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  • #4854
    Browny
    • Topics: 2
    • Replies: 13
    • Total: 15
    • Acolyte
    • ★★
    @browny

    Desley

    Thanks for your post – sounds terrible to be struggling but I really appreciate you sharing your experience- it really helps me (and others) work out how to manage.


    Age 51 Genotype 3 since 1985, F3-F4, VL 5.3 (Nov), Tx naive.
    Ordered Sof/Dac from Buyers Club 16 Nov which arrived 17 Dec, started tx 20 Dec

    #4855
    Desley
    • Topics: 1
    • Replies: 5
    • Total: 6
    • Novice
    @desley

    Hi, thanks for the suggestions. You are right I think that I am needing more. I can feel that since starting treatment. I have been vegan for over 30 years and can’t eat nuts. I am trying to eat what I can when I can. I’m sure I must be getting closer to the day I feel better, I know it will come. I don’t really have breaks at work and have a banana when I can.

    #4880
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Desley, I am not on Tx yet, hope to start after Xmas when I will have a week off work, fingers crossed.

    I totally agree with GAG, I was on my usual healthy diet and was getting thinner and thinner, I was also off food. I made a concerted effort to eat more and have put on weight, it isn’t muscle, but fat, I believe I need this anyway, especially if I am going to be downing drug cocktails for new year ;-)

    I noticed in my latest bloods, Trigleycerides are very low and out of range, on looking this up thus can cause malabsorbtion and weight loss, Dr F said nothing to worry about but it makes sense to me as I don’t gain weight easily. It has taken me 18 months to gain one and a half kgs but I feel better for it.

    I eat protein bars when out and about running around which I do a lot of, aim for good fats. Salmon, avocado on toast , got sick of these personally but it does help. Nutritionist told me to eat more protein bars and not to have a break, keep a regular flow always in handbag, I eat ‘Naked’ coco bars – luckily I like them! They are raw but taste yummy. Can recommend and believe they help me weight up a bit and keep going. They are quite expensive, but worth it. The more I eat, the more my appetite returns. Oats in the morning before work too, some nice organic ones, nurse at hospital also told me she eats these to get her through her day.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #4912
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    I’m in treatment and have found no need what so ever to take time off.

    If anything, my energy levels are far greater then when I started, all in all
    I’m in better shape then I was a few weeks ago.

    I think, its pretty amazing considering, I’m only on my fifth week.

    My viral load has gone down in less then three weeks from 1.6 Million -96!


    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    #4914
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Sirchinenge, Think we may have discussed this before? but do you mind me asking what your body weight is? Us 50kgs and under do seem to suffer more sides than others from what I’ve read. I have not met anyone yet who is under 45 kgs like me!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #4968
    Avatar photoLife
    • Guardian Angel
    • ★★★★★
    @life

    Hello Desley, how are you feeling now? hugs, Life

    #4969
    Avatar photoLife
    • Guardian Angel
    • ★★★★★
    @life

    Hello LondonGirl! You already tested on “leaky gut”?…I know I was in bad shape with the desease, absorbing vitamins was a huge problem. I tested my feces 3 years ago, my intestins were not working as they had to, loosing all vitamins…very skinny..Took herbs for that…but you’ll see…once on tx you will get an amazing appetite, I’ve been eating stuff that I haven’t for years, avocados rice and beans are over…I just can’t get enough from regular tasty foods…It’s so bizarre I’ve been into macrobiotics 8 months before tx, I loved it and now I can’t get enough of a slice of pizza…So, just to give you an idea, hope you don’t mind, I gained 1,5kg in 6 weeks…and my intestins are making NOICE and moving for the first time ever in years…

    #4971
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi from me too Desley, hope things are improving a little for you?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #4974
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Life – Wow 1.5 kgs in 6 weeks? Yay ! I would be so very happy to be a little ‘chubbier’ ;)
    Currently don’t have problem with lack of appetite, but crave certain foods those perfect little veggy organic ones, tasty fresh stuff, tricky when working sometimes. Took me 18 months to put on 1.5 kgs even eating away, but I do look better for that small amount. Trying hard pre-tx to get more weight on, not really working, but maintaining. Here’s hoping I will follow in your footsteps – Encouraging :-) x


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 9 posts - 31 through 39 (of 39 total)
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