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TOPIC: Ariel takes the Plunge

Ariel takes the Plunge 4 years 8 months ago #23475

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Love it! Thanks Beaches #love . I'll make breakfast for ya'll.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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Ariel takes the Plunge 4 years 8 months ago #23485

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As Gaj says That's Melbourne for ya!
I'm about an hour and a half out of the city and on the coast so it's more temperate here and Gaj I think that sea breeze is near you too ha!
This chat sent me on a rewind to a time gone by in song. Crowded House early tune Four Seasons In One Day
That's how people generally describe Melbourne weather it's a bit of a typical Aussie joke on ourselves.
So I played that old song and I thought about how it's also a metaphor for the story of HCV and fighting it. Under that lens it's quite emotional.
Such a beautiful song. RIP Paul Hester, and beautiful reunion concerts recently from the boys.

Love to all come on down under Fitz it's a big land to explore and so beautiful.
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Last Edit: 3 years 7 months ago by Ariel.
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Ariel takes the Plunge 4 years 8 months ago #23520

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Thanks for your gracious and kind invitations Beaches and Ariel. I would love to visit OZ and hope to see you both there someday. Was definitely kidding about sofa surfing though ;) I did more than a fair amount of that while traveling in my 20's, and these days I stay in hotels.

The offer to cook breakfast stands. I do make a hell of an omelette!

I hope both of you will come visit us in the states as well. Our corner of the US is great place to hang out, lots of culture, wild west and otherwise. We love company, and we'll feed you and show you around!
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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The following user(s) said Thank You: DrJames, Ariel, Sven

Ariel takes the Plunge 4 years 2 months ago #25043

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So much water under the bridge since I paddled by and said hi to all!
HCV is a dim memory now randomly interrupted by funerals for several who have been taken too soon, my foster bro included. In Melbourne this Friday a GREAT line up is on at the Memo Music Hall
Any Dogs in Space o Philes will remember The Ears.
I'm adding the promo poster if you are a Victoria Australia peep see you there ❤️
Love and splashes of happiness to all
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Ariel takes the Plunge 4 years 2 months ago #25048

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:+1: will be a great night! B)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Ariel takes the Plunge 4 years 2 months ago #25052

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Hi Ariel,

Good to see your lovely name. Life goes on with all the joys and sorrows but thankfully without Hep C.

It looks like it will be a sensational night. :woohoo:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Ariel takes the Plunge 4 years 2 months ago #25066

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What a Night at Memo Music Hall St Kilda, Melbourne, Australia celebrating World Hepatitis Day, aka The End of Hep C. Sam from the Ears, whose life was famously depicted by his friend Michael Hutchence (rest in peace) in the Movie Dogs n Space, bared his story and soul in raw reality and bitter emotion at the loss of many, yet his message was clear GET TREATMENT NOW THIS IS A MIRACLE. Listening to a man of such presence talk about the fear, the self doubt, the loss of social identity, the relationships with those around us, the medical stories sad mad bad and glad.... then Fleety whose comedic genius made us laugh at his stories of global hunger pains and the stigma and prejudice and introduced each legendary punk muso that gave us an experience we jumped and head banged to for hours in collective happiness release and freedom.. The Peptides were incredible. Rowland S Howards own songs peppered the night, most poignantly was from their very first Vinyl, Door Door by the Boys next Door, Shivers. At times it seemed as if 40 years was frozen so that you could hold it in the palm of your hand. But the past is the past, and the message here is the NOW. it is to SEEK TREATMENT NOW. NOW WHEN WE HAVE THIS MIRACLE. And to those we have lost, who, to quote Sam, carried that 'unwelcome passenger' and succumbed, we will all carry our own individual loved ones we will also all carry our own stories. There is no yesterday we only have tomorrow so take your chance to live HCV free. Get tx now. I will try to load a short clip fro my phone of Dogs In Space, a poignant and fitting end to this post, also a special thank you to the chauffeur for the night we had a wonderful time. Happy Splashes and we want more awareness love from Ariel.

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Last Edit: 4 years 2 months ago by Gaj. Reason: Fixed video
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Ariel takes the Plunge 4 years 2 months ago #25067

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:woohoo: What a fantastic night! Great music, artists baring their souls with often amusing but always poignant anecdotes of the iniquities and stigma of living with HCV, much celebration by the many there who have been recently cured by DAA medications but most importantly helping spread the word of the availability and life changing/saving results of these medications to those who may not follow the mainstream or medical media.

As Ariel says, the message is "SEEK TREATMENT NOW. NOW WHEN WE HAVE THIS MIRACLE".

Kudos to the organisers and the many who attended........I even spied a mermaid dancing with punk rockers in front of the stage. :lol:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 4 years 2 months ago by Gaj.
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The following user(s) said Thank You: DrJames, coral, Ariel, Sven, Iain, Mnem

Ariel takes the Plunge 3 years 9 months ago #25660

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TWO YEAR ANNIVERSARY TODAY OF THE START OF MY TX!
THANK YOU THANK YOU THANK YOU!
A song is fitting me thinks
PS I have started Latin dancing so now I surf and dance! Here’s to healthy and strong. ❤️
Sending love to all who are here or have been here thinking of all, and special thanks to the moderators, the team in Tassie and my friends here who have now been friends for two years! Xx

Happy Splashing all of you of course from Ariel


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, coral, mgalbrai, Gaj, beaches, Hazel, Sven, Iain
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