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  • 8 August 2016 at 6:49 pm #21980
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj
    willeert wrote:

    I did not get the PM but will check my email address and make sure that it is correct.

    Hi Will,

    I suspect CD meant he sent you an on forum Private Message. You will find links to your private messages in blue at top right of this screen or go to your profile via the top tab and you will find the link under your name and avatar on the left side of the screen.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    8 August 2016 at 9:34 pm #21984
    cdmazoff
    • Topics: 2
    • Replies: 17
    • Total: 19
    • Acolyte
    • ★★
    @cdmazoff

    Thanks Will. I was wondering whether you might like to write up your story for the next and very last issue of the hepc.bull? We are ceasing to publish in the format we have for the last 20 years.. Too few volunteers and too pooped. But we intend to continue the website and and online “blog/commentary”… Anyways, let me know. We’d like to get this message out to as many people as we can!! You can PM me the story when it’s done if you wish.

    CD

    8 August 2016 at 9:39 pm #21985
    cdmazoff
    • Topics: 2
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    • Total: 19
    • Acolyte
    • ★★
    @cdmazoff

    Hello Dr. Freeman. Thanks for the suggestion. I don’t know if it’s do-able (we have very limited funds)..I will pass on your suggestion to our Board. It would be good if we could get a physician to take this on in BC… But they are afraid to, I guess. That’s my understanding.

    CD

    9 August 2016 at 8:31 pm #22024
    willeert
    • Topics: 0
    • Replies: 10
    • Total: 10
    • Acolyte
    • ★★
    @willeert

    Hi CD,

    PM sent to you regarding the procedure.

    Thanks for asking a bout an article regarding my experiences and HepC. PM sent about that also.

    Will

    26 August 2016 at 1:38 am #22526
    cdmazoff
    • Topics: 2
    • Replies: 17
    • Total: 19
    • Acolyte
    • ★★
    @cdmazoff

    Hello Dr. Freeman. We may have gotten a break. Dr. Tam from the LAIR Centre in Vancouver, BC has responded to my inquiries and is willing to take on patients who have a referral from a GP in the BC MSP. They will guide and monitor patients who choose to enroll in the Redemption trials.

    My question to you is: if the patient in BC goes this route then I suppose they go directly to Monkmed. Also, I was looking at the procedures for GP2U and Monkmed online and I got lost with GP2U (sorry.. :S ) Is GP2U necessary for a Canadian with a BC doctor?

    The question then is: If I am in BC and want to register for the trial and have a doctor here, what are the simplest steps? I am counseling people as we speak.

    Thanking you in advance

    CD Mazoff, PhD
    HepCBC

    26 August 2016 at 1:52 am #22528
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi CDM you have an amazing story to tell, I have read your personal story, respectfully, wishing you well, Ariel #flower #flower

    26 August 2016 at 11:18 am #22556
    Avatar photoHieupham
    • Topics: 9
    • Replies: 50
    • Total: 59
    • Recovery Champion
    • ★★★★
    @hieupham

    Hello Cdmazoff,

    If you have a doctor to monitor you, you do not need to go to GP2U.
    You need to be contacted by Monkmed for the shipment and consult with Monkmed doctor. It is needed because Monkmed doctor can give you a script, which is required to ship the meds out of India.

    So, your steps are:
    -Register in Redemption (fill in the form, clear the payment)
    -Wait for a call from Monkmed
    -Wait for your medication to be delivered to your door.
    Please email help@fixhepc.com if you need any assistance.
    #flower #flower #flower
    HP

    Nishkama Karma
    Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!

    14 September 2016 at 12:26 pm #22952
    Avatar photofretboard
    • Guardian Angel
    • ★★★★★
    @fretboard
    Hieupham wrote:

    If you have a doctor to monitor you, you do not need to go to GP2U.
    -Wait for a call from Monkmed
    -Wait for your medication to be delivered to your door.
    Please email help@fixhepc.com if you need any assistance.
    HP

    Hi Hieu,
    Can a regular HepC patient from the US contact Monkmed directly to get prescriptions filled and shipped to them without being in the Redemption (etrial)? They are able to get their own prescription, but not the monitoring needed for Redemption. If so, do you happen to know the approx prices for generic Harvoni? danka

    G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
    Started tx 6/1/16 with Harvoni.
    12 Month Labs= UND

    16 September 2016 at 8:21 am #23018
    Avatar photoHieupham
    • Topics: 9
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    • Total: 59
    • Recovery Champion
    • ★★★★
    @hieupham

    Hi Fretboard,

    Monkmed is a part of Redemption etrial. It is not possible to have one without another.
    If they have a script, they can register for Redemption. It is suggested that they have their own doctor to monitor their treatment (at least someone to order their blood test when needed). They can also get in contact with Monkmed doctors for treatment advice.
    Cheers,

    HP

    Nishkama Karma
    Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!

    16 September 2016 at 8:40 am #23020
    Avatar photofretboard
    • Guardian Angel
    • ★★★★★
    @fretboard

    Great, I will pass the information onward. thx

    G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
    Started tx 6/1/16 with Harvoni.
    12 Month Labs= UND

    16 September 2016 at 4:39 pm #23034
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax
    cdmazoff wrote:

    Hi CD here from HepCBC. Thanks to all for sharing your stories. We are getting a lot of requests from people who want to import treatment, and our biggest problem (here in BC and I suppose the rest of Canada) is getting a physician to oversee the treatment (bloodwork, monitoring for complications –for example, I am cured now!!!! —Harvoni–but my 4th clinical trial was with Zepatier and it triggered atrial fibrillation and I was pulled off although it was working against the hep). So, how does a person who successfully imports the drugs into Canada proceed via getting blood work done? Here in BC everything is done through Pharmacare… or, is there a private pay option?

    Anyways, a roadmap that we can share with people who ask us what to do would really be helpful

    All the best

    CD Mazoff
    http://www.hepcbc.ca

    There is one guy Michael Hillman on the fb group treatment without borders who managed to get his insurance to pay for his generics. He is in Alberta canada

    9 October 2016 at 8:23 pm #23679
    vanh
    • Topics: 0
    • Replies: 3
    • Total: 3
    • Novice
    • ★
    @vanh

    I have not been involved long enough to have anything to say about the results but several days ago a parcel containing 3 bottles each of Daclavir & Sofosbuvir arrived in my hands here in California.
    I’ll comment more when I have something to say — and some new test results.

    MonkMed-7oct2016-IMGP5195.jpg

    My previous data: 27 July 2016: Type 2b, VL 329,000 (5.52), ALT 328, fibrosis stage F3 (0.68), low platelet count since 2008.

    10 October 2016 at 1:55 am #23698
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Ha!
    The race is on V and you are a 9:1 favorite to win!!
    m

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    2 November 2016 at 4:46 am #24130
    willeert
    • Topics: 0
    • Replies: 10
    • Total: 10
    • Acolyte
    • ★★
    @willeert

    Received my12 weeks post treatment test results a few days ago. Hepatitis C virus RNA (RT-PCR) Negative

    Booked for test in a year but I am going to say –

    YAY!!!

    Thank you to Tim and MonkMed.

    Thank you to The Whole FixHepC team.

    Will

    2 November 2016 at 4:51 am #24131
    cdmazoff
    • Topics: 2
    • Replies: 17
    • Total: 19
    • Acolyte
    • ★★
    @cdmazoff

    Wow… That is FANTASTIC NEWS!!!!!… All the best and thanks for all you have done to try to help others in Canada. I have passed on the information you gave me to quite a few people.~~~~ :)

    CD

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