'In which LG seeks Redemption & makes new friends'

This topic has 522 replies, 53 voices, and was last updated 7 years, 7 months ago by Dan.

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4 July 2016 at 7:36 pm #20449
CC2B
- Topics: 2
- Replies: 171
- Total: 173
- Guardian Angel
@cc2b
Finally almost to EOT and still UND
Great News

GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
4 July 2016 at 7:52 pm #20450
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
LG,
You’ve had a long haul but staying und to this point is truly exciting. It inspires hope for the rest of us looking ahead to the same results. Thanks for posting. Sorry to hear about your other ailments. So, you’re saying your “old self” was tired, grumpy and prone to nightmares??? Welcome to my world!
Hang in there LG.

MK

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
4 July 2016 at 10:42 pm #20470
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
MK said …

So, you’re saying your “old self” was tired, grumpy and prone to nightmares???

Ha ha ….
No!!

I knew I had worded that one wrong! illy:' />

I guess, more inspired …. more interested in life, maybe?
When I think to how ill I was a year ago too and severely lacking in energy….You know?

Thank-you all for your good wishes, helps to keep the heebee jeebees away

Mrs GrumpButt…I mean Mrs Hopeful and grateful

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
6 July 2016 at 12:32 pm #20572
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Hi lovely lady
I’m so happy for your continued UND it’s great how hard you have worked at this and hung in there for much longer than originally expected and managed less than ideal conditions at times in care locally especially path and so on plus the exorbitant costs of labs in the UK. I’m sure you have inspired a lot of people who are looking for their cure to go for it. Commitment even when you were crook early on and trail blazing generics in the UK with your blog and lobbying that you do so quietly and for all others benefit.
You so deserve a great EOT and to get your SVR LG
big splashes
Ariel
7 July 2016 at 11:52 am #20636
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
BIG Sista xxx

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
7 July 2016 at 1:15 pm #20645
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Hi LG
so strong
so kind
congratulations from me

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
7 July 2016 at 11:29 pm #20669
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Thanks Pat, there’s alot of kind people around here

LG

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
8 July 2016 at 8:26 pm #20721
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hi all,
OK, So most bloods are in range and Alt is good (13).
Neuts are a bit low, but not ‘concerning’

I have stopped my VitB12 since starting the Sunprevir, does anyone know if I can take that with Sofo/Dac /Sunprev?
I only have 3 days meds left.

LG

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
8 July 2016 at 10:25 pm #20725
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
That ALT is looking mighty fine LG – I reckon you have this in the bag, its Saturday morning here so its now 2 days left for meds? Hope you have something special planned to celebrate your EOT.

SVR 24
9 July 2016 at 5:56 pm #20751
cheese
- Topics: 2
- Replies: 54
- Total: 56
- Recovery Champion
@cheese
Hi LG

Congrats on the UND

Being new on the forum I quickly saw you are a little Dynamo.

They say that what does not kill you will make you stronger.

So you may want to think about a new moniker name. May I suggest SG (Super Girl)

Thanks for your boundless energy and inspiration.

GT 1a
VL 4.9M
F0-1
Since Late 60’s
Meds Cipla SOF/LED
Start June 7, 2016
10 July 2016 at 11:35 am #20770
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Thank-you Cheese (cool moniker yourself, what would we do without you!)

Not sure about the SG tag ! I have received such kindness from the people connected to this forum and will never forget this, It’s has inspired me and others on here to try to help those in the same boat in small ways. I have always got frustrated about injustice and believe HepC patients have been conveniently discriminated against, especially in England where they want to keep us stigmatised to save money , don’t seem to have the ‘will’ to change things and where patient care for those with this condition is appalingly bad. Things are slowly improving thanks to all involved in the good fight, but we must care for each other in all corners of the world, very few others will..

I see you are a fellow 1a, wishing you all the very best for your treatment mate, keep us posted and ride on (see your bike pic)

ps 2 tomorrow is last day of tx !

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
10 July 2016 at 11:53 am #20771
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Fingers crossed for continuing UND, and go Andy Murray

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 July 2016 at 11:56 am #20772
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hey Beaches, how you doin’ ?
Hope you’re keeping yourself occupied, will be joining you in the waiting room soon !

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
10 July 2016 at 12:17 pm #20774
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Hey LG,
Don’t know if ‘occupied’ is the word for it today (Sunday)
7am ocean swim

remainder of morning coffee n chill with mates
slept ALL afternoon in preparation for Wimbledon men’s final zzzzzzzzzz

But seriously – doing great post EOT thanks for asking. So happy to have cleared this nasty POS thing

Not too stressed about SVR because I know there are tolerable plan Bs if I do relapse.

Counting down to week of ocean swimming and humpback whale encounters in Tonga next month

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 July 2016 at 12:29 pm #20776
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
7 am ocean swim

I am not the jealous type, but with this I’m turning a paler shade of green!
Summer hasn’t started here … Rain, wind, grey skies rool, worst in years.Something’s gotta change.
I am looking for air tickets this afternoon! Swimming in a warm sea is just so healing.

Good to read your positive take on it, thanks Beaches
After ” waking and taking ” for over 6 months, it is a little daunting.

Great photo

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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