how many have success

This topic has 11 replies, 6 voices, and was last updated 8 years, 8 months ago by CJ.

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29 February 2016 at 4:29 am #12964
lizziholt
- Topics: 6
- Replies: 8
- Total: 14
- Acolyte
@lizziholt
My curiosity is getting the better of me and a few sceptics need to be shown faith…do we know the numbers of people in Australia who have reached SVR through this website??? also if there are relapse figures???
12 days to go for me…feelin good apart from riba effects. illy:' /> illy:' /> illy:' />

G1b since ‚Äú87 This is first treatment VL 1,100,000 F4
24 wk Sof+ Dac started 17/12/2015 Riba 06/01/2016
HB 145 WCC 4.1 Platelets 107

8 wk UNdetected
29 February 2016 at 6:17 am #12965
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
i don’t know how many, but why limit the count to Austrailia? there’s a bunch of us from all over who have been cured.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
29 February 2016 at 6:27 am #12966
splitdog
- Topics: 5
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- Total: 379
- Guardian Angel
@splitdog
The last time I spoke with Dr Freeman, I had some questions and he has a plethora of data and information regarding his foray into Hep C treatment. All kinds of statistics like you mentioned above. Perhaps at the right time he will start a thread about it. He could update it every 1 or 3 months. It will be super-interesting and revealing.

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
29 February 2016 at 9:54 am #12967
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Hi,
My son, J, will be having his 4 weeks post tx bloods tomorrow, so will let you know how it goes, but he did have to have a LFT recently for his skin specialist and it was all normal, so hoping to get back UNDETECTED !!
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
29 February 2016 at 1:12 pm #12976
lizziholt
- Topics: 6
- Replies: 8
- Total: 14
- Acolyte
@lizziholt
You’re right sorry absolutely, Aus has just listed the drugs on pbs so many people will be going down the ‘right’ hand road to get cured so I’m sure the figures are being compiled here and collectively world wide. It’ is just the most fantastic thing. You’re looking good and congratulations on that..

G1b since ‚Äú87 This is first treatment VL 1,100,000 F4
24 wk Sof+ Dac started 17/12/2015 Riba 06/01/2016
HB 145 WCC 4.1 Platelets 107

8 wk UNdetected
29 February 2016 at 1:16 pm #12977
lizziholt
- Topics: 6
- Replies: 8
- Total: 14
- Acolyte
@lizziholt
Yes fingers crossed. My son is about to start, had it for 24 years since birth, he is going through the liver clinic here in Melb, my heart will sing when we’re both clear

G1b since ‚Äú87 This is first treatment VL 1,100,000 F4
24 wk Sof+ Dac started 17/12/2015 Riba 06/01/2016
HB 145 WCC 4.1 Platelets 107

8 wk UNdetected
29 February 2016 at 1:28 pm #12978
Dr James
- Topics: 264
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- Guardian Angel
@fixhepc
Hi CJ I am also having my 4 weeks post tx bloods this week (Wednesday)…..certainly hoping for that Undetected again

YMMV
1 March 2016 at 4:51 am #13010
lizziholt
- Topics: 6
- Replies: 8
- Total: 14
- Acolyte
@lizziholt
all my fingers crossed for you..

G1b since ‚Äú87 This is first treatment VL 1,100,000 F4
24 wk Sof+ Dac started 17/12/2015 Riba 06/01/2016
HB 145 WCC 4.1 Platelets 107

8 wk UNdetected
1 March 2016 at 5:36 am #13011
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Hi Lizziholt,

I agree with your sentiment. I have a journal on this website about my progress with generic treatment. I have advocated for this site, and pushed generic access on various threads.

I would caution against putting a number, on the number of people who have been helped…it only taunts Gilead to act against the movement going on here. My take on the situation is that Gilead will look the other way if people are strong minded enough to seek out treatment. But to advertise it mainstream in the US media or in other countries will bring about a draconian response from Gilead.

Once TPP is passed, Gilead will be able to sue the US government for not enforcing their patent. US government could be liable for millions in damages. That is why I am so adamant in telling people in USA that if you want generics, do it before TPP agreement is passed. After TPP, I believe it may be very difficult to get generics. You may be forced to travel to Bangladesh, India or Australia. That will add several thousand dollars to the cost, at a minimum.
1 March 2016 at 5:38 am #13012
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
I agree.

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
1 March 2016 at 6:21 am #13015
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Hi Lynne,

Oh good luck

Don’t think I will be getting J’s bloods done today as he has some horrible virus, he’s been sick for days, may wait till end of week.
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
1 March 2016 at 6:23 am #13016
CJ
- Topics: 10
- Replies: 362
- Total: 372
- Guardian Angel
@cj
Hi lizzi,

Yes, get your son treated, mine had no side affects at all, he was fine, I think the younger people don’t seem to get affected by sides as much as some older one’s do.

Mine also had the virus since birth.

I feel for you.

Good luck,
Cindi x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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