Hello Community

[Hazel]

Great post Coral,

I was thinking that it is a holiday weekend here, which means exam study again for me (for the last time), and it must be exactly 3 years since I was waiting for my meds to arrive.
Pretty sure I would be fertiliser by now, I was out of time, if I hadn’t found FixhepC, and taken the leap- now I am well, the world is my oyster. We have seen some great stories- yours is one of them Coral!

But as far as treatment goes in NZ, some things change, some things stay the same. (nb- it says I founded a buyers club- I didn’t- I found one- this!!!. They always get something wrong)
https://www.odt.co.nz/news/dunedin/further-hepatitis-c-drug-delay-cruel?fbclid=IwAR0C-cttpICOaFX8B0TSaEtP4XfQBE5WIVbK2ydV7Y7YF8P5c-maF5Vf4iY

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Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

[coral]

You are such a consistent voice for HepC in NZ media (and therefore elsewhere) Hazel.

Good luck for your exams – you must be ready to celebrate the end of that marathon (and your liver won’t mind!).

[Hazel]

Cheers.
An update on that NZ story, and I think it shows how important media pressure is.
I know that many people, senior doctors and organisations have asked Pharmac for more info, and a rough timeline of when Maviret will be available, having really raised expectations about Oct 1. Prof Gane told a conference recently he expected by Christmas. No answer from the govt…. but a couple of days after calling them cruel in a headline got their legal/comms dept busy and they came up with another response to the whole sector- not until next year, no idea when.
This ….. does not meet with my approval, to put it politely.
https://www.odt.co.nz/news/national/hep-c-drug-delay-confirmed?fbclid=IwAR0iweMvMen8suACBuMsWKlDloKPCMaum8mV44Jn3n811AqcrHVkY1HxoLo

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Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

[Mar]

Nice job Hazel, keep piling up the pressure

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Making the world a better place – one patient at a time.

[Greedfighter]

Great post Coral! You’re right, we are all extremely fortunate to have been cured by Dr. James.

Keep up the pressure Hazel! You’re doing an incredible job. Great advice telling people that can afford it, to get generics. I would think virtually everyone that’s able to work can afford it at this point.

[Author]

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