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  • #12877
    Avatar photoflyingfox66
    • Guardian Angel
    • ★★★★★
    @flyingfox66

    I use Gentian extract to boost my low stomach acid…fifteen minutes before eating. I put Gentian root into vodka for a month and drink a teaspoon of the resulting brew. It might also be possible to buy it ready made, especially in a huge city like London. Its similar to Bitters.
    There are probably other ways…I’ll have a research when I get my fast internet back.


    F49HepC25ysGT1a
    mild”

    #12878
    Avatar photoflyingfox66
    • Guardian Angel
    • ★★★★★
    @flyingfox66

    Actually its not an extract, its a tincture. #flower


    F49HepC25ysGT1a
    mild”

    #12879
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    Well folks, how to I get that stomach acid going?

    If you were not on tx I’d suggest a supplement like “Betaine Hydrochloride with Pepsin”. That is more or less straight hydrochloric acid into your stomach to supplement what you already have. As you are on tx I’d have to say to run it by the doc first. I have no idea if it is a valid way to increase stomach acid while on tx with led.

    Also, there’s a right way and a wrong way to use this supplement.
    Have a read here and google it for more info.
    http://scdlifestyle.com/2013/10/4-common-betaine-hcl-mistakes/

    dt

    #12880
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank- you guys , you know I feel I’m onto something here. It was you DT that reminded me that Sofo/Led needs good stomach acud to absorb and then there’s last weeks blood test with the MCH high which can mean lack of stomach acid and my rather large amount of coffee drinking in the morning with meds, I actually think it’s very possible I’m not absorping most of the tablet just like I don’t absorb food well either!

    Yes, I need something that boosts stomach acid that doesn’t interfere with the meds. cut down on coffee a (boo hoo) and remember to take my VtB12 every day .

    Then extend tx, with possible swap to sofo/DAC – Will see what thecDrs say, but some of these things I can put into action right away :-) #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12881
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    On a further note to the usage of the betaine hydrochloride, it’s not for taking on an empty stomach. It’s best for taking near the beginning of a full meal with protein. So if this supp. looks like it might work for you then you need to move your meds, probably to your largest meal of the day. Led is not affected by taking it with a large meal. Dac is – but for the dac you don’t need the acid in the first place.

    well, yes dt, I will do 24 weeks, but if cirrhosis is there it could be more thoughts on which meds,
    Riba has been suggested eg

    I see. Thanks for explaining that. So long as you have the time I think it’s fine to wait. If it happens that the time is running short then I think you should order the dac/led right away and order the riba later when you decide. It won’t make much difference if you start the riba a few days late, but if you miss a few days on the dac/led ….. well, just don’t do that!

    dt

    #12882
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi lovely I am so pleased you have got Dr James onto this issue
    I’m so happy to read you are doing 24 weeks so many people do
    I know you will clear all in due course
    Anxiety seems to be rising and I am sending you chillax vibes
    I’m sure that it’s a totally overwhelming place to be as a peg/inf nuked babe here who had to be tubed up in hospital etc as some others will relate to this type of escalating during a tx is so worrying
    I want to send you reassuring love and yes great great that you have Dr J on the team in your court and advising you
    Have you ordered your meds? I’m at week 8 almost so you must have just started it.
    That’s around four weeks to get sorted is that easy or hard from the UK? From the things that I have read on your most candid honest blog its a mess over there. Will you have time to get the extra meds? I recall mentioning Em who did a longer course to you
    Yes mutants
    Well they scare the poop out of any of us who have been through peginf
    I didn’t know you could just have them tx naive as well or have a gene test for them is it the Il28b test? Or another one?
    With riba if you are recommended remember it’s a rash causing med and that the very best thing is no soap even in your clothes wash.
    Use dermaveen it is THE BEST. I’m getting ahead of you but just thinking of you going through this time.
    Hoping no riba actually
    Let us know if you are sorted on time and re the protocol you are put on from now
    Big love
    Ariel xxxxxx

    #12883
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    You couldn’t get the riba from your NHS consultant, could you? They have piles of it in their pharmacies and it’s cheap so I don’t see the problem, unless there’s some stupid red tape thing with mixing private and NHS meds. You never know what those jokers will come up with.

    dt

    #12888
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you lovelies. I feel better for trying to work it all out, even if in public!
    Well, I think I will talk further to the Drs, but right now looks like I’m extending tx for sure #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12889
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    and my rather large amount of coffee drinking in the morning with meds, I actually think it’s very possible I’m not absorping most of the tablet

    If you are washing your meds down with a large amount of coffee, any fluid actually, and especially on an empty stomach, then I think you are washing away the stomach acid that you actually have. The stomach secretes acid in response to stimuli in expectation of receiving food to digest. You then eat the food and the acid gets going on it. To maximize the acid effectiveness, ie. not dilute it, it is good to refrain from drinking much fluid for at least 20 mins after the food goes down.

    So I think that one thing you could do right away without adverse consequences is move your meds to one of your mealtimes, the one where you are most likely to feel hungry and up for it. Don’t drink with the meal other than a few sips to get it down. Do that for the first hour after the food goes down. Just my 2 cents worth on digestion. I’m no digestion expert but I’ve had my ups and downs with it over the years.

    dt

    #12908
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    LG, so sorry to be catching up late with your journey and to hear you’re going through all this, esp considering the run-around you’ve historically had with the NHS. And after that possibly dodgy previous fibroscan result too – but great that Dr J is onto it for you as well as finding better UK clinicians – good stuff.

    I’m with Ariel and others, 24 weeks is the way to go – you have every opportunity of UND, there is still plenty of time and you have enough of a window to get the extra meds in hand. The malabsorbtion issue, that’s a good point though. Many years ago my grandmother had to start taking a very weak solution of hydrochloric acid for a few years after her stomach (rather inexplcably) stopped producing any naturally – something like dt was mentioning I assume. All the best for your imminent results, hang in there :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #12930
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you Zhuk #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12979
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hopefully F4 panic over anyway – The data was messed up. Scan next weekend, fingers crossed . #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12984
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    I am happy for you! #love
    No more F4 panic is important B)
    46 days= 6,5 wks VL 68
    Still have 1,5 wks to the 8wks on tx.
    Wish you 8wks viral load UND! #love #duck #flower

    Good luck with the MRI scan.
    :lol:


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    #12994
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Good luck with the MRI scan.

    Thank-you Isang #love

    Has anyone ever had one btw? it’s a funky new MultiLiverScan – No dye
    I’ve been told to “bring my pjs” :ohmy:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12996
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi LG,

    That’s the machine that goes “Bang, Crash, Rat-A-Tat-Tat, Bang, Crash!”. :P

    It doesn’t hurt but it is noisy, cramped and loud……..oh, and did I mention it was noisy? :lol: :lol: :lol:


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

Viewing 15 posts - 301 through 315 (of 523 total)
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