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Viewing 15 posts - 856 through 870 (of 1,060 total)
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  • in reply to: Prof Gane’s remarks: implications for relapse #11714
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Yup exactly Mike :)
    I threw a big cool bucket of water out yestey here didn’t it splash far enough ;)
    Yes we are the early cohort
    Let’s be happy
    I’m sure a lot of these remarks by Gane are trying to be constructive and can be interpreted a thousand ways but we are safe with our choices and in FANTASTIC care here with James and team
    Here is some more soothing cool water

    in reply to: Tiredness after Eating #11713
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thinking of you Berrinice,
    It’s a long tx to do 24 weeks and congrats on almost being through it xxx
    I’m tired anyway food or not at week 5, I think it’s my anxiety and my bursts of activity combined
    I am happy that I have put on weight already 3 kgs
    I do have nighttime nausea lately did you have this?
    Wishing you well
    Love from Ariel x

    in reply to: isaing4 Twinvir story #11712
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    RAWK N ROLL isiang !
    I’m in clinic to get my first bloods back tomorrow
    Have read all your posts
    I had these done at Day 25 (bit early lol)
    Feeling anxious but I have anxiety anyway so just reading your news has helped me a LOT
    This is great stuff
    Yew!!!!
    Splashes from Ariel #duck

    in reply to: FixHepC – Party Playlist #11711
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Those were the days, my friend, we thought they’d never end…… I loved this when I was a little girl, now it makes more sense ;)
    Isn’t she beautiful #flower
    Life’s just beginning again yew! #love

    http://youtu.be/y3KEhWTnWvE

    in reply to: FixHepC – Party Playlist #11709
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Great clip!!!!!! :+1: Love em Vororro
    Love em so much this is one of my “motivation” songs on my iPhone

    in reply to: Honker Heads for Hobart #11689
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    honker wrote:

    Day 5 -9 Wow Hard to believe it has already been 9 days. I have managed to do 90 min yoga class or a 3 hour hike every day. Today I rented a car and drove to Pt. Arthur. This is my first go at driving on the left but so far so good. Tomorrow I will hike to Cape Raoul. Still getting a kick out of running into wallabys in the woods.

    So amazing! Best hike
    Cape Raoul is Shipstern Bluff walk
    Enjoy I hope there’s a good swell it was breaking here in Victoria today Honker
    I’m popping a pic up of Shippies I took last September for you to wet your hiking boots (the track was so muddy when I did it)

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    in reply to: Honker Heads for Hobart #11686
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    honker wrote:

    Thanks. I’ll give that a try.

    Day 3 and 4. Feeling great. Doing yoga or hiking everyday. Sometimes I get a bit tired after exercise and take a nap. I wake up very energetic. Went to 7 mile beach with Chester. And now dinner on the waterfront. Perfect day.

    I LOVE seven mile beach Honker! That is where I stayed in September last year
    Lucky you so pretty x #love

    in reply to: Prof Gane’s remarks: implications for relapse #11678
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    And this is why I asked for a medical opinion and clearly we have one
    Lets just relax
    Relapsers from peg/inf like myself already suffer interferon induced anxiety (well a few do) we may have been on the phone alone in the night to lifeline while in that dark hole (I was)
    I was like Lynne, alarms and red flags waving when I read this thread.
    I agree lets just realise how early on we are as a tx cohort anyway, get on with staying positive of mind and all agree that there could be some data errors, some affiliates of big pharma, some speculation but that our common goal is to achieve a stress free future
    It’s been a fascinating read since I first posted here and a hot topic
    Cool down time? Phew!
    Sending a splash of cool water
    Ariel xxx

