Home › Forums › Main Forum › Patient Stories › Countdown begins for the Magpie

Viewing 14 posts - 61 through 74 (of 74 total)
1 2 3 4 5
  • Author
    Posts
  • 1 April 2016 at 11:18 am #14727
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Magpie, Good luck with conitnued UND – Re the flu vaccine, Dr Freeman advised me against it a while back.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    1 April 2016 at 11:52 am #14731
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    :) Magpie #flower undetected forever I say #flower #duck #duck #duck #duck #duck #duck #duck

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    8 April 2016 at 12:25 am #15033
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    week 11- 13 days to go

    head mushy, forgetting things…could just be the age….but it seems worse lately
    hopefully all will be back to normal in a few weeks

    can’t wait to finish the drugs.

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    8 April 2016 at 12:45 am #15034
    Avatar photoMichael-Henry-facebook
    • Topics: 9
    • Replies: 39
    • Total: 48
    • Recovery Champion
    • ★★★★
    @michael-henry-facebook
    magpie wrote:

    Hello DAA brains trust

    The 2016 flu vaccines have just arrived in town, can anyone tell me if it is advisable to have a shot whilst on treatment – I’m week 10 of 12.
    many thanks :)

    Hi mags, I myself decided not to do the flu Vac while I’m on treatment. I’ve just finished my 24 week treatment & my body has been battered. So I’m crossing my fingers & not doing the flu Vac as I had a bad reaction last one a had.
    Also Mags, hang in there with the RIBA , I found it very hard to cope with. The anaemia you have to watch but I just got through on 1200mg. The mood change thing “RIBA MONSTER” is very real side effect & I just locked myself away from the world when RIBA got out of the box.
    Good luck & the end is in sight.

    AUSTRALIAN
    HCV Genotype 1a
    2003 Relapsed Peg Interferon / Ribavirin
    Pre treatment VL 2,000,000
    ALT 65, AST 42, ALP 111, GGT 56
    Bridging F3-4
    Treatment -24 weeks – Sof , Led with 12 weeks Riba.
    4 weeks VL <12 Detected ALP 89 , GGT 21 , ALT 17 , AST14
    12 weeks VL Undetected ALP 96, GGT 22, ALT 20, AST 20
    24 weeks VL Undetected ALP 83, GGT 20, ALT 21, AST 14
    EOT 6th April 2016
    SVR 5 weeks VL Undetected ALP 81, GGT 31, ALT 22, AST 20

    8 April 2016 at 12:52 am #15035
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    From north of the equator:
    We didn’t have a flu season where I live and it was not a big topic in the national news. As a school teacher and someone who the flu really nails, I got the shot, 2 months before treatment though.
    Happy for you!

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    8 April 2016 at 1:21 am #15036
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    thankyou for the encouragement Micheal-Henry :)
    and for the flu advice mgalbrai :)

    Apparently there has been a few severe reactions to this years flu vax here but it could just be the batch.
    I will wait until I finish treatment and for the fresh batch to arrive in town.

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    8 April 2016 at 4:57 am #15050
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi magpie,

    The Riba will be the cause of the mushiness/forgetfulness stuff. I’m on week 21 now and noticing a bit of distantness or difficulty focussing when interacting with others, if you are the same it’s probably a good idea to let those close to you know what the problem is. I just plan to ride it out for the few weeks left.

    I’ve had regular flu shots for the last few seasons so figure I have at least some protection to cover me until EOT in early May and the peak of our season tends to be July/Aug anyway.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    8 April 2016 at 5:53 am #15054
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    Thanks Gaj

    The ones close to me see how forgetful I am! I know/hope it will pass!

    Big birthday next month hope thats not the reason……

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    9 April 2016 at 10:29 am #15130
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Magpie
    I’m wondering about a flu shot too haven’t decided yet. I finished tx last Monday still feel pretty tired need a nanna nap most days since finishing brains not too foggy though it’s pretty sharp luckily. I was exhausted toward EOT it’s strong medicine I think. Wishing you a great countdown and good results for your imminent EOT from sleepy Ariel

    9 April 2016 at 11:00 am #15132
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    Hi Ariel
    I would wait a while to see if many people are having strong reactions from this year’s strain. You don’t need a small dose of the flu straight after finishing treatment.
    I am going travelling after treatment so will try and have a flu shot after EOT and before I leave.
    The countdown is so slow.

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    26 April 2016 at 2:03 am #16177
    Avatar photomagpie
    • Topics: 1
    • Replies: 62
    • Total: 63
    • Recovery Champion
    • ★★★★
    @magpie

    #flower Undetected #flower
    Thankyou to all the people on this site, especially to those who have helped me through the last 4 months.
    Thankyou to organisers for getting the fix hep c site operational.
    I read a lot of information from the links Dr Freeman has put up too, so thankyou.

    I wish all the people having treatment a safe journey and an undetected result.
    :woohoo: I’m on holidays!

    EOT UNDETECTED
    Week 8 all bloods within normal limits
    Week 4 Undetected
    2016 – 28 January started Harvoni & Riba treatment
    VL pretreatment 639,000 alt- 77
    2015 fibroscan – 6.6
    2 x non responder peg interferon & riba
    geno 1a

    26 April 2016 at 2:17 am #16180
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Congratulations magpie! :woohoo:

    Best wishes for SVR. :+1: :cheer: :+1:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    26 April 2016 at 3:15 am #16184
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Awesome Magpie
    Wishing you a restful holiday and onwards to SVR
    Happies to you from Ariel #flower

    26 April 2016 at 4:54 am #16191
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Way to go Mags!!
    A flu shot?? Ohhhh…
    I’m a nothern hemi!! I got one a month before tx, but, at that time, I had no idea I WOULD be treating. Turns out, not one case of flu was reported at my school of 2400 teens who would think nothing of sharing a tootsie pop with the rest of the class. I go through a quart of Germex a month.,
    At any rate, UNDETECTED!!!
    You are in the stretch and pulling away from the pack. The virus is gone. Worrying about it coming back…be crazy not to, but these drugs work.
    Keep your eye on the finish line.
    You are almost there!
    m

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

  • Author
    Posts
Viewing 14 posts - 61 through 74 (of 74 total)
1 2 3 4 5
  • You must be logged in to reply to this topic.