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TOPIC: Coral vs Hep C

Coral vs Hep C 4 years 3 days ago #3011

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Hi 2b!

You travelled a long way for your generics so I'm really pleased everything is going well so far. I was actually doing the opposite journey (although a pre-planned holiday not a meds gathering trip ofcourse) to New York, Knowing my tablets were going to arrive while I was away caused a bit of angst and I had too many people organised to check my mailbox. I seem to be escaping the side effects so far. 4am awakenings have not been unusual for me in the past so I'll need another week or so to see if there is a pattern. I think I am a bit clearer headed but am conscious of the placebo effect. When you have had this thing so long it is hard to know what normal is...

Keep feeling well.
Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 4 years 2 days ago #3041

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Hi Coral, good to hear from you, so you were travelling to NY? New York City I presume, because really hardly anyone in the rest of the world travels to the "upstate" hinterlands where I am. Not sure from your post, you already made the trip? hope you travel goes, or will go well, along with your medical 'journey;.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Coral vs Hep C 4 years 2 days ago #3043

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emilio wrote:
Hi Lynne, yes it has eased off somewhat, particularly now I've learned that the awake-fullness (like someone flicking on a switch), doesn't necessarily mean that you're not tired. I also was having power naps after work but don't need to do this now that I'm getting into a better pattern. Also I find that if you do get a straight 7 or 8 hours, you become really foggy when you do wake. Which generally subsides once you get going. All in all you will find that you have lots more energy and it's about learning to deal with that energy to not hit a wall. Em


Hey em, it is interesting when you think about it - having to deal with energy you haven't had in so long. I've had the virus more than half my life (contracted @ 21yo) and my mum has often remarked that sometimes she has more energy than I do - and she's 92 lol

Really looking forward to experiencing what "normal" energy levels are like.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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Coral vs Hep C 4 years 2 days ago #3101

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Hi Coral,
Hope you're going ok today.
all the best,
Cindi
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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Coral vs Hep C 4 years 1 day ago #3132

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Hi Cindi,

I saw that J was a little off today so I'm really pleased that he's feeling better. I live in a very hot part of Australia and even we're feeling the heat wave on top of the heat wave. It's easy to get a bit dehydrated.

Thanks for the check in. Feeling a bit headachy and tired today compared to the last 5 days but seriously nothing to complain about.

No-one worries like a mother. How are you doing?

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 4 years 1 day ago #3133

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A friend sent me an article from The Age about coffee reducing the the impact of liver diseases. Monash university researchers report that "two cups a day have been found to reduce the damage caused by Hepatitis C by up to 13 per cent"

Now if they can find the same results for chocolate.....

www.theage.com.au/victoria/coffee-can-re...20151116-gl0ma0.html
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 4 years 21 hours ago #3164

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Hi Coral,

maybe it's the heat that's causing your sides?
It's so hot here in Sydney & tomorrow it's going to be 40 :(

Are you used to the heat?
Remember to chug down the water.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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Coral vs Hep C 4 years 19 hours ago #3171

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Definitely consider heat a possible factor...not only debiiltating in itself but easier to become dehydrated.


And yes not looking forward to Sydney tomorrow! been pretty sudden hasnt it, which doesn't help heh. Not lived anywhere else but I will never get used to it :pinch:
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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Coral vs Hep C 3 years 11 months ago #5579

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I am so happy to see so many Undetecteds and "On their Ways". :cheer:

I have my 4 week blood results and as much as I would like to join the Undetecteds I am in the Almost Undetected group.
I still have a VL of 58 (down from 2.5 million) and after an earlier post by Dr James it's hard not to picture them as 58 tough little last defence soldiers in flak jackets and helmets. But they won't win.

I would be lying if I didn't confess to a nanosecond of slight disappointment but quickly overtaken by the fact that the medication and my body has worked really hard to kill the lions share and I have normal liver function results for the first time in decades.
Anyway yesterday these results were enough to convince a resistant friend to start the process in the new year so they are indeed good results.

2b mentioned about having a spring in his step and I know what he means...

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 11 months ago #5593

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Great news, Coral! :)


You are right, there is a war happening within us during treatment, and such a massive drop in VL can only be a very promising sign. As the doc has pointed out, even if in the rare instance you are not undetected status by EOT its only a lag before killing off those last stubborn bastards lol
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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Coral vs Hep C 3 years 11 months ago #5620

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Hi Coral,

yes it is good news, you know, you're probably UD by now :cheer:
The drugs are working. :)

Cindi xo
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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Coral vs Hep C 3 years 11 months ago #5626

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Great news Coral! Millions massacred and the rest to follow...battle on!
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Coral vs Hep C 3 years 11 months ago #5629

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Hey Zhuk, CJ and Joy - thanks :cheer: I think they're doing the final battle right now!!
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 11 months ago #5649

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Hi Coral,
NOT DETECTED on the way!
What's important medication works. :lol:
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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Coral vs Hep C 3 years 10 months ago #5754

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Hi Coral, I'll bet by now those last holdouts have been wiped out, they were probably making their last stand in a remote, mountainous corner of your insides somewhere, barricaded behind a wall of goop, but the good soldiers from the DAA regiment took the fight to them and rooted the last little bastards out.

The 'spring in the step' phenomenon I mentioned seemed real, I mean I just spontaneously mentioned it to wife when I came home, then a few days later I was just reading that other people used the same words to describe a similar feeling, but I had not read the phrase being used by others on here before I mentioned it to her.

I do however envy the HEAT you are complaining about right now, its just getting colder and colder, but we do like a white Christmas up here-but not looking forward to another year like last where we had about 15 days of 30 below zero Farenheit.

Have a nice Christmas.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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