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Young J the dragon slayer 6 years 8 months ago #9605

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Tho' I have vague memories of being that age once so not holding my breath over him feeling more like doing his homework.:whistle:
Ha! :lol: :lol:
'fraid you may be right Gaj !!
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Young J the dragon slayer 6 years 8 months ago #9606

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You are amazing your whole life is inspiring and your story both of you has completely overwhelmed me
Congratulations on all the incredible outcomes you have achieved
Xxxxx #love #love #love
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Young J the dragon slayer 6 years 8 months ago #9610

Cindi that is amazing......J's treatment finishing soon...and a 16th birthday to celebrate! So glad everything has gone so smoothly and he is at School ready to tackle Year 11........look forward to seeing his final results.

Dr Freeman advised me of the following "At 4 weeks post treatment UND means a 96% chance of absolute cure, and at 12 weeks UND means 99%". Hope this helps your query.

Best wishes to you both. :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Last edit: by Lynne-Francis-facebook.

Young J the dragon slayer 6 years 8 months ago #9615

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Hi Cindi,

Happy Birthday to J and well done you! I remember when J was starting out on his treatment. It's still hard to believe that people shoot out the other end so quickly and so undetected! Wishing you the very best results for his 16th.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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Young J the dragon slayer 6 years 8 months ago #9616

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Cj you and your boy deserve all the health and happiness coming your way #duck #duck #duck #duck #duck #duck
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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Young J the dragon slayer 6 years 8 months ago #9626

:) Now you are making me smile!:)
:) Smiles are contagious.:)
:) Not all contagious things suck.:)
:) Smile are great!!! :)
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Last edit: by mgalbrai.

Young J the dragon slayer 6 years 7 months ago #10574

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Just wanted to update.

J has finished his 12 week tx, and was tested & UD, which I thought he would be but nice to see anyway. :)

Now the wait for the "big one" post tx 4 week VL.

He's doing really well & very happy.

He today had to see his dermatologist, who works with his old liver specialist.

She asked how's J's health going, & I told her how he is virus free & she was so happy for him, but her smile seemed to fade a little when I told her it was from "generics".
I expected that reaction, most specialists just don't know enough about them I guess.

But she may not completely believe, me I think, because she's insisted that he has a LFT test tomorrow.
....What a waist of time, oh well, I guess she'll see his good ALT & AST & see for herself.

Anyway, we will keep posting his results.
And I'll still be hanging around to cheer everyone on :cheer:

Thanks to all for the wonderful support. It just means the world to me to have a healthy child at last :)

Cindi x #flower #love
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Young J the dragon slayer 6 years 7 months ago #10575

That's great news CJ...so glad he is doing so well :cheer:
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Young J the dragon slayer 6 years 7 months ago #10577

Hi Cindi

so pleased for yourself and J - must be a huge weight off both your shoulders. As for the specialist J's SVR and 4 week post treatment result will speak for themselves and you never know it may just be the thing to change their attitude toward generic's.

At the end of the day so long as J and you are happy then that's all the matters. #love
SVR 24
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Young J the dragon slayer 6 years 7 months ago #10791

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Hi Cindi, it's great that J is doing well #love , but a shame about the Dr's reaction. Anyway, let the 'doubters' run the tests and see the results for themselves!

All the best to you both, it really must feel amazing to know your boy is virus-free and will not have to live with this. I'm so happy for you and your family :) #love #flower
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Young J the dragon slayer 6 years 7 months ago #10845

That's great news for J Cindi , finished my last meds 2 days ago myself and will get tested in 4 weeks when I get home :)
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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Young J the dragon slayer 6 years 7 months ago #10849

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Cindi such great news for your youngster J deserves the best only
I hear you about the weird vibes eminating at the mention of generics I know a lot of us get the same rot. Just a control thing I think.
Silly when we have actually trailblazed these DAAs and actually provide a data cohort for free if they wanted to collect our responses to the DAAs isn't it!
Looking forward to hearing of Js continued progress and wellness thanks for your posts Cindi and the support you give us here on tx
Love from Ariel x
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Young J the dragon slayer 6 years 7 months ago #10886

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Thank you so much for all the well wishes! :cheer:

Good luck Paul!

How's your holiday going?

Miss our chats.

x #flower
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Young J the dragon slayer 6 years 7 months ago #10914

CJ wrote: Thank you so much for all the well wishes! :cheer:

Good luck Paul!

How's your holiday going?

Miss our chats.

x #flower


Hola Cindi everything is great so far , we are currently in Chile and getting plenty of vitamin D :) we're staying in a place called Vina del Mar and the locals are currently in holiday mode :woohoo: , Buena noches.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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Young J the dragon slayer 6 years 7 months ago #10929

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Ha! Have fun :P
x #love #flower :+1:
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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