Forum Replies Created
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Tina-Hill-facebook wrote:
Can we expect to see you here Ariel?
Heaps of surf and a room here if you need it
I am so in love with the land of the long white cloud and yes I would LOVE to come over…I have no idea where you are, but I have been all round the Nth Island and done the Marlborough Sounds I stayed out in a Bach on the Queen Charlotte Track it was as close to heaven as I can get without waves lol…..I am so in girls…Hazel and Tina I can get a cheapish fare to Windy Welly later in the year…..
Well I am not going to enter the debate about the person who desperately wants to be cured and needs to find a way however they can, by throwing around semantics and the like, by using words laced with connotation.
I think that it is criminal to deny treatment to anyone. I think it is almost genocide to leave us all on the bench. I think it is inhuman the things that are said about a HepC infected human being, and I think that the things that happen as a result of this virus still warrant much more research. But, I have had a few fibroscans. They hover around F0- F1 in score once the kPa for each one I have had is converted to the F table. My kPa was 5.5, my kPa was around 6, my kPa changes. I have stopped having them because they all just changed and were really a waste of time and the taxpayers money.
So the answer re fibroscan results and their changing from time to time is yes, obviously everyone’s readings are going to be different depending who knows what. Is it where they pop that stick on the side of me? Is it’ as LG pointed out, my weight at the time…is it a good hearty meal…..who knows? Not me. I don’t care anymore anyway I am on tx. I don’t have to worry about it becoming a worry.
The topic here is not about advice for obtaining a score for accessing tx…the topic is bigger than that. The topic is that this is a place where you can access tx, you can get a chance, you don’t need to prove a score to get your medicine. This is a place where you can ask for help. You can buy medicine. You can find support even in the worst times. I read how difficult it is for some friends here to get tx, how hard and challenging it is in the UK, how ordinary the system is in the States, how people are flying across the Tasman….
Seek tx here now, that is the best advice I can give in love.Good luck and safe travels Honker, how exciting for you. I, like many others here, love Tasmania. Have trekked at Cradle Mountain in the 1990’s it is superb a must do I agree with the other people, also last September 2015 I went to Shipstern Bluff to honour the ten year passing anniversary of my dad a salty seadog, it is past Port Arthur and Eaglehawk neck which are so beautiful too, and you need to a hike in around two hours through the wilderness to witness the most angry and majestic wave I have ever seen, on the way are tessellated pavements, caves, wondrous beaches, scenery of many colours and a total feast for the senses; there is now a walk through the three capes you can do. I went to the Caves in Hastings they were amazing. Also tried Hang-gliding near there on a line for beginners. I am terrified of heights and loved it so much I did it twice. There is an airwalk in Hastings too…it is amazing suspended above the beautiful virgin forest. Bruny Island is so beautiful, catch the car ferry from near Hobart and you can just scrape fresh oysters off the rocks and enjoy them. There are the most beautiful places so close to Hobart, none of these are far away apart from Cradle Mountain…as mentioned I did that another trip. The mountain overlooking Hobart is a quick steep narrow drive up to see the whole city and surrounds and will surely wet your appetite for more of this amazing Island. Food is great in Tasmania, especially if you like seafood, yummmmm. I am sure others can add to the list for you, have a wonderful time, and of course, wishing you a great outcome for treatment, Love from Ariel
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2b I cannot keep up with these dudes! Gimme a few more weeks of these magic pills and I am so there But I can do this surfing gig ha!
Great song …. Leather Boots, by The Hudson Drags, very hard to find, but these words are darned epic ..
‘we’re tired of a’movin, we’re tired of a’movin slow….
Taking me to poetry
Has lifted off some misery
Mgalbrai your inquiry
Focused me t’wards victory Ariel
Hi Chejai we have a lot more in common than just Day 16
I used the local slang it’s actually Gunnamatta Beach
Pop that into your search engine
You can even see it on webcam on the surf websites too !
I have a thang for that Matthew too my aka spelling for him is Matthew McHunkofGuy
So mean of my nightmares to use him as an evil tormentor I swear I only ever looked at the six pack the olive skin and the tight buns in innocence 
We are having the same sx and yep I am hearing you about the other stuff
I shut facey down until yesterday because of exactly these concerns re trust and so on
Hey… doing only 84 days that means I am down into the 60’s countdown days left
That feels good
Our next challenge is the 4 week bloods
LG has had a fantastic result from two weeks I got great support reading her blog
Sending aloha up north wish I had been there my buddies have all been surfing the superbank down at Kirra/Snapper omgosh the pictures are drool worthy
I’m so over having to slot my sport into my chronic fatigue it’s gonna be awesome saying goodbye to the impression on my mattress
Thanks so much for your share Chejai I needed this today xxxxxx
Love and splashes
ArielHi Anna and welcome to this great place I am just on Day 15 and this is a loving and informative place to be on treatment any questions no matter how insignificant they seem are supported we even have a girls corner just browse around that’s how I got started x
Love from Ariel for a good tx outcomeThankyou Pat1
So beautiful
I’m lucky I went to see Carole King and James Taylor on tourOnce upon a time a tiny little girl memorized this song it was the first song she ever committed to memory
What a funny tiny child she was
