Forum Replies Created

Viewing 15 posts - 316 through 330 (of 1,060 total)
  • Author
    Posts
  • in reply to: FixHepC – Party Playlist #19416
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    This is funny as
    Plus the girl on keys even looks like Susan Dey from The Partridge Family

    in reply to: FixHepC – Party Playlist #19402
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I saw Talking Heads in the early 80s and fortunately in a small venue.
    Re the Heino song on the previous page and the coolest ol rockers I already posted this around four months ago but I love this attitude
    Isn’t it nice to be able to reach old age and still play games
    Hope so!

    http://youtu.be/mZTb8WxEW78

    in reply to: United Nations High level Panel on access to medicines #19391
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    “Impact on human rights
    It has repeatedly been affirmed that access to affordable medicines is an essential component to the human right to health. This system could ensure that people in a range of countries consistently have access to a wider range of treatments, and that their personal income is no longer a barrier to treatment access.” – J Freeman
    I agree, this is a Human Rights issue. In my lobbying to the WHO I framed this as a Human Rights issue. My lobbying is just a lady writing letters, this is outstanding and your Implementation Plan is realistic, plus you are the people who have the proof in hard copy data. I am sure it will be tweeted, and social media will somehow pick it up and the proposals and good sense be spread that way.
    I will need to read it a couple of times to digest it all. Thanks you for this work for the World. #flower #flower #flower #flower

    in reply to: FixHepC – Party Playlist #19390
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    For the beautiful images, and the chillax tones

    in reply to: FixHepC – Party Playlist #19388
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Some sweet lil local lads. :+1: :+1: Pumping pop punk from the 90s! Now we have those cute Madden Bros. Once we had Siouxie and Sid and and and….anyway here is their biggest hit. JUMPING time headbangers, good morning from OZ
    And up yours mainstream…I can feel an SVR12 comin on. :) :) :) :) :)

    in reply to: Son’s liver results just waiting for his viral load #19343
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Ty Dubaichic Great to have this news it looks on track for good results for all treatment well done
    I know about anxiety and I am happy for your son
    Awesome
    #flower #flower #flower
    Let us all know how things go x
    Love from Ariel

    in reply to: Hep C sufferers’ ire at activist-website ban #19341
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    For the very reason a tiny lump behind the nipple easily removed no other treatment needed, no scar or change to breast, resulted in get well cards, humungous bouquets, time off work, worried looks of empathy……and HepC cost me my siblings etc. blah blah

    stigma

    Oh and it also helps if a politician or their family are affected just saying.
    A <img style=ick:' />

    in reply to: Ariel takes the Plunge #19305
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I’m doing my SVR12 bloods Monday 8.15am
    Where has 24 weeks gone! :+1: What a difference to the old days! Time for one of the mermaids shanties:

    It was a wild ol night
    And the rain poured down
    My little boat rocked
    Up and down
    Lost at sea
    Woe was me
    Anchors down
    FixHepC

    So Ariel took the Plunge
    Soaked it like a sponge
    Magic worked ‘itselve’
    Monday is SVR12!

    T’was such an easy passage
    I threw away some baggage
    Set my course
    Tempered my sail
    Crossed my fins
    UND prevailed

    So bring next Monday on
    I’m dancing with a song
    Excited to be free
    All cos of FixHepC

    Tnks FHC! Doc J, Greg, Hieu and team CURE down South #love bring on Monday super excited

    in reply to: Beaches Treatment – Harvoni (Aus PBS) #19295
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hunny, you’ve ridden that wave it’s done
    Fantastic stats
    Bring it on
    Xxxx
    Ariel

    in reply to: cured #19294
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Freakin AWESOME!!
    Congratulations and yew! You are the first person I have heard speaking from Adelaide
    I have friends over there who are still waiting on PBS! Treat now yes!
    Congrats again fabulous news from SA
    BIG happies from Ariel :+1: #flower

    in reply to: Hep C sufferers’ ire at activist-website ban #19281
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Continuing my thoughts linking the data:

    So of an estimated 6% of Australia’s HCV diagnosed population treated with DAAs, (0.8 via FHC 5.2 via PBS) approx 13.5% of those in tx or now treated are from a single Doctors integrity and leadership globally.

