Best news babe stoked for you
This is at two weeks yeah?!?! Wow wow wow wow

Thanks Archer for sharing, I am sorry to hear about your hair, I think hair is really part of our identity and not because of commercials and the plasicifaction and botoxification of womanhood that has poisoned the conceptualisation of perceived beauty. Hair feels good when you run your fingers through it, it feels good when the wind blows it around, it is tactile, it is a sign of youth, of age, of wisdom, of health and of legend even. Old stories of Sampson and Delilah, of Rapunzel.. etc etc. Once upon a time women covered themselves all up, thinking of the Victorian era, and hair was their version of sexy. Scott Fitzgerald even wrote about how ‘daring’ it was for a woman to ‘bob’ her hair in the 1920’s..as a stand against the previous era of long gowns and high necked clothing. I have lost a ton of hair to tx before and I recall how fantastic it was to feel the wind in it again. Well that is my little hair done, take care, Ariel

H Chejai, thankyou for recording these sx I am very similar and we are both at the same day, slightly different meds and time frame and Gen of course. I agree, I have been avoiding watching the news, watching anything that is a downer, as I am aware of a kind of fragile mood that could easily turn nasty on me. Yesterday I happened to find myself at Gunna in the midst of that tragedy and have an imprint on my brain I have been distressed and think you are right the meds are strong, I also exercised two days and was exhausted. Nights are worse dang. that seems to come and go doesn’t it? Still, we are going well, and I truly believe we can beat this beast. I want your sleeping vibes please! Night terrors are hitting me in the most vile dreams here…last night I was trapped in a movie theatre with Matthew Mchonaghy (sp?) and not in a good way lol no six pack thankyou and the dream was agro, and on repeat. No idea why the nightmare had to feature a film star (Dallas Buyers Club?) but he was in board shorts…. I seem to be also up and down with the sweats and yes it does seem to be weather affected too. Sharing is a great tool. I read the posts here and am less concerned. Built up anxiety over years needs to take it’s time to shed from us doesn’t it, as we go forward. Well over and out, onwards and upwards…hoping the Qld weather is kind to you, it is all over the shop down here

HI girls, I am replying to you both and all these posts , I am same day as Chejai; at our Day 14 anniversary

Okay, re the way you were treated Chejai,, that is absolutely disgusting; the whole demeaning, down the nose rot about alcohol, about your spiritual wellbeing etc…can this person actually see inside your brain and heart and are they on your shoulder pitty patting around noosing into every corner of your life rating you on a 1-10 scale of their judgement!
LG when you get on the plane to come help me quietly and sweetly tar and feather my loud receptionist there’s a room here for you hunny.
I have one last anecdote to add to the stigma list..(gosh it is good to be able to get this out) .
I am sitting in my initial interview to be eligible for the ‘trialthattnevercame’ and without even looking at my face the question “are you still using?” me: Yes, I am using panadiene and BP meds. PHFTTT!!! I am sitting there in my Zara pants my fancy sweater etc how rude!
I do not judge a book by it’s cover, and am tired of having to present in this fancy groomed manner anyway, but I also do not care if people are users, are in trouble mental health wise, are drinkers, or anything all these are symptoms of something else anyway!…how rude though, what is wrong with realising I am a nice lady albeit an anxious one, in a rotten bind, seeking help and why not, when asking questions from that list they have at least it could be a softer delivery eg an intro along the lines of…’now the next question may be a tad confronting but we have to ask….” or similar!..Anyway next question from screening person (no names or hospitals mentioned but yes famous on our blog LG and buddy with said receptionist she of the 1000 decibels): “When did you stop using” and me: ‘I am still using those meds thankyou’.

I just fight fire with water. It always works for me.

Now I think I will invest in the BLUE BOOK. What a brilliant foil for this rot we are all anecdoting here.

Clearly we are only about our health, our life, our regaining what we have had to lose to this bugger. Maybe I will draw a big evil face on the front of it too!
Seriously who the hell cares how anyone got HepC or B or anything for that matter…dementia, anything!

It reminds me of the many times I have had to go in for scans and so on to check my nodes and a few lumps and bumps that this pooey thing has caused with my immune system trashed…why are these places painted pink in general? Do we need to be reminded of why we are sitting there? Why are there yellow daffodils made of crepe and tissue paper stuck like a garden on the wall in the MRI place. Is this to assist us with our anxiety levels? NO

I am grumpy today, and I am not on my own blog, we had yet another drowning here at the surf yesterday and the only damned surf safety sign anywhere is one that I made and donated to the community after the last death and I am tired and sick of lobbying for just about everything. I was at the beach yesterday and right in the middle of it when it occurred. I am grumpy.

