Home Forums Main Forum Patient Stories Geopolitics Too much political debates help HCV virus survive

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  • #28467
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    Great post Rohcvfighter. Unfortunately in the vast majority of countries, politicians are not willing / able to provide real help to HCV patients, it’s patients that must help themselves, that’s the reality.


    Making the world a better place – one patient at a time.

    #28473
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Talking about doing something is a popular political past time across the world!

    Sometimes I wish politicians would actually just do nothing, but in this case we need action, not words.


    YMMV

    #28480
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Even if the field of politics is very broad, the politicians are very limited as they are “constraint” to serve the interests of certain groups.

    Unfortunately the “mass group” of HCV patients is not in the sight of the politicians, except when it can be used to manipulate people’s minds and votes.

    There exist one strong force which politicians fear, the civil society. The problem with the civil society is that it is hard to organize, nevertheless it is a pool of increased creativity that may deliver unexpected & original results.
    We saw a recent such case in Romania with a guy who came with a car registered in Sweden having a trivial car plate number, against the rulling party from Romania (it can be translated as “F*ck P*D” (the brief story here http://www.balkaninsight.com/en/article/romanians-return-home-for-anti-govt-protest-08-08-2018).
    Even though having such a plate is not polite, the action revealed something else: the obedience of the authorities, especially the police, to the rulling party who confiscated the car plates, suspended the driving license of the guy and opened an official investigation against the driver, claiming he broke a certain law.
    The civil society got mobilised and many people started to research that law and quite fast it was found out that the police missed the fact that that law which “was broken by the driver”, was updated 2 years ago and that in fact the driver commited no crime. The accuses were discharged and the driver got back his driving license.
    The unexpected outcome of this story is that for RO people this case was a demonstration that in politics the rulling party is not always right, it only has more votes than the opposition and furthermore, the ruling party may be exposed by the civil society and forced to make what is right.

    Who knows, maybe one day the civil society will mobilize to help the HCV patients to have access to medication.

    Hope is not lost :)

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #28485
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello rohcvfighter,

    For many of us, born into a reasonable degree of freedom in the West, it’s hard to imagine living where there is close cooperation between the police and the state, but that said:

    In my country you can get a personalised number plate, but you can not get one that says something offensive or rude like “F**K” although I could actually order this one…
    ScreenShot2018-08-20at1.52.54pm.png


    YMMV

    #28486
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Here is some interesting HCV politics. Patients missing out while the games are played. https://www.thehindubusinessline.com/specials/pulse/a-chinese-twist-in-the-tale-involving-hepatitis-c-drug-sofosbuvir/article24718541.ece


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #28488
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    Very interesting article Hazel, but it’s not very clear if all of Gilead’s Sofosbuvir patents in China were rejected. Gilead says that’s not the case, and I-MAK says that it is. I hope I-MAK succeeds.


    Making the world a better place – one patient at a time.

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