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Hi Sabrecat,
Bad Christmas news followed by good birthday news – your head must have been spinning. I’m just a little ahead of you with 2 weeks to go on this re- treatment. Like you I won’t be sorry to see the last of those little blue Riba pills but I guess they have to be mean to win the war.
I can’t help you with the DAA – HCC query but I can do these last weeks with you my friend. Finally we’ll be able to concentrate on all of the other bits that are breaking down!!
The joy in seeing another SVR24 never wears off. Congratulations64xgeo!
Beautiful words people. Wonderful video MonkMed – it made me cry. Congratulations MonkMed – you are amazing.
Hi Gert,
Welcome and great news that you have started taking the medication that will lead you to a Hep C free life. It seems from Greedfighter’s post that you can get your medication sent directly to Denmark which is great news but well done for accessing it via London.There are so many ways that Hep C can affect people. It really is the virus that keeps on giving until you finally manage to kill it dead.
If you search this site you will find posts from people who have generously shared their Hep C stories, including the accompanying and sometimes complicated health issues. There are also many common themes around the side effects of the medication such as the often reported headaches and sleeplessness ( I know this from personal experience). Others experience things differently (although most often someone else is having the same experience as you) but we’re all heading for the same goal.I’m also a Genotype 1a and the current medications are fantastic. I remember Day 1.
Congratulations and good luck with your treatment.
Coral The Holy Grail that is SVR24. Congratulations Psavic!
Hi Stephen,
I was thinking when I read your post that there are so many shared experiences here. A sad glance back at what the virus took from us but a thankfulness that it can be beaten and a positive attitude to the future even though challenges still remain after the virus has gone. I can see that you still have some of those challenges but I think “feeling a little better each day” is a pretty good goal. It just has to be easier to sort out other health issues when the main culprit is gone. I look forward seeing those 12 week results.
BTW Hazel – great to see you. Hope all goes well
Hi Carolyn and Welcome,
Gaj and Paul covered it well in that everyone’s experience is different but some side effects seems to be very common – dehydration, insomnia and the emotional roller coaster. I am on ribavirin at the moment and it has thrown a couple more at me including dry skin and skin rashes.
There is some good advice on this site about addressing the physical side effects and lots of support here for the emotional ones!
In the meantime be kind to yourself and keep your eye on the goal which is pretty damn good.
Look forward to hearing about your progress.
Coral Hi Browny,
I have a similar story only I am a G1a so very much a statistical outlier. I was on 3 months of Sof/Led and 3 months of Sof/Dac as I was a slow responder but UND at the end of treatment. I didn’t test until SVR 11 by which time I had pretty much realised the virus would be detectable again – and it was.About two months later in September 16 I commenced retreatment with the Viekira Pak, Solvadi and Ribavirin. My
first blood test at 3 weeks showed my liver functions were back to normal and at my 9 weeks blood test I was UND. I have about
6 weeks to go now on this second treatment and am pretty confident that it’s gone for good second time around.For some of us it just takes a little longer to get there. There are more and more options and this site is the best way to explore them.
We’re all with you. Coral
CoralThat’s great news Paul. Three times is enough and SVR 4 sounds pretty damn good.
That’s a fantastic start to the New Year Hank! Congratulations!! Looking forward to your SVR results in March.
Hi Quinn and Welcome!
I took Sof/Led for the first 12 weeks of my first round of treatment and had very few side effects. In my experience it is sometimes hard to distinguish between the virus symptoms and the treatment in the early days. I definately noticed the difference when the virus had cleared particularly in terms of brain fog and tiredness. I think when we carry this virus for so long it’s hard to know what a normal ebb and flow of energy feels like.As Gaj mentioned it is really important to keep hydrated. I have to consciously make myself drink lots of water – at the moment if I don’t I end up with a headaches.
I’m really happy that you have started the treatment. Time goes fast – the treatment will be over and the virus will be gone before you know.
Look forward to seeing your updates
Hi Edge,
Great to see the big UND at 4 weeks. Others have provided good advice about the calculator and the need to discuss treatment lengths with your doctor. My personal view is that if you have the pills and are managing any side effects I would finish the course.Hi Sabrecat. Great to see your update and so so happy to see the good result. I’ve had similar side effects and also put it down to the Ribavirin. I forgive it though because it’s doing a great job. It’s great to be able to show people who have relapsed that there are more options and the longer path still leads to the destination
