Global Hepatitis Summit

This topic has 7 replies, 5 voices, and was last updated 6 years, 5 months ago by Dr James.

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17 June 2018 at 10:09 pm #28172
Hazel
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- Guardian Angel
@hazel
I am in Toronto, having just attended the GHS. Had an info booth, presented a poster, and did a talk about medication pricing. Video link to come

I also made a compilation of stories sent to me by hepsters on facebook:
https://static1.squarespace.com/static/591fb1cfb3db2b2e45f3350d/t/5b245d1a758d468433b902b6/1529109814347/Hep+C+Stories+book+FINAL.pdf

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
17 June 2018 at 11:28 pm #28173
Mar
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@mar
Excellent work Hazel, your dedication to the cause is very admirable.

Making the world a better place – one patient at a time.
20 June 2018 at 6:31 am #28185
Hazel
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- Guardian Angel
@hazel
https://www.youtube.com/watch?v=tBfKbG3laWY&t=76s

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
19 July 2018 at 12:14 am #28354
Hazel
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- Total: 414
- Guardian Angel
@hazel
Hi, here is a 3 min version of this from last month, better for sharing-

And a handout I made to take – this is for anyone to use, show their doctor
Doctorpage.pdf

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
19 July 2018 at 12:14 am #28355
Hazel
- Topics: 45
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- Total: 414
- Guardian Angel
@hazel
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
19 July 2018 at 7:50 am #28356
coral
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@coral
Thanks Hazel. Great work.
21 July 2018 at 3:05 am #28358
Greedfighter
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@greedfighter
Hi Hazel,

I’m happy to see your presentation. I just want to bring to your attention that TRIPS article 60 allows for the importation of generics to any member nation for a 3 month supply.

“In accordance with Article 60, Members may exclude from the application of these procedures de minimis imports, i.e. small quantities of goods of a non-commercial nature contained in travellers’ personal luggage or sent in small consignments.”

I received my medication in the USA and I was not part of Dr. Freeman’s Redemption trial; and I did declare it to customs. It is totally legal.
21 July 2018 at 5:54 am #28359
Dr James
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@fixhepc
Hi Greedfighter,

Article 60 of the World Trade Organisation says members may, rather than must…

Many countries prohibit personal imports.

The FDA rules are here: https://www.fda.gov/forindustry/importprogram/importbasics/ucm432661.htm

And basically say it is illegal except if…

So the reality is that personal inportation is not a right in the USA. It is a discretionary power around the “except if…”

The FDA has been clamping down on it so as you’ve said before – if you are sitting on the fence get yours while the getting is good!

YMMV
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