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TOPIC: 12 weeks of Harvoni my out of pocket cost $15.00 U

12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11195

  • Chapel
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I am also very curious about the original post. I have congratulated Jeff on his result but really Splitdog has asked the question I wish I had asked; why come on a generics board and say how little you paid for the real thing, thanks to insurance. Of course, all contributions are welcome. Perhaps from March 1 we will have Aussies posting about their A$30 Harvoni.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11196

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Yes, I am lucky I was (barely) able to afford the $1300. I don't, but I imagine it is possible for some to feel that was a slap in the face. Hence, my post.
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
Last Edit: 3 years 9 months ago by splitdog.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11200

  • Wayne
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AL Quoted !!! No. As I understand, a large part of the medication sourced here is produced under a licence agreement with Gilead, so many people here are in fact using legitimate Gilead medicine at reduced prices. I believe the Chinese products are still being made outside any legitimate agreements, but for some reason, Gilead seems to have dropped the ball there. Hopefully they will act more rationally and in all of our interests with the next game-changing drugs they develop.





I thought someone else developed the medication then Gilead purchased it. then preceded to try and rip everyone off Maybe that is a bit harsh ;)
Genotype 1b 42 years.
2007 48 Weeks Interferon + Ribavirin Relapsed.
2015 6 Weeks same as above + Sempivir Too many sides stopped.
7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
VL Before tx 3 million.
1st bloods 8 weeks undetected
.
Last Edit: 3 years 9 months ago by Wayne. Reason: puntuation
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11205

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Well, my understanding was that one intent of this site was ensuring that people with HCV would have the opportunity to be cured with the new DAAs that were now available but often unaffordable to them as is currently the situation for a large percentage of the 180 million people worldwide that are afflicted with the disease. Another intent was to provide an open and uncensored forum for the discussion, without fear or favour, of issues relating to both generic and patented meds.......as we should be doing here.

But what I'm seeing in this thread is a lot of assumptions around Jeff's intentions and then statement of such as fact by others prior to his clarifying his reason for posting.

By the way, I am aware of a number of members who have sourced at least some of their treatment via various big Pharma channels. Some of those people have been among the most helpful and generous members here.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 9 months ago by Gaj.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11206

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Chapel wrote:
<snip> Perhaps from March 1 we will have Aussies posting about their A$30 Harvoni.

$37.70 per 28 days I think it is. But then they don't have to pay for any testing etc.

I hope Aussies getting the meds under the PBS who need information, support etc. do come here. I hope (and think) they'll be warmly welcomed. I can't see them going on about the price much though.

That's the only thing I'm a little mystified by. Why we needed to know the cost of getting it through a US insurance company? But I expect Jeff will be back to clarify.

Yeah the Indian drugs have only been available recently through FixHepC. I guess Greg is doing Indian Dac and Led now too but that can only be recent as well. And my understanding is that technically, the licensed manufacturers are only supposed to be selling to the countries listed in this Gilead fact sheet.
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11207

  • Wayne
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Personally I'm not having a shot at Jeff . :+1: Gilead well maybe. :angry:

As Chester said this is a great site for everybody to come too to gather info on side effects and people's experiences.
I just hope when and if the cure for the big "C" is discovered it is by a Pharmaceutical Company with some morals and empathy. :+1:
Genotype 1b 42 years.
2007 48 Weeks Interferon + Ribavirin Relapsed.
2015 6 Weeks same as above + Sempivir Too many sides stopped.
7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
VL Before tx 3 million.
1st bloods 8 weeks undetected
.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11217

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Boy Howdy! ( we say stuff like that in Arkansas)
Old Jeff, or is it Jeffrey, sure stirred up a ruckus!
Whatever.. I'm glad he visited, but feel like he rubbed some of that smelly stuff off his pointy-toed boots in our faces.
The funny thing is, he registered twice, posted under both names about how easy it was to get approved and how little it cost and how well he did during and after treatment and then the buckaroo climbed back on his bronco and cantered back to the land where the men are men and the sheep are nervous.
His case is not unusual in the U.S. If you have advanced fibrosis, insurance will generally approve your tx very quickly. The $5.00 co-pay coupon? Anyone in the US can get one online in 5 minutes. I saved $190 by using one.
Insurance restrictions are easing and more people are getting approved quicker. Why? A couple of reasons: Some class action laws suits have been filed and most people who know how to get their request for coverage out of the insurers hands and into the external review (yes, that is part of ObamaCare) get approved. So who benefits? The person with HCV and Gilead. Gilead gets its money, one way or another. Insurance premiums and taxes will begin to rise to cover the expense. The people will blame Congress and the idiots in Congress will blame each other after they get through blaming the black guy in the White House.
We like Texans in Arkansas. They give us someone to argue with. They feel everything is bigger in Texas and I mean EVERYTHING! They send all their kids to college here because it costs half as much, even with out of state tuition, and they can take up two parking slots at WalMart so nobody will scratch their Beemer. There are also a few cows around for them to look at so they won't get too homesick and our women are prettier and dogs smarter.
So let me see if I can get Jeff, or is it Jeffery, out of the sage brush and back into the herd.

