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TOPIC: 12 weeks of Harvoni my out of pocket cost $15.00 U

12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11122

Between my insurance and Harvoni and my Dr, I paid a total of $15.00USD for 12 weeks of pills. No side effects noted. Dr costs about $320.00 USD Labs about $150.00 USD. 3 months later no viral load still. That would be 5 months total.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11123

  • Chapel
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Hi Jeff and congratulations on your result. Are you in the US?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11127

  • Gaj
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Welcome Jeff and congratulations! :woohoo: So you are currently 8 weeks post treatment?

Good to hear that your insurance company covered most of the bills, did you have much trouble getting them to agree?
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11131

  • mgalbrai
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Hi Jeff and welcome!
I paid $10.00 for 8 weeks of Harvoni and about $2000 in co pays for tests, scans and procedures needed to document my EHMs. My insurer still only voluntarily covers people on the transplant list. That company insures the health of every Arkansas state employee and public school teacher. People can bitch and moan about Obama Care all they want. The "independent external review" provision of the PAF is how I got my coverage. I am happy about forcing my insurance company to do their job. I have paid them, on average, $300.00 a month for almost 30 years. When I needed their help, they forced me to fight for two years to get the what was rightfully mine. That's the part I hate. The money, $2000....... you can get more of that and you can't take it with you.
The time is different....The two miserable, frustrating, anger-filled years of my life I paid for it are gone.
That's why I do what I do. If I can help ONE person avoid that Hell, I will sleep better at night.
I am sleeping really nicely these days.

Now for the "flip" side: When insurers, both public and private, have to pay Gilead and others the outrageous prices they charge, that money will be recouped through higher taxes and premiums. Somebody has to foot the bill. So, we got well and the expense of our tx will be shared among the masses so Gilead can reap it's ill gotten gains. If insurers would cover generic tx, they would be out $560.00 instead of $56,000.00.
Very happy for you.
Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 3 years 8 months ago by mgalbrai.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11133

Yes in Texas
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11134

No not at all
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11139

  • mgalbrai
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Hi Jeff,
What was your F score and which insurance company covered you? Was it BCBS?
Many F-3/4 patients have been approved on the first try. Restrictions for F-1/2 have been easing. I hope this is a indicator of things to come.

Thanks,
M
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 3 years 8 months ago by mgalbrai.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11168

  • Greedfighter
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Yes, this is great info!

If you can get your insurance to approve Harvoni or Sovaldi, Gilead offers a co-pay coupon through their 'Support Path' program so that your co-pay is only $5 a month

Google Gilead Support Path for info.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11171

  • Gaj
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Hi GF,

Just had a look at that. It appears to be a good deal if your insurance approves part payment and you qualify (there appear to be a number of conditions attached) and you reside in the USA.

But I couldn't seem to find any similar plans that Gilead provide for non USA residents. Are you or Jeff aware of anything?
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11173

  • Greedfighter
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Hi Gaj,

This appears to only be for patients in USA, or US territories. I actually signed up for this, but insurance never approved me. Anyone else in another country should contact Gilead directly. There may be other help available similar to this in other countries
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11180

  • splitdog
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Hi Jeff. That is great and I wish you the best in your recovery. However, I have a question. Why did you come and post in this forum?
This forum is for people seeking alternative ways to get treatment that they otherwise cannot obtain through 'normal' channels. I mean no ill will or disrespect. I just wonder why to post here rather than say, Hep C forums or Delphi. Most of us here are here because either our insurance denied us, we've been waiting too long, socialized medicine has completely failed them, or we have no insurance. I have a friend whose treatment mirrors yours. He has great insurance, they paid for his Harvoni, and he is cured. I just wondered what the point of your post was. Thanks, Jim
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11184

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Hi splitdog, :)
I don't believe this forum should be excluding people on the basis of how they sourced their medications, after all the HCV didn't discriminate when it infected us.

Curing this disease is what we all want to do and generics are a fantastic and often affordable means of doing so for those of us thoughout the world who haven't been able to access the originals but I think it's great that Jeff has managed to source meds cheaply by whatever means in the US and hopefully he can provide more input on how he was able to successfully do that without difficulty so others can learn from it.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 8 months ago by Gaj.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11189

  • splitdog
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Of course we shouldn't be excluding anyone. I just wondered as to his reason why. It plainly states on theFixhepC home page that this is all about sourcing generics. I don't believe Dr. Freeman, or Kingswood Pharmacy, or anyone else here sources 'Gilead' medicine. His story was the first I have seen since I've been here. I believe everyone here pretty much is describing their success with 'alternatively sourced generics'. And it is all about getting the word out about generics. And there is really no secret about how he did it and how he can help others. He went to his doctor, he was diagnosed Hep C, he asked his insurance, and they accepted it and paid. That's the way it's usually done. Anyway, congratulations again, Jeff. Many people here wished they had some type of insurance that worked as smoothly as his. Jim
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
Last Edit: 3 years 8 months ago by splitdog.
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11193

  • A.L.
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splitdog wrote:
... I don't believe Dr. Freeman, or Kingswood Pharmacy, or anyone else here sources 'Gilead' medicine.

No. As I understand, a large part of the medication sourced here is produced under a licence agreement with Gilead, so many people here are in fact using legitimate Gilead medicine at reduced prices. I believe the Chinese products are still being made outside any legitimate agreements, but for some reason, Gilead seems to have dropped the ball there. Hopefully they will act more rationally and in all of our interests with the next game-changing drugs they develop.
G4, F4, cirrhosis.

Thank you to Gilead, Michael Sofia, and the terrific folk at FixHepC for making this adventure possible.

YEAR..... ALT..... AST..... GGT... FERRITIN........................................
2009....... 210..... 215..... 953..... 1400........... (Bad health, stupidity)
2015....... 60....... 45....... 150..... 360............. (Improved diet and health, FixHepC treatment)
2016....... 20....... 24....... 25....... 156............. (SVR 12)
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12 weeks of Harvoni my out of pocket cost $15.00 U 3 years 8 months ago #11194

  • splitdog
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I knew this would happen. Lol.
Our sourcing 'Gilead' medicine from India is just most recently. So, no, the primary purpose of this website was and remains getting people generic medicine from wherever possible. And shipping it directly from the manufacturer does not have Gilead's blessing. (otherwise, we wouldn't need FixhepC). Also testing it and it's associated 'supply line'. Again, I have no problem with Jeff being here or anything. And again, I wish him well. But the spirit of this site was not meant for that. Thousands of people have applied and received treatment pronto. We are not those people, or we wouldn't be here.

If someone came here with migraines and was wondering about treatment, I would also wish them well. But again, this is not the place for that. Or am I wrong?
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
Last Edit: 3 years 8 months ago by splitdog.
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