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Viewing 15 posts - 76 through 90 (of 364 total)
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  • #6011
    Tricia
    • Topics: 1
    • Replies: 38
    • Total: 39
    • Treatment Warrior
    • ★★★
    @tricia
    2b wrote:

    Yes, just have to give up on them and let them ‘hug’ each other and WAIT and pray in peace., horse to water and all that stuff,
    must be some kind of Australian expression for this kind of thing.

    Yep I can think of quite a few but we all share a few global expression for it haha …

    I read another post here where someone said that one of the posters who is saying “wait” has already had treatment thru clinical trials…Well that just increases my global expression for it 10 fold

    Good on you to the ppl here who are trying to post there to help ppl.


    reg nurse and wife of:
    genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
    Oct ’15 – Dx hcc
    Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
    04/11/15 -Sof & Dac
    30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
    06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
    01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

    .

    #6012
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj
    Vororo wrote:

    But since the sentries to heaven are now well-armed and on the look-out, does anyone want to try going in command-style and try to get a PM to those poor souls stuck behind enemy lines?

    Ninja mask already washed, ironed and donned.

    It’s fun taking the piss with the mods but a bit futile in the big scheme so some subtlety or subterfuge for the future. (I do retain the right if I get bored) :evil:

    Chester,

    I picked up Dawin earlier, thanks for getting Ellen.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #6013
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Thanks Tricia, sending a generic message (no pun intended!) is a very good idea. Here’s a simple example:

    ————–
    Dear Friend and Hep-C Sufferer,

    This is a friendly message to let you know that relatively affordable and completely legal treatments (between about $1000 to $2000) for hepatitis C are now available from several sources around the world. Please visit http://fixhepc.com and see for yourself!

    Best wishes from the fixHepC team!

    ————


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #6014
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj
    Vororo wrote:

    But since the sentries to heaven are now well-armed and on the look-out, does anyone want to try going in command-style and try to get a PM to those poor souls stuck behind enemy lines?

    Ninja mask already washed, ironed and donned.

    It’s fun taking the piss with the mods but a bit futile in the big scheme so subtlety or subterfuge from now on. (I do retain the right to flame if I get bored) :evil:

    Chester,

    I picked up Dawin earlier, thanks for getting Ellen.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #6015
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    Good message Vororo. I was trying to make mine sound personal so they knew I wasn’t a spammer or scammer but they ended up a bit long winded as a result. That’s nice and succinct but still has the personal touch. Will use.

    I think I’ll save my two spare ip addresses for this purpose in case she gets wind of things and deletes my Gilead shmilead account.

    #6016
    Tricia
    • Topics: 1
    • Replies: 38
    • Total: 39
    • Treatment Warrior
    • ★★★
    @tricia

    I need help navigating this site :)

    I just edited my last post here cos I want to say something to someone privately but I’m unsure if the private chat is actually private, probably a dumb question, sorry… But is the private chat like a DM or does it come up on public chat?


    reg nurse and wife of:
    genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
    Oct ’15 – Dx hcc
    Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
    04/11/15 -Sof & Dac
    30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
    06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
    01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

    .

    #6017
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    There are two private message systems on the site … to PM using the pop-up one in the lower right corner, click on a person’s name and it will pop up a second box which is private .. but it can be a chore to find your old messages there.

    The other is in the right side of the forum header and is easier to navigate … but warning … you have to unclick the “send to trash” and then click the “copy to self” boxes or you’ll have no record of your conversation.

    And you have to pay attention to either of them or you won’t notice when someone has sent you a message.

    #6018
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Tricia,

    Not sure if I’m the best to advise given my double post just now but yes private chat should be private. Use the tab above here rather than the lower pop up to make sure you are in private. Or PM – at the top in small letters on the right.

    Chester,

    I was the same with making personal, Vororo’s message looks good ( and I’ve got a few IPs in my back pocket)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #6019
    Tricia
    • Topics: 1
    • Replies: 38
    • Total: 39
    • Treatment Warrior
    • ★★★
    @tricia

    Thanks Klhilde & GAJ. I’ve done it and I think it worked but I’m too slow and probably too late now, but no matter, alls good, cheers to you both for your quick responses.


    reg nurse and wife of:
    genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
    Oct ’15 – Dx hcc
    Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
    04/11/15 -Sof & Dac
    30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
    06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
    01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

    .

    #6020
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    I just learned something new … the tab on top of the forum header is linked to the pop-up chat in the lower right corner. And it has all members names … if you scroll through you will see unread messages … I just found one. And it saves old conversations too.

    So to recap, one message system is in both the lower right pop-up and the tab above the forum header. The other is inside the forum header on the right side.

    #6025
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    Hmmm ….. with a little work we can rule The Evil Joy’s Little Kingdom!!!!
    :evil:

    I looked at something and it certainly appears there are only 51 members of that forum, including the Evil Despot …. and 8 of them I can identify from here. It appears we have already infiltrated to the point that we are 16% of the Kingdom’s lowly serfs.

    If one of you secret agents that is sending messages could quietly work your way through the remaining 42 unfortunate inhabitants and get the FixHepC message of The Revolution to them we can then all leave The Evil Queen to her own delusional glory.

    We might want to go in one at a time, in case a brain-washed victim identifies you as an agitator / enemy spy / traitor / freedom fighter. Then there will still be others left to complete the task.

    Keep a list of all that have been rescued and all that can be identified as the Queen’s henchmen. Slowly, quietly we’ll evacuate those that can be saved.

    (Strategy … make first contact with a question as to whether or not the person has already been treated/cleared. All such people can be assumed to be allied with the queen. Save the others first before revealing yourself to her accomplices.)

    #6033
    Tricia
    • Topics: 1
    • Replies: 38
    • Total: 39
    • Treatment Warrior
    • ★★★
    @tricia

    Lol :lol:

    Like covert ops hey Klhilde, top special agent and reconnaissance work there, sounds like you should be the commander too (or what ever the top title is) :)


    reg nurse and wife of:
    genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
    Oct ’15 – Dx hcc
    Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
    04/11/15 -Sof & Dac
    30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
    06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
    01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

    .

    #6035
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    And file the white car man with the gun fixation as henchman and Gilead shareholder based on response to “new fibrosis drug thread”


    yup!

    I am watching…….but of course I have a vested interest…..more ways than one!

    smilin~ s t i l l !

    g

    Lower case g is him not me

    G


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #6036
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Has evil Joy made an appearance?


    SVR 24

    #6037
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Not under her profile.

    And BTW, figured they are not blocking by machine/IP addresses. Just email address and cookies. So new email address and clear cookies, reboot and “Hello new member”. ;)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

Viewing 15 posts - 76 through 90 (of 364 total)
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