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Ariel takes the Plunge 7 years 10 months ago #16540


Hey Ariel! Every once in a great while, the ocean lets YOU win... but not very often. :lol:

Keep on splashin' sis ... the joy is in being able to play at all ... #duck #love
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Ariel takes the Plunge 7 years 10 months ago #16544

Hi Ariel,
Be calm. Wish you the best for the next test!
Cheers.
Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!
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Ariel takes the Plunge 7 years 10 months ago #16550

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Great photos Ariel

You frame your shots beautifully ... you may have missed your calling.

I'm sure that your 8 week post treatment blood test results will not be able to detect HCV RNA.

Be confident, stay positive, have a laugh (at yourself, situations, & others) and above all ... keep smiling :)

Cheers
GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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Ariel takes the Plunge 7 years 10 months ago #16559

Thinking of you and sending big #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Ariel takes the Plunge 7 years 10 months ago #16566

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Yup, best thing , booked the doc for Friday morning nice and early. Thanks for all the inspiring pictures and beautiful uplifting vibes from Hieu, LG, Beaches, GT2, Matt and friends. I am sure I will be fine. I just need to know. see it in print, and generally chat about stuff. Y'know, that kinda inner sanctum of the docs room stuff. It has been a month almost. Always good to have a chin wag and check up, might get an FBE if I feel like it too. As I said its cheaper than the UK here anyway, we get our PCR RNA for $155 (sorry Debs and LG eep) and I am worth the extra bucks yes Beaches we only have this moment. Isn't that one off the lessons this HCV experience teaches...we only have THIS moment, so always make it real. :+1: :+1: :+1:
Re timeline and clinical notes, I do have more energy. Who was it that said turn around is around 8 weeks after EOT...Pat1, maybe Tina? I cant really remember exactly but I agree. I am also still eating, I am also still carrying a great weight for my body type at LAST!!! All good signs. TY all. I will post my SVR8 when it comes in late next week.
Ariel #duck #duck #duck #duck #duck #duck #duck #duck #duck
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Ariel takes the Plunge 7 years 10 months ago #16592

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All the best Ariel and lots of love, debs xxxx
#love #duck #flower
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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Ariel takes the Plunge 7 years 10 months ago #16602

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I found this for you, some old Bali and some old Hawaii. I visited Bali in 1974 and I'm not a surfer. Hope to go to Hawaii sometime soon.
I am going to the path clinic today. Need to go before 12pm so my blood sample can be onboard the 1pm train to central pathology. I ain't in the city. This will shorten my wait time by 24 hours. Part of me says I am clear part of me suggests anxiety and nervousness. SVR 8 for you SVR 12 for me ! :+1: #duck #duck #duck
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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Ariel takes the Plunge 7 years 10 months ago #16615

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Ariel - best of luck with your next tests. It sounds as if you are doing really well and if your positivity and truly joyful vibes can get you across the line you'll have no problem at all.

Thanks everyone for the ocean photographs. Walking the beach with my dog has been probably the most therapeutic thing I have done throughout all of this.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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Ariel takes the Plunge 7 years 10 months ago #16700

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I'm 8 weeks since EOT and have my LFTs in from this morning
ALT 9
Yes NINE
I am not a teenager but my ALT is 9!!!!!
Other markers same so low it's great
AST is 17 GGT 15
I won't relapse, no way! How could I when my levels are consistently fab. :+1:
I will blog my PCR RNA which I am expecting mid week.

I'm hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can't find a way to high jump the bar ;)

That won't stop us shouting from the rooftops we are Aussies Oi Oi Oi
Hear us roar!

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Ariel takes the Plunge 7 years 10 months ago #16701

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You got this, baby, no doubt.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Ariel takes the Plunge 7 years 10 months ago #16702

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Ariel wrote: I'm hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can't find a way to high jump the bar ;)

That won't stop us shouting from the rooftops we are Aussies Oi Oi Oi
Hear us roar!


Congratulations Ariel tis a fine day for you and for me

.however I would like the following noted, as I have no blogspot of my own and the world will read and access that which was previously easily accessible to all - Legals and Evils :+1: ...
I hope you don't mind that I post on your thread Ariel #flower
I received notice of my Lft's today and SVR12 HCV RNA result is due next week
Alt 29 down from 35 SVR4
Ast 27 down from 32 SVR4
GGT 16 and is amazingly Awesome !
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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Ariel takes the Plunge 7 years 10 months ago #16704

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Love it Pat1
See Brian Wilson was not right when he wished they'd all be Californian Gals we Aussie SHIELAS (!!!) are pretty darned awesome
Go the good livers xxxx yay
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Ariel takes the Plunge 7 years 10 months ago #16705

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Hey Ariel, how are you feeling physically 8 weeks after EOT? Better than EOT? Not as good? Same? Same but different?
Thanks
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Ariel takes the Plunge 7 years 10 months ago #16707

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Ariel wrote:
I am not a teenager but my ALT is 9!!!!!


Yeah, but I bet you feel like one ... ;)

Good news Ariel ... you must be feeling really confident about your pending SVR 12 HCV RNA results.

Not long to go now ... then it's party time ... :cheer: #flower #flower
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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Ariel takes the Plunge 7 years 10 months ago #16709

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Pat1 wrote:
Alt 29 down from 35 SVR4
Ast 27 down from 32 SVR4
GGT 16 and is amazingly Awesome


Now, that's a fine looking bunch of numbers ... #flower #flower

I don't think that you have anything to worry about either Pat ... I'd put money on your SVR 12 HCV RNA next week being UNDETECTED

Looks as though there'll be two big parties in the same week! :woohoo: :woohoo:
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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