- This topic has 33 replies, 8 voices, and was last updated 8 years, 11 months ago by
.
-
Make sure you have some paperwork at hand Cindi Maybe even show him your meds for J,
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated
GT 3 – about 28 yrs with HCV
The offer to monitor him is a good one I think even though I understand the specialists reluctance to approve the generics it makes me annoyed. My best friend was a Vietnam Vet who died of cancer a few years ago so I have been interested in seeing how your friend gets on Cindi.
cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Hi Cindi,
As the others said, the refusal to provide advice seems to be standard practice. My hepatologist wouldn’t either but was prepared to tell me what treatment he would prescribe if/when it was available on PBS and what my prognosis was in the meantime. He was happy to write me a script and monitor based on my informed decision……sigh, and so we dance the dance!
It must be so difficult to explain these sort of subtleties to someone like your friend. Perhaps Dr James has the right type of paper and glue to help per his comments above?
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Paul,
Sorry about your friend, so sad. Did he have the virus?
It’s amazing how many war vets are finding life so hard, our friend is often staying in a clinic because he gets so down & struggles with the hep.
& visiting there you see so many from Vietnam war & even younger ones from the Afghan war, all poor lost souls, struggling so much with PTSD.
I do think a lot of them get forgotten out in the real world, but the nurses here are always really kind to them.At least your buddy had you as his mate Paul.
x
CJ wrote:Hi Paul,
Sorry about your friend, so sad. Did he have the virus?
At least your buddy had you as his mate Paul.
x
He did much more for me than I for him Cindi he also was very instrumental in getting PTSD up as a war caused condition when he was at the VVA. A lot of Vietnam vets are much better off today for his efforts. He didn’t have this virus but he had other issues PTSD and effects of Menangitis from Vietnam.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Hi Joan & Zhuk,
I understand what you mean & I did get the feeling like he’d be happy to monitor him. I also think our friend is understanding it all more now & would like to get the orals.
Now it’s all up to the specialist, I gave him a sealed file of his meds from his clinic he’s currently staying at, so he could check meds against the generics fo interactions, I would have rathered also send one to Dr James, but they’re all weird about confidentiality etc. The doc said he’d get around to it………
This worried me.
The next day I contacted his clinic nurse, mustn’t be same one as you guys have though, because this one was quite snooty & didn’t know about the generics, ( so she said) and hadn’t heard of dr James & she just said “is he a liver specialist?” and when I said please, have you checked his meds for the interaction with generics, she got all huffy & was evasive & eventually made out that would take ages to get around to. Like it’s not important.
Felt like pulling my hair out. SO frustrating.
I’m going to try to get a hold of his meds list again & fax them to Dr James I think?
- You must be logged in to reply to this topic.