Hi Tellietubbie and welcome to the forum

Sorry to hear about your previous failed treatment efforts, 37 years is a really long time to live with disease. The good news is that getting cured is now easily possible with the new generation of medication, for an affordable cost using licensed generics, so there is no reason for anyone to keep living with this terrible disease.

Body itching is one of the most common symptoms of Hep C, and with successful treatment it will disappear quickly (your overall health will greatly improve as a matter of fact).

If you want to do everything away from the NHS, that is very possible. You can see FixHepC’s founder, Dr James Freeman, online via video conference on GP2U using your phone or PC and get a prescription. He’s a really excellent doctor with vast experience treating Hep C. You have most of the test results needed to book an appointment, but I believe you’re missing 2 very simple and cheap blood tests, CBC (Complete blood count) and CMP (Comprehensive metabolic panel), Dr James will correct me if I’m wrong here. You will need to upload your test results to your GP2U account before the appointment.

If you need any help using the GP2U service, you can email Jan and she will be happy to help, her email is: admin@gp2u.com.au All the best Tellietubbie.

Hi Tellietubbie, I believe that these 2 tests are the minimum required to get a prescription.

⦁ CBC (Complete Blood Count) – To make sure patient is not too anemic and platelets are good.
⦁ CMP (Comprehensive Metabolic Panel) – To know patient’s liver and kidney functions.

But I’m not a doctor, so if they are not absolutely required, I expect that Dr James will inform us here.

Hello tellietubbie,

Itching probably relates to an increased level of bilirubin and suggests your Fibroscan might be F4 (>12.5kPa). That potentially has some impact on the choice of treatment, best duration of treatment and if we should consider Ribavirin.

In a perfect world we have full blood count, liver and kidney function results.

In patients with cirrhosis, we like to have an AFP as cirrhosis carries a 3% per year risk of liver cancer and this generally shows up with an elevated AFP. Treated early we can fix it. Leave it too late and it sadly becomes get your affairs in order time.

The best way to proceed would be for you to book an online appointment with me so we can go over it all together. https://gp2u.com.au/

Now, for the really important question: Is your favourite Tinky Winky, Laa-Laa, Dipsy or Po?

Rather than abandoning the idea, perhaps you should have a consultation with Dr. James with the most recent information you have.

I don’t know this for sure, but Dr. James might have some insights with regard to testing.

No one should have right to deny you testing or treatment for a life threatening infection. Hep C kills. It kills us slowly, taking our lives and wellness from us bit by bit, day by day until we find ourselves at the precipice unable to live in denial, and unwilling to live with further physical, emotional, and mental decline.

I’ve been there, and I don’t think I’m out of bounds in surmising that is exactly where you are today.

Unless you are resigned to dying from this disease, I wouldn’t turn my back on treatment so quickly.

Don’t give up!

Tellietubbie:

Fitz’s words, I know, are 100% correct and life does exist on the other side of this disease. You must find a moment of clarity and decide to be the conquerer. Also a side effect of HCV will/can bring moments of despair, so when you feel that way know what it is and remember it can be cured. If you are apprehensive to treat just know a lot of us felt the same way but through encouragement from this site you’ll and we’ll get through it together.
Finally, I 100% agree with Fitz that when you start you’ll continue to win until you achieve the ultimate end game prize, you’ll be cured.

Treat now and never look back, by the end of summer you’ll be HCV free.

Hello Peter, Fitz and Sven gave excellent advice, and I’m glad that you came around after talking to Dr James, a very wise decision. Hopefully you’ll be very happy you took it when you get rid of that terrible virus in a few months.

Regarding logistics, generic Epclusa that FixHepC supplies is made by the US company Mylan, and it’s produced in India, it’s the only country in the world where licensed versions of generic Epclusa are produced. Well that’s not entirely true, there is an authorized generic available in the US now, but it costs an arm and a leg. Finally, FixHepC ships using DHL Express, not regular post, so there are no issues with delivery during the current circumstances.