I also want to say on our case here re HCV that there does need to be a step up on what is happening in the States, that it is a disaster.

I am going to try to finish on a bright note…End of week two and still following you like a domino that wont fall down here LG.

One awesome thing from my Sunday..I dropped into a garage sale yesterday and met an amazing couple of Brits. The wife worked at the Speakeasy Club in the heyday 1966-late 70’s in London!!! Oh the marvellous anecdotes she shared with me oh the wondrous tales off who she partied with, Hendrix, Bowie and all…. I had my David Bowie T shirt on yesterday. I purchased a lovely cane screen that they had brought over from their London home which she had used to do ‘psychic readings’ behind! How cool is that I am in love with it just for it’s history. I paid the princely sum of $30AUS for this cane screen holder of secret shenanigans!

Now I have completely hijacked your thread I will bid you adieu and swim on over to my page to anecdote last night because I want to share about a few things medically speaking.

Lots of love from here in Oz
Ariel

“Ariel, I can provide some advice on the gum treatment and dental things in general. One reason I decided to wait for the PBS is because I’m already spending so much money trying to save my teeth and gums. I’m sure it’s all related to the hep and my digestive problems…anyway…big life savers for that are
1. Oil pulling with coconut oil.
2. Clove Oil ( try the Indian shops)…medicinal grade….mix it with a carrier oil…it’s quite strong…but awesome both for healing and for pain.
3. Strong himalayan salt mouth rinses.
4. Tea Tree Oil (again quite strong), and Peppermint Oil.[/quote]

Thanks babe! I have some black lava salt here from the Big Island Hawaii I wonder if that will do where did you find the himalayan salt?
Thanks so much for these tips my teeth are sore as

Hi girls and thanks for the tips this is great I saw my cool as super empathetic GP this morning and showed him my dry arms and knees he was surprised how fast they’ve dried out, and he told me it will repair itself post tx, also my regular full on exercise being on hold for the last two weeks was going to dump my seratonin levels hence me feeling glum so I just went for a surf and feel heaps better. Yep a surf, crazy but it’s my gymnasium.

I’m definitely turning the corner of settling into being on the DAAs yay
I noticed much more cognisance each ‘takeoff’ GOOD

I’m also keen on this “Elemis frangipani Monoi oil” wonder if it’s online, must do a search. Yes CJ dry hair is a biggie post peg/inf and actually I lost conservatively 2/3 of my lion like mane and was left with a mullet do of frizzle as I mentioned earlier.
So far sof/led hasn’t changed my hair thank gawd!
Re the idea of a little womens happy HCV pamphlet or handbook when we have all our ideas and sx tricks I am fine to do something to produce it but would like to collab
Are we agreeing that’s a gap in the support tools for us? This forum is the only place I know where the initiative was taken and we started on our hormones, childbirth and have gone from there in our wisdom and sharing

I always think many heads are better than one
We need to have anything checked by a health professional too probs if we do put something together
Oral hygiene is one I would dearly love other ladies to discuss because I have swollen gums etc and there must be some knowledge better than this betadine mouth stuff I am using
Splashes x
Ariel

Hi girls, and welcome Flying Fox, Plan B is a great Plan yes, smart move. No point suffering any longer , and I hope the PBS moves quickly for you…
Tina, that list of peg/inf is for real..I was in hospital and tubed up blah blah it really is a shocker. No looking back! Almost into week two of these wonder meds thanks to James and Greg..LG you have just passed your two week birthday yew!
I asked my local nurse about skin dehydration sx today because I am peeved my fantastic surfie girl arms (and after rebuilding post peg/inf I deserve to be proud) are looking really dried out at only week 2 sof/led grrrrr ..the nurse was extremely empathetic and she suggested Aveeno which has already popped up here, maybe Coral or Tina suggested it.

Last night I did not have any sweating, hopefully now out the other side of the initial ‘getting used to tx’ stuff, but I have thought up a contingency plan for the first few weeks if anyone else gets the sweats initially on the new meds…

I pop a few fresh T shirts beside the bed along with the mandatory two water bottles (no spilling that glass of water in the night if I use a bottle) and instead of having to get up and grope around for a fresh top in the night I now can just reach over and grab a fresh T and chuck the wet one across my room and zzzzz again. This is a gross topic but I hope that it helps somebody else to have a more comfortable night. It works for me.

I am loving the new clarity of mind that yes is real

I have been thinking, wouldn’t it be nice if the Hep orgs produced a little pamphlet or handbook devoted for women xxxx