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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9179

Day 8 and my energy level keeps getting better every day. I find that I sleep better. I used to only sleep for a few hours and then wake up. Now I seem to be able to sleep 5 or 6 hours uninterrupted.

I have had a few headaches, but they seem to be short lived, sometimes only lasting 5 minutes. Hopefully they won't get any worse.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9183

Right on. I sleep better, too. :)
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9188

Not me. I am feeling kind of buzzed all the time even when I am exhausted. I am taking meds to sleep through the night, but more than I would like to...
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9211

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Day 8 for me also, and I to find I am sleeping much better also and energy getting better to. :+1:
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9503

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Hi GT,
I am also on tx with Twinvir! 7,5 weeks already. :cheer:
No side effects. A slow responder, but my viral load was really big.
Wish you good luck and...UND :lol:
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9566

Day 13, and my energy level is off the charts. I feel like I am 20 again (I'm 55) No afternoon tiredness....I charge right through the day, I can only hope this is permanent. After so many years of only being "awake" half the day it is great. I think I also look healthier, to quote George Costanza (Seinfeld) I have a rosy glow...a pinkish hue in my face, lol. I am going to get tested for blood work before 8 weeks; just because I did not expect such a rapid improvement and I am curious.

So I feel like sharing, this is my journal so I can say what I want :cheer:

To anyone in USA reading this, if you are waiting for your insurance to approve Harvoni, I wish you luck unless you are really ill. I was rejected 3 times, twice on denials and once on appeal. The process took 5 months; however each time I was denied, the denial reasoning became increasingly vindictive and cruel. On appeal, I was sent a horrid letter that stated because I WAS NOT ON THE TRANSPLANT WAITING LIST, they could not care less. These are the words of a Demon....I share this because if you are not really ill you have a chance to either get Twinvir, or meds through the buyers club here, for less than $2K total for 12 weeks of treatment. You can afford it....You can't afford not to! You are going to be more clear headed and have more energy when cured. You'll earn this investment in your future back within a few years, max. Take a cash advance on Visa and cure yourself if you have to. The TPP agreement Obama is pushing and that could be signed within months may end the chance to get these meds, even if you travel overseas. You'll have to go overseas and tape them to your body like a drug courier! Or you can do it now and have DHL or FedEx bring it to you!

Read Gilead's earnings statement and forward looking guidance. Gilead has no intention of reducing the price of treatment for many years to come (10+). Gilead's plan is to wait until people qualify for insurance (get on the transplant list). Then they make a sale. So there will be no change in strategy.

I contacted Gilead for assistance, I qualified for $73K in grants because I am low income. So with their help, they wanted me to get a $23K loan for treatment. Full price $94.5K How kind hearted! I told them I will just get meds from offshore, thanks for nothing!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9567

It is an amazing experience. It means you are getting well. I am so happy for you and for all the people getting their lives back. I teach 9th graders all day. (I'm 62) The past few years, I thought I was going to have to retire. I came home from work and collapsed. Now, I am excited about every day. Its wild! I had gotten so used to feeling bad, just feeling normal is border-line euphoric.
No more catching every cold and bug. No more messed up stomach. No more hopelessness and anxiety.
Wow...
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9583

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This is great to hear how your feeling Mgalbrai, having finished Tx. Greed fighter, I am close to your stage of Tx, entered 3rd week. For most of the 1st 2 weeks I felt like you - energised during the day - but crashing in arvo and evening. But this past week, since weekend, got really sick with a migraine and feel shocking since. I'm really fatigued every day, no more jumping out of bed wide awake, I'm struggling to get up, feel like 'crap' :S
Hope this passes and I pick up again, I want to feel like the 1st 2 weeks, like M describes :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9586

Hi C,
I don't know about dac, as I took the led. I'm hoping your slump is soon behind you and things get back to a better place for you.
Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9591

Good to hear that you are feeling better and energetic. I am in week 7 now and some days I still feel energised and other days not so much. But through the ups and downs I still feel waaaaaaaaaaaay better than b4 I started tx.
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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Greedfighter's Twinvir to USA Journal 6 years 8 months ago #9750

Anyone in USA interested in treatment should email This email address is being protected from spambots. You need JavaScript enabled to view it. about Twinvir or other treatment options that are available.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10331

Went to my GP today, told him about being denied by insurance for treatment (prescribed by GI specialist) , then showed him my Twinvir box. He was very interested, wrote down the name of the drug, asked me how much I paid for it. I told him the whole story about GP2U and third party shipping via Incepta. He checked my vitals, then gave me an RX for blood work which I will go for in a few more weeks.

He's a nice guy, I bet if another patient tells him about being denied, he will call me and ask how to get them meds.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10332

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HI GF and Mike

Mike re your quote on the dac vs led experience: I did sof/dac 18weeks and all these common experiences resonate with me. Slight headache to begin with, then supercharged for the next 4 weeks with great clarity albeit 3, 4 to 5 hours sleep. From about week 6 everything seemed to normalise (speed like experience started to taper) with another level of clarity. It was a trip which I didn't mind at all, shit, one could live on this.

GF, good luck with the rest of your tx mate, I'm sure you will breeze through. Mike Keep up the advocacy and agitation love your work. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10333

Hey GF,
Thats great news. Both my GP and GI backed me 100%. They are so frustrated with the system.
Very happy for you.
Feel free to share your story at Delphi.
Over 600 views in 4 days. We can convince some people this works.

forums.delphiforums.com/generichcvtx/messages/2/1

Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10334

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Hi Greedfighter, just caught up with your story, shocking to read about Gileads offer of "assistance" a 23k dollar loan???? :sick: (finally got to use that emoj!) But great to read you are doing so well on tx :+1: All of he best to you :)
Deb #flower
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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