & crazy8 said - you have a couple of choices re generic treatment. US members here have imported successfully (though as pointed out this may have recently become more complicated) or you can take a brief trip down under. Many of us have been living with the virus for decades so there's time to sort out your options. Check out the posts here and feel free to ask questions. Best of luck.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

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NEED GUIDANCE 6 years 10 months ago #4082

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Hi Cassady: I'm one of the guys who just went to Australia from US and came home with it. Before I decided to do that, I was looking into having it mailed, which may be possible through fixhep c or Greg Jeffreys (keep reading and you'll learn about him too, very nice, very helpful). I think the new difficulties folks are talking about is just directly importing it from the factory in china, which factory I hear doesn't want to do it anymore. That doesn't necessarily mean that you still couldn't do it the way I was looking at before, but for that you need a prescription from an Australian doctor (easily done with a consult thru gp2u), and preferably a generic prescription from a US Dr to be included with your package, and some other stuff Greg Jeffreys was telling me about.

I had most of that stuff together, including a generic script from my US doctor but then i just got impatient and decided to just go and get it and see what it was like to walk upside down on the bottom of the planet. I managed to hang on.

I would suggest talk with Dr. Freeman and/or Greg Jeffreys about getting it mailed to here if you want to go that route. At one point also I know some folks were talking about trying to set up a pick up place in mexico or bahamas for us US folks, but I never heard anything come of that---but it would be a real good idea. Bahamas for those on the East Coast, Mexico for those down south and west....maybe somewhere in Canada for the rest of us up in the tundra. Good luck to you, get well soon.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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NEED GUIDANCE 6 years 7 months ago #10554

My hubby just came back from Australia with TX I'm 8 days in still a bit nervous I'm feeling comfortable so far have gotten my first tests yet I will get that 2-29-16 I've heard all great.results from this TX I'm keeping a sort of daily diary of my experience with the tx. My husband was also in Sydney from th US very long trip.but worth it to save your loved ones life. I love hearing everyone ES stories as well...Thanks

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NEED GUIDANCE 6 years 7 months ago #10565

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Hi Jade and welcome,

Always nice to hear from the US. If you want to, please feel free to start a thread to post about how you found the site and also how you sourced your medications. I'm sure there will be many of your fellow Americans who are interested to hear you and your husband's experiences to help them understand the process better.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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NEED GUIDANCE 6 years 7 months ago #10569

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Wow amazing stories of courage, travelling and so on...good on you Jade and good luck and yes the advice is great so from me here in Oz, welcome and good luck you deserve the best #love #love #love
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

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NEED GUIDANCE 6 years 7 months ago #10570

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Hi Jade,

That's great that you got the generics!

yes the tx works, and most have little sides.

My son had none at all.

Good luck, :)

Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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NEED GUIDANCE 6 years 7 months ago #10581

Hi Cassady,
This is from another post on the Importation into the U.S. Topic:
(Lots of great info there)
February 2016

The situation continues to favorable for importation of quality, affordable HCV medications into the United States.

Several options are available. All require a prescription. You can get that from GP2U.com. Get your lab results scanned and ready to send before your appointment.
(Genotype, viral load, CMP, CBC)
Your PCP or specialist can order those and give you a copy. Scan them and your U.S. Prescription if you have one.

Option 1: Join the REDEMPTION clinical trials. GP2U can assist you in that regard.

Option 2: Contact a legitimate supplier directly. Incepta seems to be the simplest as far as paperwork is concerned. Email This email address is being protected from spambots. You need JavaScript enabled to view it. for specific contact information. Also, Mesochem has eased their selling restrictions AND lowered their prices. Around $900, I hear, for 12 weeks of sof & led.
This email address is being protected from spambots. You need JavaScript enabled to view it..

Option 3: Become a "medical tourist" This is the most expensive option both in time and money, but still pennies on the dollar compared to the cost of branded U.S. Treatments.

Option 4: Fight your insurance company for coverage. Restrictions are easing, but time and effort is still required to negotiate the process. In all likelihood, you could be "cured" by generics before ever being approved for coverage by your insurer.

In my opinion, it has never been easier or cheaper to import these life saving medicines into the U.S. than now.

Mike
-I sent you a PM
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

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Last edit: by mgalbrai.

NEED GUIDANCE 6 years 7 months ago #10626

Hi Cassady,

If you have not done so, listen to Mike and email This email address is being protected from spambots. You need JavaScript enabled to view it.. If you get an RX at GP2U.com, you can get Twinvir (generic Harvoni) or learn about other options. I got Twinvir shipped to USA no problem with Mike's help ;)
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Last edit: by Greedfighter.

NEED GUIDANCE 6 years 7 months ago #11218

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Hi.
I'm in the US, too. I'm one of the lucky people here whose insurance approved meds but who knows what will happen next - if I need more treatment, they might not. I also heard from my doctor that my insurance copays are going way up to 29% of medication cost.

Are there still options so we can import drug from abroad? I heard that there s a problem with India - Gilead is trying to shut dwn export of Twinvir. Is that true?
Thanks.
LLJ

Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

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NEED GUIDANCE 6 years 7 months ago #11220

Hi LLJ,
I'm glad you got approved and I'm glad you found us.
I got two emails this morning about successful importation of Twinvir.
Email for the particulars.
No, there is no problem getting it into the U.S.
Total cost for 12 weeks: $1000.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

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Last edit: by mgalbrai.

NEED GUIDANCE 6 years 7 months ago #11291

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Hi LLJ. im thinking you should get some daclatasvir too...better than ribavirin, i know you are far along. but wth? its the cheaper of the two meds, between sofosbuvir and daclatasvir....those two worked for me with no ribavirin...oh, and im 2B too
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

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NEED GUIDANCE 6 years 7 months ago #11303

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The thing is, I'm now down to 2 more weeks of treatment. Then I have the post treatment labs, then 12 week labs. Would starting daclatasavir change the test results? I don't think I could bear to think I was at SVR and then have it come back.

I talked to my doctor's office about what to do if treatment fails (I'm at stage 4 so I don't think my chances are that good). She said they would wait for a new pan genotypic med to be approved later in the year. I don't knòw if it is an entirely new medication of a combination of the other ones. (for all I know, it's sovosbuvir with daclatasavir).

If not - I was wondering about doing another course of treatment and using generics (while we can still import them into the US, before greedy Gilead shuts us down completely). I would need to find out from Dr Freeman about doing it, for example, how long to wait between treatments, and whether to use all three drugs: sovosbuvir, daclatasavir and ribavirin.
LLJ

Geno 2b; Fibrosure 4. Tx: sovosbuvir/ribavirin x 16 weeks. EOT March 4, 2016
0 weeks: RNA = 10012000 iu/ml; log10 = 7.001. AST 129; ALT 133
4 weeks: PCR Quantitation = 60 iu/ml; log10 = 1.778. 5 weeks: PCR Quantitation < 15 (UND); AST 35; ALT 24

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