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Viewing 15 posts - 181 through 195 (of 267 total)
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  • in reply to: FixHepC – Party Playlist #8636
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Wow, typical of me to arrive late at the party B)
    Great Playlist, loved the 70’s music, lots of good times, how I ended the decade got me here but still Fantastic Memories :P
    [video]https://www.youtube.com/watch?v=qe1ScoePqVA[/video]


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Sonix Tx Log #7607
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Sonix thanks for posting your Tx details, especially previous symptoms – i have all of those:) I’m G3a but still interested in hearing how you go. Waiting for my meds to arrive – email 18/12/15 – said 3-4 weeks!

    Good Luck!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: …and so this is Christmas…. #7267
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Thank you Dafne Campos for your story. Wishing your family a Wonderful Xmas and may your Dad’s Tx continue to bring good news and a healthier outcome!

    May 2106 be A Fabulous New Year :) :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Why am I afraid to take the medications? #7199
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    That is beautiful Dr James :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: All that valuable Data that goes down the plughole #7198
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Well said Miko3. I have had the same thoughts when looking at the research data but couldn’t have expressed myself as well as you have here. Thank you.


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: HCV-Related Nervous System Disorders #7190
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    That’s great news Wayne! I too take Nexium, anti-depressants, valium and nerve meds. Wow, the idea of not needing the full medicine cabinet anymore is beyond my grasp <img style=ide:' />

    Good Luck for the rest of your Tx :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Nadia’s journey #7185
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congratulations to you both Nadia and Vicki – both fellow G3’s – 12 weeks – UND !

    Merry Xmas to you both what a Great Way to finish the year and start a New Year :) :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: isaing4 Twinvir story #7135
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    A belated welcome here isaing4! Great you are doing well already.

    My understanding of the 4/52 is it’s an abbreviation – a way of indicating @ 4 weeks, as there are 52 weeks in a year; therefore testing @ 8 weeks would be written 8/52. It doesn’t mean it’s the length of your treatment.

    All the best for the rest of your Tx :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Merry Christmas!!!! #7134
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congrats IRMA and Neilo Great news for you both!

    Also, M, looking at your latest blood results there – that looks Great! What an improvement and UND too!

    YAY :woohoo: :woohoo: :woohoo:

    Merry Xmas to all and may we have a Fabulous 2016!
    My meds should arrive early January to start Tx – looking forward to this!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Joan Started treatment #7132
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Thanks for sharing Joan, sounds great for you to be feeling so good in yourself and energy levels.
    Looks like you’ll get to enjoy xmas better than usual :)

    Wishing You a good One and Fabulous 2016!

    Good News asaing4 that you have the UND news before Xmas – yay for you :woohoo: Wishing you a Good One too!!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: HCV-Related Nervous System Disorders #7072
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai
    Enkel wrote:

    I heard a term named vagus or vagal nerve disorder. Do you think that hepc can affect this nerve too? I think yes.

    I agree Enkel, given that the Vagus Nerve (AKA Wandering-from Latin- Nerve) is a major cranial nerve and the longest in the body because when it exits the brainstem it branches off to our throat, thorax and abdomen covering our organs and reporting info back to the brain. If it picks up signs of ‘infection’ it reports to the brain and it sends out an immune response. When you have a chronic infection like HCV that affects more than the liver, then the body is in a chronic state of immune response. The Vagus Nerve is a major part of our nervous system so you can imagine how dysfunctional many systems in our bodies become. It has both sensory and motor functions and controls our breathing, speaking, swallowing, heart rate, sweating, digestive processes and more.
    Yes, one thing for sure I’m learning is that having chronic HCV, no matter what level of liver disease that might be present, so many symptoms and conditions e.g. peripheral neuropathy, chronic fatigue, fibromyalgia, and cognitive impairment -‘Brain Fog’ – are real and related directly to the virus. Yet, so many GP’s and some Specialists too, dismiss them and don’t consider a connection, despite the fact there is actually a lot of research saying so.
    I understand it’s hard work for GP’s to keep up with all the different issues patients present everyday and I’ve been ‘dismissed’ so much over the years with my concerns that ‘something’s not right’ you just end up living with it.

    I hardly slept at all last night from the pain in my right arm – like someone dragging a hot blade down my forearm, pins and needles and burning in my hands, can’t get comfortable, doze a few hours have wild dreams and wake in pain again! Endless cycle…

    Jimmy6429 – yeah I miss Yoga so much. I practised on/off for over 25 years, had to stop about 2 yrs ago because of the pain in my wrists; I don’t miss the looks from the embarassing clicking sound of my right hip popping in & out and the squishing sound from my right knee during many postures;)
    But if I can look forward to less pain and more flexibility again that would be awesome!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: HCV-Related Nervous System Disorders #6871
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    I’m really feeling optimistic after reading this. All these conditions that have hit me in the past couple of years – like being described here, especially the peripheral neuropathy, joint pain, night pain is the worst and causes insomnia, a lot of things investigated but told ‘it must be age’!!

    A couple of years ago I was building bird aviaries, cages, gardening and maintaining a massive property – all on my own. Then went downhill rapidly and had to move to smaller place, lower maintenance, God I’m crippled in pain after mowing the lawn, barely 1/4 the size of previous. No chance building stuff anymore.

    The idea I may be free of some of this is awesome! Like you Zhuk I know I can’t do anything about spinal nerve impingement & arthritis but would love not to have burning hands and feet 24/7 :pinch:


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: 2 week blood work results #6865
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Great news for you Spook77 :woohoo: :woohoo: Good Luck with the rest of Tx :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Lynne’s Results #6864
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congratulations Lynne on the UND! A great xmas pressies for you :woohoo: :woohoo:


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Australian PBS listing in March! #6861
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    I think, as many have discussed here, there has been a lot of focus on the ‘importing of generics’ as an option in the media this past 6 m+. This has made the Big Pharma very agitated, so now the Poli’s and Pharma’s get together and make a deal with a whole lot of media attention, back-slapping and drawing the attention back to them – The HepC Heroes who will save the day!! Giving the general population of HepC sufferers hope and faith that the Gov will pay for their care with no more ‘waiting’ and not to go spending money elsewhere to import generics on their own. They have fiddled with the figures and boosted their budget a bit to sound impressive but, as mentioned, this is money they’ve been spending on the interferon and public clinic tx. With GP’s being able to write the scripts that means less of a burden on the public hospital clinics and hopefully a shorter waitlist.
    For now they’ve created a diversion and are keeping all eyes on them and their solution and distracting everyone from alternatives. They will use the next few months until March to make the most of it.

    I don’t trust them, it’s typical of the lead up to election time, 2016.


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

Viewing 15 posts - 181 through 195 (of 267 total)