    Again, this should be reflected in global data. If ONLY but how? Raise the volume. Write it on social media. Shame the greed and genocidal maniac that is big Pharma
    Okay back to work sorry morning tea #rant

    Bottoms up heads down
    Ariel

    http://static1.squarespace.com/static/50ff0804e4b007d5a9abe0a5/t/575f2d259f7266ebae8ec5f8/1465855281347/Kirby_HepC_Newsletter_Issue2.pdf

    in reply to: Drinking Alcohol Post SVR #19274
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Gaj! I’m shocked at your renegade behavior get yerself to Pier 10 or Ten Minutes by Tractor immediately! Yarra Valley ha, I love Train Track Winery the views are splendid but I can’t comment on the plonk you two, Sonix and Gaj :)
    Salut!
    PS how pretty is the Yarra Valley and so many great galleries, that’s my thing up there hold the balloon ride argh #duck <img style=illy:' />

    in reply to: Hep C sufferers’ ire at activist-website ban #19272
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    According to the information available from the Australian Govt there are/were (latest update to site made in 2014) 747 Public and 612 Private Hospitals nationwide.
    A wiki list of Australia’s Hospitals is here https://en.m.wikipedia.org/wiki/List_of_hospitals_in_Australia
    Of those, Gastroenterological services are offered in the larger facilities and either Day Clinic Outpatient Services; or a Private Gastroenterologist running a private clinic within a Private Hospital is likely to be available for any HCV sufferer. There are also chains of Gastroenterological and Endo Specialist Clinics in Australia. Many are available to the HCV patient.

    “It is estimated that 130-150 million people worldwide are chronically infected with hepatitis C. (WHO Hepatitis C Fact Sheet)
    In Australia, it is estimated that 230,470 are living with chronic hepatitis C. (Kirby Institute, Annual Surveillance Report (ASR) 2015 – p12)” source: http://www.hepatitisaustralia.com/hepatitis-c-facts/about-hep-c

    David Pieper states in response to the article

    “Hep C sufferers’ ire at activist-website ban”

    that: “there are over 13,000 of them who are delighted to have commenced treatment since March with drugs have been made available…” (On PBS)

    FixHepC has assisted perhaps just under 2000 Australians I am supposing. That’s since last year, with the data really coming in to the point where it’s heard at EASL favourably. As a percentage of the diagnosed HCV patients in Australia just say at a rounded off guesstimate of 2000 treated via Fixhc I get roughly 0.8% of HCV in Oz treated, 95 ish % successfully and if retreating then aim for 100%

    That’s out of one Doctors personal practice. And without a magic political carpet ride.

    So since the PBS in March, the percentage treated by the vast resources I outlined above in the hospitals paragraph, I get 5.2%

    I say count the patients on PBS in any liver clinic on one hand, okay so maybe a thumb print short but close enough and I feel that from patients anecdotal observations.

    Imagine if the generic argument became a non argument; based on this glaringly obvious data FixHepC actually convinced the World that generic DAAs are the only way to eradicate the virus in the firing line of big pharma and corporate greed and the political handshakes.

    Ariel

    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Yukky Riba many of us have been down the riba tunnel
    I’m aware of friends here who have compensated livers who have added some riba to their sof combo to just add that extra percentage
    It’s not an easy drug to handle and when combined with peginf is a shocker, however I think that it’s not as vile combined with the new DAAs, just from others stories.
    Great article yes GT2, it would be also tricky having one of the more unusual genotypes I am sure. I was gen 1A which as you probs know was hopeless with peginfer stuff but with these meds I responded immediately!
    I can’t wait til you post your EOT and UND! Keep us all posted and ty
    Cheers from Ariel #flower

    in reply to: AHF Campaign to shame GILEAD #19214
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    #flower

Viewing 15 posts - 316 through 330 (of 1,060 total)