Americans ... Idea!

This topic has 39 replies, 10 voices, and was last updated 8 years, 9 months ago by Price.

Viewing 15 posts - 1 through 15 (of 40 total)

1 2 3 →

Author

Posts
5 December 2015 at 3:15 pm #5283
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Hey all of you Americans that have been helped by this site. I’ve got an idea to get the news of generics and this site into the American Mainstream Media … and we get to help an American Veteran in the process!

How about a bunch of us pledge money to buy 24 weeks of generic Sof/Dac/Rib for Zion Israel … on the condition that he contact his journalist from CBS and tell him what he’s doing. He’s the man in this video:

http://www.cbsnews.com/news/va-cant-afford-drug-for-veterans-suffering-from-hepatitis-c/

I think I know how to find him. I’d be willing to make the offer if we get enough pledges.
I bet Emilio could collect the money and get the drugs shipped from Kingswood Pharmacy for us.
We’ll need something in the range of $2300.

If we get enough pledges I can go $500.00

Who else is in? PM me if you don’t want to go public with your pledge.
(Use the PM function in the header, not the pop-up …. I’m less likely to miss it that way.)
5 December 2015 at 3:38 pm #5284
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Hi Kevin,

I’ve made a few calls.

FixHepC will add $1 for any $1 pledged

Adam at Kingswood Compounding will add $1 for any $1 pledged

I will add $1 for any $1 pledged

I can’t get hold of Graeme at West Lindfield Pharmacy but knowing him I’d be willing to bet he will contribute to so how about you make the call…

YMMV
5 December 2015 at 3:49 pm #5289
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Cool … I’ll start working on getting his info tracked down tomorrow … no guarantees, but I think I can do it!
5 December 2015 at 4:20 pm #5290
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Outstanding folks!
I sent you a PM Khilde.
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
5 December 2015 at 5:23 pm #5292
Vororo
- Topics: 25
- Replies: 307
- Total: 332
- Guardian Angel
@vororo
Great Idea! I’m in!

I just wired $500 USD to fixHepC for Zion Yisrael.

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).
6 December 2015 at 12:22 am #5299
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
I’m happy to help with logistics. Let me know if need? Em
6 December 2015 at 12:41 am #5300
Paul-Jarman-facebook
- Topics: 8
- Replies: 373
- Total: 381
- Guardian Angel
@paul-jarman-facebook
Zion Yisrael has been approved for treatment

Zion Yisrael
Yesterday at 05:06 · Detroit, MI, United States
I thank everyone for their support and encouragement for the Pharma/VA interview on CBS. As a result I have been approved for treatment but let’s not forget the others who need treatment and are being denied. Blessings!

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
6 December 2015 at 2:55 am #5303
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Okay … I found him …. but it says on his facebook page that he has now been approved for treatment due to the CBS story publicity.

So I’ll think about this and see if there’s still a way to leverage this. He may still be able/willing to get us in touch with his journalist, or maybe he knows of another case that would make a good story for CBS.

Everybody keep their eyes open for an alternative way to do this.

(Damn … I’d have found him sooner if I’d only read more carefully and seen the “Y” in front of his name.)
6 December 2015 at 7:40 am #5307
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
All the paid people searches seem to have been scrubbed. I can see he exists but can’t get the contact info. I think I have an old phone number from a different state, but it’s too late to be trying to call now. But here he is with his keyboard.

[video]https://www.youtube.com/watch?v=0iPW9vi3xhE[/video]

Wait … email address! less than a year old!
6 December 2015 at 8:24 am #5308
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Aha! The Facebook account is a celebrity style account … messages get sent to a secondary folder never to be seen.
Friend requests will be ignored. It’s meant only for “followers” and such.

I found the real one! Tricky guy, but not tricky enough … message sent!
6 December 2015 at 8:36 am #5310
Paul-Jarman-facebook
- Topics: 8
- Replies: 373
- Total: 381
- Guardian Angel
@paul-jarman-facebook
klhilde wrote:

Aha! The Facebook account is a celebrity style account … messages get sent to a secondary folder never to be seen.
Friend requests will be ignored. It’s meant only for “followers” and such.

I found the real one! Tricky guy, but not tricky enough … message sent!

You can get him here https://www.facebook.com/groups/HCV.Treatment/ He posts on that FB group is where I caught up with him.

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
6 December 2015 at 9:17 am #5311
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
I bet he’s here right now! He just accepted my friend request.

You here Zion?

Edit: Contact made! He’s IN!
Hope to talk on the phone tomorrow and he’ll send all our info to his journalist!

And yes Paul, he was already aware we existed.
6 December 2015 at 10:15 am #5313
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Well done Klhilde and Paul for pursuing this. Happy to contribute to another opportunity – great way to help out a fellow HepCer and spread the word further.

Coral
6 December 2015 at 4:33 pm #5326
Vororo
- Topics: 25
- Replies: 307
- Total: 332
- Guardian Angel
@vororo
Well, it’s great that Zion Yisrael has got his treatment.

Of course, fixHepC is welcome to use my donation in any other way it chooses.

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).
6 December 2015 at 6:04 pm #5332
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
ATTENTION!
This is NOT from fixHepC!
FixHepC does not censor…

A kind reminder from the HepMag forum moderators

Hello,

We appreciate your willingness to help folks on the Hep Forums but encouraging people to take it off the Forums and into the Hep Forums personal messaging system is inappropriate.

Quote
I am aware of some people who want to help veterans who have HCV and been denied treatment by the V.A. Please PM if interested.

Future violations can result in a suspension of your membership.

Thank you for being a Hep Forums member and for abiding by our rules.

Best,
Hep Forum Moderators

AGAIN, the above us from HepMag, not fixHepC

Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Author

Posts

Viewing 15 posts - 1 through 15 (of 40 total)

1 2 3 →

You must be logged in to reply to this topic.