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From the UK HepC forum :
Patient given out of date medicines with a weak response when patient noticed :http://www.hepcukforum.org/phpBB2/viewtopic.php?t=13946
hmy: hmy: hmy:
WTF!!!
– I just looked up the shelflife of viekirax and found it is three years.
– The nurse’s response is unacceptable but occurred because there should have been checks in place to stop it ever getting that far.As I’ve commented before these sort of things become ingrained throughout the system unless they are brought to the appropriate people’s attention.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Actually it’s often not a lot better over here but I reckon you’re not moaning loud enough, or in writing enough!
It’s a systemic problem, so make it easier for them to fix the problem than to keep responding to your complaints that keep escalating up the chain of command. Most people will take the easy path = the squeaky wheel getting oil, etc…..so don’t target the people involved, instead direct your complaint to how they can focus on fixing the process that allowed the error to occur (unless of course the person involved was a “right jobsworth!”
).And make a point to check the date code when they hand you the meds. When they notice you doing that you’ve trained them to check before giving them to you in future.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I would imagine the manufacturer probably made inventory pre-approval and is clearing that out first but would have supplied with some shelflife left. No doubt they will supply replacement stock if asked but probably means the pharmacist has to fill in a bunch of paperwork to complete the return….much easier to just hand it out and hope no one complains.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Sirchinenge wrote:Hi Gaj, I was looking at your stats you’re a F4 do you have a decompressed liver whats it being like
for you pre treatment.Hi Sir, fortunately I have remained compensated and hope to stay that way or better with treatment. As with many who have HCV I wasn’t aware I had a problem for close to 35 years until my annual checkup in 2012 revealed ALT of over 900 and AST close behind which resulted in my diagnosis. Cut the drink and changed diet and lifestyle but remained around 2-400 except for a short period after failed Peg/Riba. About 15 months ago my symptoms started to worsen and monitoring revealed I was developing a lot of regenerative nodules a couple of which turned into HCCs and needed removing. In layman terms my immune system and the virus were having a ding dong fight with no one winning and I was copping the blows from it. By October last year when I learnt of generics availability I was exhausted with multiple symptoms and unable to function either socially or at work. Thankfully Dr James, Greg and a few others were doing their magic by then and I have an enlightened specialist who was prepared to act in the best interests of his patients.
While we drifted a little off topic
the point I’d like to stress is that while HCV can seem benign for many years, it can suddenly go down hill very quickly as I experienced. So people should consider treating as soon as they can and delays and false starts such as the above that destroy confidence should not be part of the process once the patient has commenced down the Tx path.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I’m glad you sourced tx here Gaj
I’m sorry to hear about the HCC and hope things are much more straightforward from herein
I understand the immune system crash but escaped the HCC rather, I developed other secondary nasties all of which are gone or watched
Thank gawd for this magic stuff. I’m off topic too but following your story.
Noticed James posted re shelf life in a seperate thread
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