Home › Forums › Main Forum › Patient Stories › Afraid to take the meds due to severe anxiety

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  • 9 February 2016 at 11:56 am #11616
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi Hope,

    There’s plenty of those “against generics” doctors around!
    Know the feeling.

    Glad you’re starting tx, it really works.

    Good luck from another Ozzy. #flower :cheer:

    xo

    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    20 February 2016 at 4:21 pm #12336
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    Hi guys/girls, I’m starting on Tuesday :)
    Talked to dr.James and it helped a lot. Thank you for the suggestion ;)

    I have one question for anybody that also had panic attacks and anxiety issues: did you stop drinking coffee? I stopped it 2 yearsago because it made me go crazy (until then I was drinking it like crazy :cheer: ).

    Last time I took diapazem was 2 months ago when I bought a new coffee machine and drank coffe with only 1 percent caffeine in it and it made me half way to hell <img style=ick:' />

    So, my question would be this: this buzzy, speedy feeling that some of you talked about, does it compare to drinking lots of cofee? Just so I’m prepaired :)

    thanks for your answers!

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

    20 February 2016 at 5:14 pm #12337
    Wayne
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @wayne

    Hi Hope.
    I spoke to you before I’m the one that worries about worrying like you and myself and many others on here we have the same issues with anxiety as you do it seems to be a symptom of the virus the racy feeling I think is maybe just our anxiety acting up a bit the good thing though the anxiety is getting better with treatment you will be fine and you have this site to support you eg I had a bad night about 10 days ago search this website eg. side effects etc the answers were here as other people were explaining symptoms that I was feeling plus Dr Freeman rang me and put my mind at ease .
    All the answers are here well most plus if your feeling weird come on here you will be supported. Good Luck with tx :+1:

    Genotype 1b 42 years.
    2007 48 Weeks Interferon + Ribavirin Relapsed.
    2015 6 Weeks same as above + Sempivir Too many sides stopped.
    7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
    VL Before tx 3 million.
    1st bloods 8 weeks undetected
    .

    20 February 2016 at 6:06 pm #12340
    Wayne
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @wayne

    As for coffee I love it Moccona of course and the odd Latte coffee is supposed to be good for your liver enzymes. :cheer:

    Genotype 1b 42 years.
    2007 48 Weeks Interferon + Ribavirin Relapsed.
    2015 6 Weeks same as above + Sempivir Too many sides stopped.
    7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
    VL Before tx 3 million.
    1st bloods 8 weeks undetected
    .

    20 February 2016 at 6:40 pm #12341
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll

    Hope….Like your name…trust it. Your name will become a reality.

    Glad you have settled on a date. Goals and deadlines gets one’s ass in gear.
    That’s what I did. I had possession of my meds 2 and 3 weeks prior to finally
    eating them. I must say it was underwhelming…..nothing, nada, zilch. Bear
    in mind though YMMV.

    Regarding coffee….I drank a 6 cups per day before tx and now maybe 4 cups
    probably because of the meds, I think. I believe it is part physical and part
    psychological. Because of your anxiety and if want to still drink coffee,
    start slowly…no coffee, 1/4 cup, 1/2 cup, etc and see what happens.

    Regarding benzos….have some handy for emergencies if needed. Maybe the hot
    coffee melted your diazepam quickly and somehow you had an adverse reaction.
    Benzos are supposed to calm you down. From my experience so far, these new
    Hep C meds are very powerful. For me, they mask the effectiveness somewhat of
    other meds that I am taking.

    Lots of people here have already given you some good sound advise. You are the
    captain of your own ship. Make informed decisions and you will be fine. Good luck….e.

    Hope wrote:

    Hi guys/girls, I’m starting on Tuesday :)

    Last time I took diapazem was 2 months ago when I bought a new coffee machine and drank coffe with only 1 percent caffeine in it and it made me half way to hell <img style=ick:' />

    So, my question would be this: this buzzy, speedy feeling that some of you talked about, does it compare to drinking lots of cofee? :)

    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    20 February 2016 at 6:45 pm #12342
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    Well my question was about the relation of anxiety/panic attacks with coffee consumption (if anyone stopped drinking coffee for example becuase of that)

    And if the first days on TX, when some of you reported racing heart/speedy feeling, feels like drinking too much coffee?