    in reply to: No good deed goes unpunished #11677
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Ahhh so in my case I was put on peg/inf in 2012 with no fibroscan no gene test and a VL of only 420,000 and as a private insured patient. Yup.
    I was led to fully believe I could die. I hadn’t heard of HepC except something about Pamela Anderson in the media and it wasn’t nice what was said so I ignored it. I don’t go for bitchy stuff ever it’s not my interest area in life !
    I don’t have any emotions about this but the chemical effects did leave me with suicidal ideation during that tx , I now have severe anxiety which I admit and which is significant
    I now know that there was no duty of care
    I know that I should have had a liver check because a locum pulled me off with a heart failure risk plus other sx at 43 weeks
    She then ordered the fibroscan which I had never heard of and the gene test
    But I have already told my story.
    No not emotionally involved in it, just have got tired because of this leaving me bedridden apart from moments of self driven sport and gutsy mental fortitude since
    Too afraid to return to work, riddled with terrifying nightmares, on OxyContin pre this current tx which I quit because of the yellow flag but still on Valium and don’t have any issue with that. It makes life okay. Half the time anyway.
    That failure to provide me with a duty of care goes further, I was still detected at 4,8 and 12 weeks but UND at 13 yet left on this vile unnecessary stuff why? I relapsed anyway.
    I agree with these cautions about emotional things but trust me what I experienced during that absolutely horrid year is the second worst thing that’s ever happened in my life. And now, well now I have severe anxiety and ongoing physical damage
    I am aware these DAAs are slightly mood altering. Yes. It can be better to avoid weepy triggering things, sadness and grief, and probably not smart to get into any confrontational situations either and blow off at anyone.
    But these meds are controllable and most tolerable. Lift any sadness by acknowledging this is a cleanse, reflect on dumb choices (like me believing the guy who put me on peg/inf) and realise how much strength we have had to muster to get to here, in work situations think back and realise that we did it all with maybe a brain fog we didn’t even know about and we still achieved so much
    I’m proud of who this has made me. I love meeting the friends here
    I like how people shoot from the hip
    I love how accepted I feel
    Stuff the people who wouldn’t care if we were carried out in a box
    Mines gonna be made of surfboards
    I love what Chejai and DT wrote here
    You opened up my heart
    Big love
    Glad I logged in
    #love
    Splashes and yes I went to the beach because I was a ball of anxiety but now, I feel clear and clean :+1:

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    in reply to: NEED GUIDANCE #11614
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Wow amazing stories of courage, travelling and so on…good on you Jade and good luck and yes the advice is great so from me here in Oz, welcome and good luck you deserve the best #love #love #love

    in reply to: Afraid to take the meds due to severe anxiety #11613
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Hope, just read your thread, wishing you a great tx. Yes I have anxiety, I take Medicine for it when necessary, and it is okay when on my sof/led …before this DAA med I was needing it, in the past few days a fair bit of anxiety suddenly hit, I couldn’t feel my legs yesterday and my breathing….well you clearly know the signs, and when I went to take a tablet, the bottle is still almost full…so, I agree with so many things that others have said here. I am also around the same day as Chejai, I think we are Day 29 :) There are a few headaches and some small side effects I had, and each time a little issue has arisen, I have popped up a quick note on my own thread and found help comes. Congrats on starting out, it is amazing the feeling when the pills arrive and you pop the first one/s in and just wow, a release really lifts from the brain…years of worry I guess. so, not to go on too much because many friends have already said what I could, but well wishes from me here in Oz, keep us posted on how you go, Hugs form Ariel #flower #flower #flower

    in reply to: FixHepC – Party Playlist #11612
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Beautiful song from Clapton, this is another well known golden oldie
    I have spent hours listening to music today :)

    https://www.youtube.com/watch?v=b-7c4VNGOgU

    in reply to: has your hep dr rejected the medicine? #11611
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Welcome Valerie, wishing you all the best, yes, you have arrived at the right place, I am into Week 5 and this is support and friends and no c**p …Just the best, Go for it, love from Ariel

    in reply to: Prof Gane’s remarks: implications for relapse #11537
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thankyou to Mike and LG
    YES this scare mongering is most unsettling for tx-ers
    Add to this division in attitudes and even random slaps on the knuckles at some of us in Oz who have just taken our lives into our own hands, already been burnt, already waited and read enough to get moving and become our own Messiah
    Now the promised land is up in the holy of holy’s here it’s become even more factioned

    And here is a song

    in reply to: Ariel takes the Plunge #11534
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Life I grew sunflowers in my garden this Summer it was a lot more work than I had expected but the results were worth every jolly day I tended them
    Just like our walk with hep huh? Now in week five I must be a budlet
    I’m in a gorgeous garden of friends there are plenty of blooms growing, it’s a beautiful tx garden

    All the friends who have finished are inspiring to me and all
    Good luck for your SVR each and every one of those finished or about to reach EOT and thanks for popping by
    #flower

Viewing 15 posts - 856 through 870 (of 1,060 total)