Beaches Treatment - Harvoni (Aus PBS)

This topic has 188 replies, 35 voices, and was last updated 8 years ago by beaches.

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18 March 2016 at 11:15 am #14084
beaches
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- Guardian Angel
@beaches
Got my script today
. Went to my local pharmacy only to find out I’d missed the delivery cut-off for the next day by 30 minutes. hmy:
My fault, I went home and fluffed about for a while instead of going straight to the pharmacy.
The pharmacist decided to call the supply organisation to find out if they had any in stock (the answer was yes ) and learned that it can only be ordered by phone.
So, if the dogs are smiling on me and the tablets arrive I will start my treatment tomorrow (pharmacist asked really nicely if they could deliver).
The doctor reckons I won’t have many side effects apart from tiredness.
Being Genotype 1, I opted not to go on interferon treatment when I was first diagnosed in 2004 so this is my first (and hopefully only) treatment .
I’m not happy that the funding for the Hep C meds have come at the expense of other funding. I think that is all kinds of wrong, but I am grateful for it.
The script is for 28 tablets, with 2 repeats. Each script costs me $28 and some cents, but it costs the pharmacist 22 GRAND!!! Yes they get almost all of it back from the govt but it’s still an expensive drug.
I’ve been instructed to cut out all supplements apart from vitamin D. Naturally I’ll do what I’m told. I want those little orange buggers to work.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 March 2016 at 11:28 am #14089
Tina-Hill-facebook
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@tina-hill-facebook
Yay!!! all the best for treatment

SVR 24
18 March 2016 at 11:57 am #14097
Ariel
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- Guardian Angel
@ariel
Well done Beaches
Looking forward to supporting your tx
Xxx
Love from Ariel
18 March 2016 at 12:18 pm #14100
LondonGirl
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- Guardian Angel
@londongirl
Great news – Good luck Beaches

Somewhat different to the UK – When Australia says the medicines are approved, they really are – Here they are still delaying, a commissioning group have to have meetings re every patient before they can prescribe, then more waiting etc etc

I wish you every success for your treatment and future good health

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
19 March 2016 at 10:52 am #14168
beaches
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- Guardian Angel
@beaches
Picked my by meds today and took the first pill right away.
It begins.
Apologies in advance

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 10:53 am #14169
beaches
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- Guardian Angel
@beaches
Oh LondonGirl, that sucks.
Hope you get yours really soon

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:01 am #14170
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
Lol Beaches! re aka greedy cnuts

SVR 24
19 March 2016 at 11:09 am #14172
beaches
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- Total: 760
- Guardian Angel
@beaches
I’m fully expecting a slap on the wrist from an admin

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:12 am #14173
Dr James
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@fixhepc
Hi beaches, yes, you definitely deserve a slap on the wrist. You’ve mis-spelt the word!

YMMV
19 March 2016 at 11:12 am #14174
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
Nah they are probably going to cut and paste it as its freakin awesome!

SVR 24
19 March 2016 at 11:14 am #14175
beaches
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- Guardian Angel
@beaches
BAHAHAHAHAHAHA!

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:14 am #14176
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Why thank you

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
19 March 2016 at 11:15 am #14177
Tina-Hill-facebook
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- Total: 733
- Guardian Angel
@tina-hill-facebook
No – thank you beaches I loved it xx

SVR 24
19 March 2016 at 11:30 am #14180
Tina-Hill-facebook
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- Total: 733
- Guardian Angel
@tina-hill-facebook
Hi Mohammad you need to get approval from one of our admin team to post about supply, once you have that then we have a “Pharma’s Market” section for you to post.

Kind Regards
Tina

SVR 24
19 March 2016 at 12:48 pm #14190
isaing4
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- Guardian Angel
@isaing4
beaches wrote:

Picked my by meds today and took the first pill right away.
It begins.
Apologies in advance

So this is the HARVONI from Gilead! Famous and pricey but wanted by so many people all over the world! Nice package! illy:' />
Yay! I wish you easy tx and UND soon!

HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com
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