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Viewing 11 posts - 1 through 11 (of 11 total)
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  • 10 June 2016 at 1:32 am #18775
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Very well said, Hazel!!

    And very timely. In just a few months, thanks to the FixHepC web site, Dr James has shown the world that generics are safe, and that they can be made accessible to all.

    (plus or minus just a few crazy customs regulations for the moment)

    And all that, I am sure, is despite much opposition and threats behind the scenes that he only partially shares with us all on-line.

    I want to propose everyone takes one minute of silence just to think again about the amazing thing Dr James has done here.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    11 June 2016 at 3:15 pm #18915
    Avatar photosabrecat
    • Guardian Angel
    • ★★★★★
    @sabrecat

    “But there is a difference. Without fixhepc there would be no Pharma’s Market, no forum, no advice, no place to put all the news and information. Information! The massive content resource we have here, has been put there for us to learn from and add to.“

    Says it all.

    My hoped for SVR 12 date is some weeks away on 5th July 2016. I was undetected in January while on treatment but decided to do no VL tests until 12 weeks EOT. Whatever comes SVR wise, comes. Gave it my best shot so to speak.

    Getting rid of Hep C will be the best, but the information and sense of being human and having all the ill feelings experienced with the virus normalised by people sharing their experiences would make the treatment worth it anyway – even if the pills were M&M’s.

    Yours

    Jeff

    12 June 2016 at 1:29 pm #18932
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    I “fourth” that emotion, Hazel.
    I’m going to post your post on HepMag under a new topic: “FixHepC & REDEMTPTION: Affordable and Reliable”.
    I will even credit you!
    m

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    12 June 2016 at 5:43 pm #18933
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Thanks Hazel :+1: :+1: you put into words what we ALL feel in our hearts. As you can see from the replies already posted here, we’ve all benefitted tremendously from Dr. J and this forum and more will if Mike has anything to say about it ;)
    MK

    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    12 June 2016 at 11:43 pm #18941
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks for the comments all.
    What would be good is if we can make one every couple of days and keep this on the front page of the recent posts, so visitors and newcomers see it.
    cheers H

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    12 June 2016 at 11:46 pm #18942
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel
    mgalbrai wrote:

    I “fourth” that emotion, Hazel.
    I’m going to post your post on HepMag under a new topic: “FixHepC & REDEMTPTION: Affordable and Reliabe”.
    I will even credit you!
    m

    better spell reliable right Mike, I am an awful pedant!! :P :P

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    25 April 2017 at 5:10 am #25907
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Bumping this back up- lots has changed, but all the above remains the same. Here is a couple of things I wanted to share:
    This photo says it all. Parallel imported generic medication, legally imported with prescription and documents, arrives from the other side of the world to NZ. Package says contents “life saving goods” (which is an entirely fair translation of ‘important medicine’;)
    Someone gets to see their kids grow up without selling a house or robbing a bank to pay Big Pharma.
    Thanks to Dr Freeman and the FixhepC team.
    Also, here is good link from EASL: http://www.healio.com/hepatology/hepatitis-c/news/online/%7Bed4f581f-284c-4355-a56d-b973525169d3%7D/study-shows-generics-pose-safe-economic-option-for-patients-with-hcv
    IMG_0926.JPG

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    1 June 2017 at 12:28 am #26253
    gypsy
    • Topics: 0
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    • Total: 57
    • Recovery Champion
    • ★★★★
    @gypsy

    Absolutely!

    2 June 2017 at 11:03 am #26286
    Donna
    • Topics: 1
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    • Recovery Champion
    • ★★★★
    @donna

    I’m lucky……that I read a newspaper on a train that told me about this place! I was still in shock at the time at having been diagnosed with hep C. I’d probably had it since I was 20…. so for 28 years….. so last September I started my generic treatment….and all looks good…..I’ve also passed on my knowledge of fixhepc to someone who is getting treated now…. this site has been so good…lots of help and advice from you lovely people….Thank You ❤️

    5 June 2017 at 8:57 am #26319
    gypsy
    • Topics: 0
    • Replies: 57
    • Total: 57
    • Recovery Champion
    • ★★★★
    @gypsy

    I live in U.S. and could not get any affordable help here. When I saw this site I was amazed at how easy it was from the beginning of going to GP2U to see Dr. Freeman to having all questions answered quickly, to get your medications through the Buyers Club to receiving it. I spent more time worrying for nothing. Without this trial I would not have been able to get help. I would not have known there were alternatives. So I highly praise everyone who do the leg work to help us!

    22 August 2018 at 6:10 am #28493
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I like to look at this every so often and it has been a while :)
    Again, lots changed but this stays the same. Here in Aotearoa/New Zealand we have treatment for all around the corner. The focus shifts to stigma, finding the undiagnosed, elimination.
    I would like to thank FixhepC for acting so responsibly in saving those of us who couldn’t wait, and providing the market forces that have enabled NZ to negotiate this deal for DAA’s. This is a model for everywhere, use it, do it, tell politicians about it.
    This is me at a GP conference on the weekend. A med student said “you’re that buyers club rebel! you gave a talk to my dad, a doctor- he told us all about it. I love that story!”
    So add inspiring young doctors to the list of gifts FixhepC has sent its neighbours. Maybe we should lend you a rugby coach.
    Straighten me up please?

    20180818_115141.jpg

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

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