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Splitdog in the US 7 years 2 months ago #7857

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Hey Splitdog,
I'm considering the same route...saw a dr today who says he has not seen any of his patients with insurance get approved for sof/Dac. Even on appeal. He said he'd support me (with lab orders & a script) if I got the meds some other way. He also asked what my Rush was given the long wait so far. He said there are more new meds in the pipeline. But, I'm thinking of pulling the trigger as soon as I get the Fibrosure results. Really want to get this done. Thanks for sharing your story.
Orion
3a
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed

Splitdog in the US 7 years 2 months ago #7869

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Thank you sabrecat.

And you, too MtGoat. Today I saw my Dr and informed him of my plans. He saw the meds and I told him about this site and Kingswood Pharmacy. He got all excited and thanked ME! He had his nurse come in and draw the blood themselves for a baseline today. I have an appt in 3 weeks for another LFT, VL, etc. Then, off for breakfast and I popped those little friends for the first time! After an hour, I felt 3 big twinges in my liver. Then it went away. Then I felt a little buzzed or something for about 5 minutes, then it all went away. I relaxed at the beach all day. Contemplating and reflecting.........;)
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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Splitdog in the US 7 years 2 months ago #7878

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I go to the Liver clinic at Nepean Hospital which is just around the corner from Kingswood pharmacy. When I picked up my generic Harvoni the pharmacist told me he was doing more business from overseas clients than locals. I think I maybe 1 of a few who go to the clinic that purchased meds from the pharmacy. The Liver clinic never told me about the pharmacy even tho they had a couple of people on their books who bought generic harvoni. All they wanted was for me to use Interferon, Ribavirin and Boceprevir. When I refused they said if I was prepared to wait, orals may become available some time in the future.
When my cirrhosis became worst I decided to check out a guy - Greg Jeffreys - who went to India to purchase orals. It was just by chance I came across his story or I would still be sitting at home waiting for orals from the liver clinic.
Diagnosed Hep C 2013
Geno Type: 1a
Treatment: Naïve
Cirrhosis
F4
2015 GGT 227 AST 79 ALT 89 Platelets 88
2016 Treatment Generic Harvoni Finished 29 March 2016
GGT 30 AST 19 ALP 67 Platelets 91
Qualitative Test Results April 12
Hepatitis C NAT (NA): Not Detected
P.C.R Test for Hep C 4th July: Negative
Virus Free
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Splitdog in the US 7 years 2 months ago #7882

Hi again Splitdog,

just saw my own VL results on GP2U file area this afternoon. See line 3. in the signature below.

All the best for your journey toward UND and thereafter SVR.

Yours


J.
GT3a 1990 Failed Inter 1998, comb in 2000. HCC 2012
Started 24/52 Sof/Dac 27th October 2015.
1. Bloods 2 October 2015: AST - 165 (20-40), ALT - 265 (5-40), GGT 189 (5-50)
2, Bloods 20 November 2015: ALT etc normal; VL 19
3. Bloods 8 January 2016: AST - 40, ALT - 59, GGT 48 VL RNA UND
4. EOT 12 April 2016 - blood tests: all is well, CT scan: okay
5. AFP 11 June 2016: 4 ref< 11
6. VL July 2016: DET
7. Oct16 start treat - June17 UND
8. Jun 18, lfts okay, platelets a bit low.
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Splitdog in the US 7 years 2 months ago #7895

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Hi Splitdog,

Great to hear that:

A.) You have commenced treatment, best wishes for your journey and SVR to you!

B.) Your doctor is supportive and is keen to learn from your experience. Hopefully it will give him the confidence to recommend generics to others, be they patients or colleagues.


And Sabrecat, congratulations on your UND! :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Splitdog in the US 7 years 2 months ago #7960

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And good luck to Stew as well. It will be done.
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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Splitdog in the US 7 years 2 months ago #7971

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Hi Stew-H, that is just totally f'd up that there you were, sitting a few blocks away from Kingswood where you could just walk over and get your meds, and those turds didn't tell you about the option....meanwhile, I probably drove past your house after flying half around the world so I could walk into Kwood and get my medicine (this was before the shipping to US was as smooth as it seems to be now).

I might well have driven past your house cause I made a few wrong turns as a result of having to drive on the "wrong" side of the street with a car with the steering wheel on the "wrong" side. Those wrong sided roundabouts were the worst!

I bought sofosbuvir and daclatasvir for my 2B at Kingswood and was UND at 4 weeks and just recently again at 8 weeks, rest of stuff looks pretty good too.

Best of luck to you!
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

Splitdog in the US 7 years 2 months ago #7974

@2b yep he was only a few hundred metres away at most from the pharmacy, Nepean Hospital is in Kingswood. I'm only a few mins drive away myself.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV

Splitdog in the US 7 years 2 months ago #7980

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Great to hear your story splitdog - I'm G3a and started Sof/Dac yesterday. Doc recommends 16 weeks.
Good Luck :)

Sabrecat - Congrats for your current results too, YAY for you :woohoo:
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Splitdog in the US 7 years 2 months ago #7982

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Hi 2b and Stew,

While we talk about Australians being lucky, and we are as far as Dr James, Greg and the compounding chemists go, to some extent I believe most of us have still had to make our own luck.
I know in my case, my specialist didn't mention anything about generics until I asked......then he wrote me a script. But I suspect that if I hadn't been pointed to Greg and Dr James by my sister reading an article in the weekend press I would have continued to be warehoused. My reading of posts around here is that very few of us have had our doctors actually recommend generic treatment and that we have needed to be proactive about discovering this option and in many cases have needed to consult with someone like GP2U to get scripts.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Splitdog in the US 7 years 2 months ago #8001

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I'm in the US with approximately the same situation as Splitdog. Tonight I emailed fixhepc to ask if I could follow suit. But the person who wrote back said I would have to go through the redemption 2 trial. I'm wondering why I can't do exactly what you guys did. My doc will write the scrip & I just want to buy the stuff through Kingwood. Any insight would be appreciated.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed

Splitdog in the US 7 years 2 months ago #8002

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Call Kingswood right now (they're open) and see if they'll accept a US prescription. Reply back with the outcome.
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James

Splitdog in the US 7 years 2 months ago #8003

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Trying. Gotta find out how to get the call through.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed

Splitdog in the US 7 years 2 months ago #8004

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Hello MtGoat,

You can see any GP online at gp2u.com.au/ and get a script that you can use at Kingswood.
YMMV
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Splitdog in the US 7 years 2 months ago #8005

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Heck, Dr Freeman might do it right now. ;)
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
The following user(s) said Thank You: MtGoat
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