I agree with you being cynical Greedfighter (what a perfect user name you have ).

Your posts about strategies and ways around distribution are incredibly positive and a relief to me.

big cheers to you

Lol thanks Greedfighter , if that included a bottle of wine I might half be tempted haha
My wonderful husband loves a wine but for a long time now he has given up all alcohol and is leading an extremely healthy lifestyle. And even though he keeps saying to me to have a drink if I want and it wouldn’t bother him, I don’t because I just think its more supportive for me not to show him what he’s missing lol. Anyway, the day will come that I’ll have a toast with him to his health.

all the very best to you.

Thanks greedfighter and same back!

If you ever come to Aus, we’ll toast the joy of life without hepc hey

It’s funny how lurking on a forum and reading posts can lead to a feeling like you know, like and respect so many people. There are many here that I’d toast for their efforts and celebrate their life without hepc.

We got a story on the high cost of meds on the local paper but no mention of generics. I’ll contact the two reporters that wrote the story. They are from CALmatters ( a nonprofit, nonpartisan media venture dedicated to explaining California policies and politics).

http://www.desertsun.com/story/news/health/2016/04/14/84k-new-hepatitis-c-drug-ca-rx-spending-costs-soar/82764350/

P.

Great work Price! Hit the comments section people, I just did.

Hi Tricia thanks so much for your campaign re WHO and yes a number of meetings are scheduled May is an important date to have a letter in but that agenda I suspect is set so I have planned other ideas too, world Blood Day and World Hep Day are coming up.

I am addressing my personal

letter to the Regional Director his name is:
Dr Shin Young-soo

Under Communicable diseases as James pointed out elsewhere there is zika, ebola etc
no HepC mentioned in the urgent list
However there is this:

http://www.who.int/mediacentre/factsheets/fs164/en/
WHO runs World Hepatitis Day as most here would know but just a reminder
So we have the forthcoming meeting but let’s also lobby for July 28

I am very concerned this illness certainly affected my life and my children compromised greatly to help.

My letters are modelled on a case study format; l write my story and then a fiscal story based on Australia’s population and now it’s time to make larger projections, and that’s what I am currently working on. I discussed this with one of my medical team a fortnight ago. She agrees WHO. All my lobbying has included my own details as a case study but this approach will be different as the world as a whole is not middle class Australia.
My pitch will be not as personal going in therefore.

I note all my replies to date have numbers meaning they are kept on file. I lobbied hard re DAAs here U can see the number on the letter I have included a fragment of. I cannot share entire letters for people to use if they thought them worthy of using because of my case study approach it tells too much personal info for a forum. I’m sure that someone can put together a general letter but I like this personal work I do if that makes sense after all I lost five important years others lost more many die.

I’m reading a lot here and a few links you probably have these too everyone but if interested and wanting to talk to people about hepC these may help.
I won’t also post my story in the press last Dec here for privacy reasons. But I did it before the roll out and I guess a lot of people did who like me want to lobby privately so we aren’t posting our links here.

There’s a bit of govt response to my nagging if you have a close look you will read them turning me back toward Gilead and supplying me with the phone number for same. This particular letter is from Minister Leys assistant. It’s proof of reply and that everything is kept, however if anyone thinks they don’t read lobbying they do even if it’s replied to poorly.
Ariel

Well I didn’t mention some other people I have written to. Q and A who I have nagged so much do other Australians think its a good forum you simply log in and fill out a question its all there online.

I write to charity groups too.
Well this is now a matter for the WHO re access for all. Figures wobble around between 130mil and 180 mil diagnosed I read in various articles.

http://www.wpro.who.int/regional_director/regional_directors_report/2015/media/2015_01_dcd_00_complete.pdf?ua=1

I might not have been clear enough
My lobbying was always a fiscal approach and always will be this is the Global language.
I argue DAAs are the affordable cure for an epidemic but the responses turn me back to two bodies: the PBS and Gilead.
I used case study here because it’s local and I represent a middle class cohort from which to compare with the Australian population, loss of workers, cost of long term patient maintenance etc.
In writing to the WHO there are many useful links on this forum from which to construct a letter.
I send most of GFs and Tinas and Hazels links to myself via email
These are most appreciated because they have done the research, I just have to read it.
It’s a necessity HepC being chartered of global impact and long term impact on countries GDP and burgeon to Health systems. Not all countries have access to testing, quality of testing oh I will write my letter
A