Proverb found on many outhouse walls in Arkansas:
Here I sit, my bowels a flex'in.
Just gave birth, to another Texan...

Now come on back Jeff or Jeffery or Billy Ted and talk to us!

Mike-from Arkansas
-where the women are barefoot and pregnant.
-where you can tell if we are married because there is tobacco spit down both sides of the truck...
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 3 years 9 months ago by mgalbrai.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11222

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Wayne wrote:

I thought someone else developed the medication then Gilead purchased it. then preceded to try and rip everyone off.
Maybe that is a bit harsh ;)

No, that is the simplistic story which certain personas wish to promulgate, likely as they need someone to hate and Gilead is a convenient target.

The actual story of Sofosbuvir's development and patenting is extremely complex, and unfortunately, people prefer a satisfying fairy tale of good and evil. Gilead certainly bought into Sovaldi and have made a lot of money, but if you have been looking at the documents, they have also been doing a lot of research along the way, much of which is referenced on this site.

That they tried to rip everyone off? Well, as I've mentioned before, outrageous drug prices are not a rare thing in the US, and Gilead only differs in that it has a larger market. In it's greed, it is so far following the rules of the game as it is played in the US.

As another poster here mentioned, it was George Bush's policies that in part allowed such price gouging to become a legal and acceptable practice. It has always puzzled me how well Americans have been brainwashed into voting against their own interests, but I probably shouldn't speak too fast as Australians seem to be catching up in this race to the bottom.
G4, F4, cirrhosis.

Thank you to Gilead, Michael Sofia, and the terrific folk at FixHepC for making this adventure possible.

YEAR..... ALT..... AST..... GGT... FERRITIN........................................
2009....... 210..... 215..... 953..... 1400........... (Bad health, stupidity)
2015....... 60....... 45....... 150..... 360............. (Improved diet and health, FixHepC treatment)
2016....... 20....... 24....... 25....... 156............. (SVR 12)
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11223

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Need a brain before you can wash it.
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11224

  • Wayne
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I'm personally happy the Australian Government played hard ball with big Pharma and received the deal they did, they also had a couple of levers as well one being FixHepc and another Homestead Australians were given a great deal .
I just find it strange the US Government doesn't demand the same.
Anyway we are lucky we live in Countries that will let us import life saving medication. :+1: :+1:
Genotype 1b 42 years.
2007 48 Weeks Interferon + Ribavirin Relapsed.
2015 6 Weeks same as above + Sempivir Too many sides stopped.
7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
VL Before tx 3 million.
1st bloods 8 weeks undetected
.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11225

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Good points Wayne.
You want to see strange?
Watch a presidential debate...
Makes you realize cream isn't the only stuff that floats to the top...
M
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11229

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I must say reading this thread has been entertaining and intriguing. Was there an intent,
purpose, reasoning, etc of the OP? Members of this site have posted on other less informative
websites their experiences w/generics. Some have have done it with anecdotal stories to
sway opinion and/or at least put in a seed of misinformation or doubt and not to mention
worry and fear. And of course, factual, true information have been disclosed, also.

These kinds of tactics can and do work both ways. As Mike has alluded to....Where are you Jeff?
Everyone is welcomed here, but one's motivation is sometimes not clear.
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11230

  • Wayne
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Your right possibly a bit of scare mongering. But as we all know nothing to fear on this site.

But according to another group of Aussie's Jeff is always asleep (Wiggles). :+1:
Genotype 1b 42 years.
2007 48 Weeks Interferon + Ribavirin Relapsed.
2015 6 Weeks same as above + Sempivir Too many sides stopped.
7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
VL Before tx 3 million.
1st bloods 8 weeks undetected
.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11298

  • Chapel
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Phew, thread is back, come in Jeff.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 9 months ago #11299

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The Doctor must be in....
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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