Welcome, Guest
Username: Password: Remember me

TOPIC:

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10337

Hi Mike,

I posted my story on your Delphi thread, hopefully I helped someone act before it's too late in USA!

I really fear TPP is going to block access for people in USA. I'm sure everyone is getting sick of my posts about TPP, but I only mean well :)
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: LondonGirl, mgalbrai, Gaj, malou

Please Log in or Create an account to join the conversation.

Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10620

Day 26, and I feel more alert and clear headed than ever. I had no "crash" or relapse that others have described. In fact, I have not had a headache in at least a week. I'm going to wait until 5 or 6 weeks for blood work, only because I am poor and can't afford multiple tests. But I feel like I am virus free or close. I have not felt so alive for 30 years.

Let me just add that I was impressed with the product packaging; Incepta not only sealed the bottle with foil, but on top of the foil a plastic wrap. And inside the bottle, cotton to buffer the pills so they would not be rattled around in shipping.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: DrJames, mgalbrai, Chejai, Ariel, Gaj, isaing4

Please Log in or Create an account to join the conversation.

Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10792

  • Chejai
  • Chejai's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • G3a 35yrsHCV
  • Posts: 272
  • Thank you received: 289
Good News Greedfighter, I'm 5 1/2 weeks in and just got home from having my 1st lot of bloods done. I had to travel to see my old GP, who had moved away, to get him to monitor me because the new GP wouldn't.
I'm feeling pretty good though, some days not so, but I have noticed certain positive changes and feel happy with that. I'm not overly concerned about getting results because I feel like I'm improving and that's good enough for me :)

All the best with the rest #love #flower
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
The following user(s) said Thank You: mgalbrai, Ariel, Greedfighter

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10874

So I hope everyone is up to speed about options for treatment being limited from India.

Anyone in USA interested in treatment should email This email address is being protected from spambots. You need JavaScript enabled to view it. about Twinvir or other treatment options that are available.

You better do it now, or deal with these fucking wolves Gilead and insurance companies. They will tell you what they told me, you are not on the transplant waiting list; denied. Do you want to wait until your liver is a piece of crap that needs to be surgically removed??

Someone told me today, Twinvir is $1000 for 12 weeks; there has been a price reduction. I paid $1400. I am jealous that you can get treated for so much less than me. What are you waiting for? Start emailing This email address is being protected from spambots. You need JavaScript enabled to view it..

And just for the record, this is no sales pitch, it's your life. I'm not gaining anything here.

Or wait for the posts about how there are no options available left for generic treatment. Read all the posts from people saying "Thank god we acted when we did and got cured"

:cheer: Be part of that group
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: DrJames, pat1, mgalbrai, Ariel, Tommy, Annasnow

Please Log in or Create an account to join the conversation.

Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #10882

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Thank you received: 3084
You sound fantastic GF.. I am feeling much better now than originally, I am sof led not sof dac, but had a migraine blah blah. With bugger all funds left the last thing anyone needs is to have to pay for support meds like pain killers and creams for rashes and stuff like that it really adds up, also if you are feeling great then getting around is easier and you can work maybe... All sounding awesome keep us up to date, I am following your ride, Hugs, Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: mgalbrai, Greedfighter, Annasnow

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #11943

I went and had my 6 week blood work today, PCR viral load and liver function. I will post my results once received.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: Ariel, Gaj

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 7 months ago #11974

  • isaing4
  • isaing4's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Stop saying 'I wish' and start saying 'I will'. :)
  • Posts: 239
  • Thank you received: 423
Good luck with your 6 wks blood tests!
#love #duck #flower

I was also on Twinvir but EOT.
Waiting UND's game has begun! :lol:
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
This email address is being protected from spambots. You need JavaScript enabled to view it.
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12841

Got my 6 week blood work results....VL UND :cheer: :+1: AST 27, ALT 20

HCV RNA IU/mL <15 Not Detected <15 IU/mL

HCV RNA,QN,PCR <1.18 Not Detected <1.18 log IU/mL

The first test, RNA IU/mL is the Qualitative result and shows no active infection. The second test is quantitative and confirms it!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
The following user(s) said Thank You: mgalbrai, Ariel, zhuk, splitdog, Fara

Please Log in or Create an account to join the conversation.

Last edit: by Greedfighter.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12842

As we say hereabouts,
Well, ain't that something!!!
Good for you!!
M
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Last edit: by mgalbrai.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12843

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Thank you received: 3084
Way to go GF
Happy for you it's a good feeling #flower #flower #flower #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12844

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Thank you received: 3082
Looking good there GF! :woohoo:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12846

Right on!!!
This email address is being protected from spambots. You need JavaScript enabled to view it.

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12858

  • CC2B
  • CC2B's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 173
  • Thank you received: 300
YESSSS, I never get tired hearing this! Congrats :+1: #flower
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12862

  • Fara
  • Fara's Avatar
  • Offline
  • Premium Member
  • Premium Member
  • Posts: 83
  • Thank you received: 187
Congrats GF on your results! That's very awesome....
HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Last edit: by Fara. Reason: typo

Greedfighter's Twinvir to USA Journal 6 years 6 months ago #12863

Woohoo. I wish i was sufficiently tech savvy to put in the dancing banana but you know I am feeling it.

#woohoo!

Added # woohoo! (without the space)
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
The following user(s) said Thank You: Greedfighter

Please Log in or Create an account to join the conversation.

Last edit: by DrJames.
Time to create page: 0.066 seconds

Copyright © 2015-2020 FixHepC

Back to Top