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TOPIC: Coral vs Hep C

Coral vs Hep C 3 years 10 months ago #5820

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Hi 2b - thanks for the great visual. My internal fight is starting to sound like a Quentin Tarantino movie (or Francis Ford Coppola).

A white Christmas sounds pretty good to those of us sweltering in the high 30's low 40's Celsius but 30F below could be testing.
Somewhere in the middle would be perfect. While you're by the log fire we'll be at the beach or in the pool.

Thanks for your good wishes and Merry Christmas to you and yours. :cheer:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 9 months ago #9660

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Well there's one in every group.......... B)

Recently Dr James contacted me with the results of my 9 week blood test. The good news is that my liver functions are normal (big hooray!) and my VL is <15 (also big cheer) but the not so good news is that I am still Detected. :huh:

It seems I am a member of that very small percentage that has not responded as quickly to the DAAs. (Special? Moi?) It is also possible that my liver may have been worse than the FibroScan suggested (F2-F3) and/or that my liver deteriorated at a rapid rate after having it. Whatever the reason... it is what it is.

After talking this through with Dr James, instead of finishing my treatment (Sof/Led) at 12 weeks on 4/2 I am going to continue with Sof/Daclatasvir. He suggested this as Dac is substantially cheaper than Led and even if I were to be UND at 12 weeks I don't think I would have peace of mind that the critters were gone for good. So we'll hit the last ones standing with something different. I'm not sure if I'll need the whole additional 12 weeks and if not the leftovers can go back into the pot for someone else.

I'll be in a good position to compare any side effects between the two. I have had such minimal sx on Sof/Led that it will be interesting to see if this is any different.

I will get there - it's just taking a little longer.

As always I'm grateful to the Doc for the time he takes to talk these issues through and the Buyers Club for my next lot of meds. :)
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 9 months ago #9664

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Hi again Coral, I doubt you will notice much of anything from the sof and dac, My last pill of them is tomorrow.
really, they don't do nuthin cept kill those nasty little virons...

im sorry to hear that the other meds didnt get em, but sounds like they are on the run
worst side effect i had was some insomnia..im so used to taking them now, im curious what's going to happen now when I stop after tomorrow...been a long trip from when I ate my first two in sydney to back here...seems surreal now being in australia and all, i miss it...someday i want to go back and see some more.

get well, kill em off, the daclatasvir may well be the better way to go anyway.
best wishes to you, keep us in the loop, we're pulling for you.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Coral vs Hep C 3 years 9 months ago #9667

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Thanks 2b and it's all good. I'll just get on with it until they're dead as dead.

Congratulations on taking that last pill tomorrow!! I know what you mean....taking the tablets do become part of the daily routine. Best you celebrate in some way and enjoy that healthy liver feeling.

Australia welcomes you back anytime you can make it... :)
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 9 months ago #10061

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Wishes for the final slaying Coral
Yes we are so blessed to have this team behind us
I'm crossing my fins and flippers for your last leg of tx
Lots of splashes of sunshine to you
#duck #love
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Coral vs Hep C 3 years 9 months ago #10064

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Hi Ariel,

Thanks so much for the good wishes. I was meant to be taking my last Sof/Led tomorrow but will move onto my Sof/Dac on Friday instead. The ceremonial taking of the last tablets will have to wait just a little while longer.

I'll take those splashes of sunshine thanks! :cheer:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 9 months ago #10123

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Hi Coral - Yep, go get those last few little ******* !
There may well be just one or two and they may also be dead already !
The next few weeks should give them a shock and finally send them packing :-)

Big #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Coral vs Hep C 3 years 9 months ago #10216

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Thanks LG. Yes I seem to have cultivated some tough critters. Hopefully the change of meds will shock them into submission!
Have a great weekend. :cheer: #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Coral vs Hep C 3 years 9 months ago #10253

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Yes, wishing you good luck too Coral. At least your LFT's are good and the extra course of Tx will hopefully be the answer for you to get the UND and stay that way :)
I am on 16 weeks of Sof/Dac, but G3a, no bloods yet even though I'm in week 4. GP wouldn't do them so going elsewhere, I won't know if I'm responding until about week 6.

All the best to you #love #flower
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Coral vs Hep C 3 years 9 months ago #10624

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Thanks CJ.

All going well so far with the change to Sof/Dac. I think I have been very lucky with my lack of side effects but not so lucky with a quick response so I guess it all evens out somewhere.

Good luck with that first blood test. Shame on that GP. :P

Coral #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
The administrator has disabled public write access.
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