How about a Map of all of us?

This topic has 11 replies, 7 voices, and was last updated 8 years, 11 months ago by LondonGirl.

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11 December 2015 at 11:22 pm #5993
2b
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- Guardian Angel
@2b
I was thinking, if we had one of those sort of pin maps, showing location of people who have bought medicine thru the club, no personal info, just a pin on a map from appx where they are from, it would be a cool visual.

You could have red pins for those who have procured their meds and then change those colors to blue pins when they go undetected.
It would be a nice visual aid maybe to show the progress of what Dr. Freeman, Greg and all have accomplished? I think if done, it shoujld be a combo map showing both the pins for people who accessed via Greg and those who accessed via the club, all on one map.

Maybe somebody with actual skills knows how to do something like that, I sure don’t, but I know I would enjoy looking at it and watching more and more pins get added and changing color as months went by.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
12 December 2015 at 12:43 am #5994
Paul-Jarman-facebook
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- Guardian Angel
@paul-jarman-facebook
Like this 2b https://www.zeemaps.com/

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
12 December 2015 at 12:51 am #5995
klhilde
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- Guardian Angel
@klhilde
Good Idea! Anything to start demonstrating numbers of success is good for convincing the more reluctant/anxious/conservative.

Do we have any volunteers that are familiar with the workings of Google maps? I’m pretty sure we can have multiple colors of pins with little pop-up boxes when you point to a pin. We can put specific info in the boxes. (No names, no specifics on location.)

We can put our info in this thread and our volunteer can add it to the map. Suggested relevant info would be:

1) Genotype, Fibroscan, Viral load
2) What drugs (Manufacturer, Brand Name and/or Generic Names)
3) Where/How you got them, Treatment length and Cost
4) Date Started, Outcome (i.e. Undetected 4 weeks or SVR 12, etc)

And of course your location

Anybody up for this?

I’ll give my info as an example:

Washington State, USA
1) 1a, F0/F1, 1.86 million
2) Sof/Dac, Mesochem encapsulated by Kingswood Pharmacy
3) Buyers Club, 12wks, ~US$1150
4) Began Oct.18, 2015, UND 6wks
12 December 2015 at 1:14 am #5996
2b
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- Guardian Angel
@2b
yep, something like that, i think it would be cool, put it on the page permanently or something so its easy f or people to see as soon as they log onto the site

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
12 December 2015 at 1:18 am #5998
Paul-Jarman-facebook
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- Guardian Angel
@paul-jarman-facebook
Trying to work out how to pin Google Maps then save info on it, we may need to link the maps to this site first. I’ll do some more reading and see if I can’t work out how to do this. It will need someone with better IT smarts than me to implement though.

cheers

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
12 December 2015 at 4:14 am #6026
CJ
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- Guardian Angel
@cj
Good idea.

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
12 December 2015 at 5:14 am #6034
LondonGirl
- Topics: 16
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- Guardian Angel
@londongirl
Great idea.
Remember to check the privacy settings, Google seem to know if you have a cup of tea

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
12 December 2015 at 9:57 am #6050
zhuk
- Topics: 5
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- Guardian Angel
@zhuk
Like the idea, 2b

Think having the UND statuses posted would be a great illustration.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
12 December 2015 at 12:42 pm #6057
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
well i think its a real good idea, but sad to say I don’t have the tech skills to do it…
but I KNOW one of you guys do!

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
12 December 2015 at 1:14 pm #6059
Gaj
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- Guardian Angel
@gaj
Sounds good as long as we can maintain it? I suspect there may be a bit of work* in that and probably needs something like the Zeemaps Paul linked at the start which also starts to cost for larger databases and more capabilities.

Hopefully something can be done with Google or similar, or there are apps like this but they only track visits by members and visitors.

http://www.visitormap.org

* Happy to contribute to the maintenance but no setup skills.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
12 December 2015 at 9:34 pm #6093
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
Well, I suppose a reaallllll low tech way to do it, would be take a big paper map of the world, hang it on the wall, put the colored pins in it, and take a picture of it, and every so often update the pins with more pins as more people come on and different color pins as people go undetected…..crude, but might work if you could get the picture good enough….or maybe a real little map of the world with real little pins and then you take a close up picture and blow it up?

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
12 December 2015 at 10:56 pm #6100
LondonGirl
- Topics: 16
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- Total: 1,364
- Guardian Angel
@londongirl
Like it!

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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