Viewing 15 posts - 16 through 30 (of 40 total)
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  • #5375
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    I didn’t notice the thermomenter at the time (not sure how I missed it!) but I had followed the same process as GAJ and when I got to the “Leave a message why this donation is special to you” part I typed in FixHepC in the “other” box so that makes it pretty clear.
    I just checked and it’s up to $6,526 right now which is great. :cheer:

    Coral

    #5376
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    A thermomenter is a fancy version of the thermometer…..just saying… B)

    #5413
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Heres the link again for all the cashed up Baby Boomers who want to kick in a few bucks for the ones that slip between the cracks.

    http://www.givenow.com.au/tascahrd

    cheers


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #5478
    Avatar photoArcher
    • Topics: 9
    • Replies: 61
    • Total: 70
    • Recovery Champion
    • ★★★★
    @archer

    Im with you Paul – lets make this Christmas generous in heart and honour the spirit of FixhepC – a movement which affirming human value – not through status, colour, theosophy or orientation – but according to need – has sought ways to kindly and safely preserve the welfare of many.

    We have received two precious gifts –

    1 Access to life saving medicines and compassionate medical support – through its affordability, convenience and safety

    2 An opportunity to do something that is truly meaningful, that matters.. We can help lift another human life by contributing toward the welfare of those for whom this access is less affordable.

    http://www.givenow.com.au/tascahrd

    UT1ii6RKuE4[video]http://www.youtube.com/watch?v=UT1ii6RKuE4[/video]

    #5483
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hear, hear Archer….couldn’t have said it better :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #6410
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    I just donated to the fund, but when I got the receipt thing on my email , I think it was just to the HIV one.
    How do I know that it went to the hep C people?

    I’ve got nothing against the poor HIV people, but I feel a lot of them are cashed up & specifically wanted it for our heppers.
    hmm :(


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #6412
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Oh um just got back on there & read that I should have ticked “other” is that correct.
    Looks like I’ll have to try to scrape up some more to donate, again?

    Can anyone tell me if this is right? would my donation have gone to the right place?
    Wish I was more computer savvy. :oops:
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #6413
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    Yes you need to pick “is this donation for someone special” or something like that. Then a number of choices with buttons next to them will appear. Choose other and type in FixHepC.

    Try emailing them to see if you can get it fixed.

    Just as an aside, this way of directing the funds does seem problematic. I’ve got nothing against the HIVers either but if people are donating to fixhepc then that’s where they want to see the funds go. Is there no way this cannot be made separate to the HIV donation process?

    #6415
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    OH! hmm.
    yes I totally agree Chester.
    There are others like me who aren’t that great with doing stuff on computers.

    I’ll try emailing them but will also make another donation, I’d rather do without some things & feel I may have helped the cause a little, especially those war vets, feel so sorry for all those guys suffering so much AND a lot of them suffering from HCV from no fault of their own.. :)

    Thanks for the help Chester.

    Cindi x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #6416
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    OK, done it again now, but made sure I clicked that box with the FixHepC part.
    It’s easy to miss that bit.

    Also sent them an email so hopefully there will be 2 donations from me soon…. I hope.
    :)


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #6417
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    The notification email I received didn’t specify FixHepC either, CJ. I don’t think it matters though, I’m sure our donations went to the right place.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #6420
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi all,

    The receipt doesn’t specify FixHepC unfortunately.

    If you go back to page two of this thread you will see my admittedly rather rough 123 rundown of how to do it and how to check your donation ended up in the right place.

    Hope that helps.

    G


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #6425
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    I got a reply email saying that it’s been put into the FixHepC one now, so all good.
    So ended up doing 2 donations, but worth it :)


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #6435
    Avatar photoArcher
    • Topics: 9
    • Replies: 61
    • Total: 70
    • Recovery Champion
    • ★★★★
    @archer

    I rang TasCAHRD,on 03 6234 1242 – explained my error – assured them that in future I wouldn’t waste their time – now knew how to direct further contributions independently – but asked whether on this occasion they could ensure the funds went to FixHepC Buyers Club. I felt a bit mean doing it because the funds wherever they go Im sure would be toward a worthy cause.

    However, had a brief conversation with Ellen, the Head of Finance & Administration, TasCAHRD. Tasmanian Council on AIDS, Hepatitis and Related Diseases – a very gracious person who immediately understood, directed the funds and sent me a confirmatory email.

    Yes if I had read Dr James post I would have known what to do, but I had not engaged the thread from the beginning.

    #6516
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi All,

    tasCAHRD have created a new dedicated location for HCV donations:

    https://www.givenow.com.au/fixhepc

    This will ensure that these donations are directed towards HCV only.


    YMMV

Viewing 15 posts - 16 through 30 (of 40 total)
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