the patient poodle

This topic has 90 replies, 23 voices, and was last updated 8 years, 5 months ago by CC2B.

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21 December 2015 at 4:22 pm #6942
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Hi mike I really enjoy your posts by the way! What is your fibrosis reading and are you doing 24 weeks ? Thanks Jil

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
21 December 2015 at 4:24 pm #6943
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Thanks!
Biopsy:F-1
Fibrosure: F-1/2
I qualified for 8 weeks, but am taking 12.
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
21 December 2015 at 4:31 pm #6947
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Yes we are peas in a pod. Good luck to you. My gut feeling is that I have not progressed to F4 in the last 12 months. Would have to be unlucky. Still even the F4s have a 85 % chance of clearing it with only the 12 weeks. Jill

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
21 December 2015 at 4:54 pm #6954
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi Jill,

You ask hard questions.

I think if your current LFTs, etc. are good, you feel well and are looking after yourself then that sort of progression in that time frame would be unlikely, or as you say, unlucky. Mine did jump up but with very noticeable test and general health effects plus I was already deemed high risk.

G

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
21 December 2015 at 5:03 pm #6956
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Yes G thats the story, wish I had that updated fibroscan all the same. Do you know if its possible to order an extra 4 weeks. Might be hedging my bets , with a top up just in case. J

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
21 December 2015 at 5:30 pm #6965
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi Jill,

I’m not sure as I needed 24 so two times 12. I’m sure something could be worked out as there will be others who were in similar situations. Hopefully someone can post what they did so others can find out?

G

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
23 December 2015 at 5:39 pm #7159
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Hi just to update my treatment news. Because of my fibroscan being 12 months ago Ive decided to increase my treatment from 12 weeks to 24. Reason being is that I cant be completely sure of my fibrosis status. My feeling is that I would be unlikely to have reached F4. But that is only a feeling and not science. I would be so regretful if I got to the end of 12 wks and relapsed because I had underestimated my condition. Not exactly to plan, as I went into treatment as soon as the club started and I assumed a 12 month old fibroscan would be ok. Ive learnt alot on the forum here , which is why Iam changing my game plan. So for the record I will be 12 weeks on sof/led from Mesochem followed by 12 weeks of Twinvir. Hoping my second lot of 12 weeks will reach me soon enough to tag team with the last dose from mesochem. I have 23 day left to make it happen. Jill

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
23 December 2015 at 5:45 pm #7160
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
What was your last fibroscan?

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
23 December 2015 at 5:56 pm #7162
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
12 months ago it was 2 but 5 years ago 3 from different hospitals . So if it was infact 3. 5 years ago… not so good. Thanks Jill

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
5 March 2016 at 8:07 am #13345
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Hi everyone ive been off the forum for a while but have been reading posts from time to time. As ive mentioned i have gone for extended treatment of 24 weeks. I have 35 days to go. Mostly sleep is the only side effect in that it has been hard to get to sleep. However I would like some advice please. My last 3 bowel movements have been jet black…..I have not eaten anything which would effect the colour. I drink a truck load of coffee, but that is normal for me, so in theory would not change the colour. At the momeny Iam feeling very uneasy. Is this medication related ? Could it be liver related. Any thoughts would be appreciated. Jill

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
5 March 2016 at 10:57 am #13354
Dr James
- Topics: 264
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- Total: 2,232
- Guardian Angel
@fixhepc
Hi Jill,

You should get this checked out immediately.

If you have – black, very stinky poo that is like liquid tar this is from bleeding high up in your gut – either from an ulcer or varices. This needs to be looked at urgently.

Blood from low down is still red, but from higher up gets partly digested and goes black.

If on the other hand you started taking iron tablets this will also make your poo black (but not stinky).

YMMV
5 March 2016 at 11:10 am #13355
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Can black poos also be due to too much iron?

Hey Poodle, wishing you all the best that everything goes well x

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
5 March 2016 at 1:28 pm #13365
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Thankyou James for the phone call. Amazing service we have here at our finger tips. Thanks also LG
As I discussed with Dr. James I remembered Ive been taking aspro clear for headaches all week. So conclusion is this is causing aproblems. Will let you know how it pans out. Apart for this new development Ive been pretty good. Xxx

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
9 March 2016 at 5:49 pm #13572
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Hi just reporting back on the little internal bleeding problem. The problem has been resolved as the damage done was from taking aspro clear. Looks like iam sensitive to this. Not related to taking sof/led or liver bleed… carry on everyone business as usual. 4 weeks to go to complete my 6 month journey. Best wishes jill

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
9 March 2016 at 5:53 pm #13573
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Nice to know that was it.
Happy for you!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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