Home › Forums › Main Forum › Patient Stories › Geopolitics › Too much political debates help HCV virus survive
- This topic has 6 replies, 4 voices, and was last updated 6 years, 8 months ago by
Mar.
-
AuthorPosts
-
18 August 2018 at 3:37 pm #28467
Great post Rohcvfighter. Unfortunately in the vast majority of countries, politicians are not willing / able to provide real help to HCV patients, it’s patients that must help themselves, that’s the reality.
Making the world a better place – one patient at a time.
19 August 2018 at 4:08 am #28473Talking about doing something is a popular political past time across the world!
Sometimes I wish politicians would actually just do nothing, but in this case we need action, not words.
YMMV
19 August 2018 at 11:38 am #28480Even if the field of politics is very broad, the politicians are very limited as they are “constraint” to serve the interests of certain groups.
Unfortunately the “mass group” of HCV patients is not in the sight of the politicians, except when it can be used to manipulate people’s minds and votes.
There exist one strong force which politicians fear, the civil society. The problem with the civil society is that it is hard to organize, nevertheless it is a pool of increased creativity that may deliver unexpected & original results.
We saw a recent such case in Romania with a guy who came with a car registered in Sweden having a trivial car plate number, against the rulling party from Romania (it can be translated as “F*ck P*D” (the brief story here http://www.balkaninsight.com/en/article/romanians-return-home-for-anti-govt-protest-08-08-201.
Even though having such a plate is not polite, the action revealed something else: the obedience of the authorities, especially the police, to the rulling party who confiscated the car plates, suspended the driving license of the guy and opened an official investigation against the driver, claiming he broke a certain law.
The civil society got mobilised and many people started to research that law and quite fast it was found out that the police missed the fact that that law which “was broken by the driver”, was updated 2 years ago and that in fact the driver commited no crime. The accuses were discharged and the driver got back his driving license.
The unexpected outcome of this story is that for RO people this case was a demonstration that in politics the rulling party is not always right, it only has more votes than the opposition and furthermore, the ruling party may be exposed by the civil society and forced to make what is right.Who knows, maybe one day the civil society will mobilize to help the HCV patients to have access to medication.
Hope is not lost
Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved20 August 2018 at 7:54 am #28485Hello rohcvfighter,
For many of us, born into a reasonable degree of freedom in the West, it’s hard to imagine living where there is close cooperation between the police and the state, but that said:
In my country you can get a personalised number plate, but you can not get one that says something offensive or rude like “F**K” although I could actually order this one…
YMMV
20 August 2018 at 1:23 pm #28486Here is some interesting HCV politics. Patients missing out while the games are played. https://www.thehindubusinessline.com/specials/pulse/a-chinese-twist-in-the-tale-involving-hepatitis-c-drug-sofosbuvir/article24718541.ece
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
20 August 2018 at 4:19 pm #28488Very interesting article Hazel, but it’s not very clear if all of Gilead’s Sofosbuvir patents in China were rejected. Gilead says that’s not the case, and I-MAK says that it is. I hope I-MAK succeeds.
Making the world a better place – one patient at a time.
-
AuthorPosts
- You must be logged in to reply to this topic.