    Otherwise I’m aware of potencial good sides of drinking coffee for liver – but in my case it’s not gonna be possible anymore I guess :( much like flying and some of other stuff I used to do :( or maybe it will be possible once hepC is gone? We’ll see ;)

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

    20 February 2016 at 8:22 pm #12344
    Wayne
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @wayne

    Hi Hope if coffee doesn’t agree with you leave it until you are better, most common side effect seems to be insomnia so something to get you off to sleep might be of benefit my Doc has prescribed me Tempazam maybe something you can talk over with your Doc. :+1:

    Genotype 1b 42 years.
    2007 48 Weeks Interferon + Ribavirin Relapsed.
    2015 6 Weeks same as above + Sempivir Too many sides stopped.
    7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
    VL Before tx 3 million.
    1st bloods 8 weeks undetected
    .

    20 February 2016 at 9:54 pm #12346
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman
    re_roll wrote:

    . From my experience so far, these new
    Hep C meds are very powerful. For me, they mask the effectiveness somewhat of
    other meds that I am taking.

    I go through the exact same thing re-roll.

    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    20 February 2016 at 10:06 pm #12347
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman

    About the buzziness feeling like too much coffee. I didn’t feel that. Too much coffee makes me feel like s…. The buzzy feeling from the meds was more pleasant than unpleasant for me. It stopped about 6 weeks in when i caught a cold.

    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    21 February 2016 at 12:42 am #12354
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Hope,

    I enjoy my coffee but I know that too many can make me feel ‘jittery’ which isn’t so good. For me the high from the meds wasn’t like that, it was more of a ‘glad to be alive’ spring day type thing. That sort of crisp, fresh, sunny feeling you get on those days. :)

    Everyone seems a bit different but I haven’t seen anyone complaining about the effect making them anxious and many people who did suffer from that previously seem to find relief through treatment.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    23 February 2016 at 5:42 pm #12524
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    Hey guys and girls, just wanted you to know that I started TODAY :)
    so 2 tablets down, 166 to go!
    feelings:
    – totally stoned at first from diapazem wich I took 2 hours prior as Dr.Freeman suggested
    – strange otherwise
    – half an hour very strange, half an hour ok

    This is for the first 5 hours on TX, hope I will not feel I need to update this every 5 hours hehe

    well…one step at the time!

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

    23 February 2016 at 6:00 pm #12525
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    buzzy feeling from the meds was more pleasant than unpleasant for me. It stopped about 6 weeks in when i caught a cold.

    Me too, really enjoyed the ‘Harvoni High’ for the first 4 weeks until I caught something which turned into a chest infection / sinusitis.
    Not been ‘right’ since – hoping under that sinusisits, there’s a new me waiting to break out ! ;)

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    23 February 2016 at 6:02 pm #12526
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Well done Hope :)
    Give it a couple of days and everything should settle down for you.
    My very best wishes for a successful treatment. #flower

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    24 February 2016 at 2:26 am #12538
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Good to hear you’ve started Hope! :+1: :cheer:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    25 February 2016 at 6:11 pm #12678
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    Update: first day of tx went ok with Diazapem. Second one, without Diazapem, wasn’t walk in the park. Extreme anxiety some 5 hours after I took Sof/Dac. Almost a panic attack. Somehow me and my friend who’s staying with me handled it without taking benzos.
    Third day: no way to cope without benzos. Even with them it’s hard.

    All 3 days were ok sleepingwise and no headache, drank plenty of water.

    Is it getting any better after some time? How was first days for you?

    And another question, is sesame an cyp3a4 inhibitor also? Searched for it and kinda got lost, can’t really spend much time behind the computer.

    Not in a good shape at all :(

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

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