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Viewing 15 posts - 1 through 15 (of 16 total)
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  • in reply to: Fibrosis or cirrhosis #27995
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Thank you, Mar, for your support through this! I will definitely continue faithfully! ❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Fibrosis or cirrhosis #27993
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    I have to share the fabulous news as I just received my 4 week on tx Quantitive RNA results: 15 iu ‘undetected! Jumping for joy, seriously in tears! Thank you ALL so very much!!! ❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Re-treating with Vosevi #27976
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Songbird,
    Congratulations on finishing 16 weeks! I hope it went smoothly and good results await you this time. ❤️ Thank you for sharing your journey; you’ve been an inspiration to us newcomers. I look forward to hearing of your future SVR! ❤️❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Fibrosis or cirrhosis #27975
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Greetings,
    Did I ever thank you ALL for the help, information & support you’ve given me so far on my journey? What would we newly diagnosed folks do without you HCV veterans and these forums to guide us through the maze of diagnosis, testing, tx and recovery! I’ll tell you; we would flounder, be totally lost!

    My 4 week tx labs came back today. AST 27 (down from 83) ALT 38 (down from 124). I think it’s good but not sure if both enzyme values are supposed to be in normal range or not. ALT is still elevated.

    Platelets have fallen from 199 to 164 since last test in Oct but maybe they had fallen even further and now are on the way back up after 1 month of tx? I’ll never know, I guess.

    Dr James: Im over thinking everything again! It’s my annoying nature; frequently, I even annoy myself!


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Fibrosis or cirrhosis #27966
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Dr James,
    I might have calculated APRI wrong. It seems I was using the recent AST but a 7 month old platelet count. Its all so confusing! If I use the 7 month old AST:55 (increased to 83 from Oct-March) and 7 month old platelets:199 (the most recent I have) then the score is .69. I will have new numbers when my blood work comes back later this week.

    It does all seem a bit arbitrary though because when the AST returns to normal during treatment (fingers crossed) the APRI and for that matter, Fib4, scores would automatically be significantly lower, even to the point of reflecting no fibrosis, whereas just a few months previous w/the elevated enzymes, they reflected fibrosis?

    Curious.


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Ferratin level elevated #27963
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Dr James, My doc pretty much parroted today what you said regarding my ferritin level. She did not even feel it necessary to order a blood test to see if the ferritin has gone down, citing my iron levels were normal. It’s all good!


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Fibrosis or cirrhosis #27962
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Thank you Hazel and Songbird! At my 4 week check today, my doc said pretty much the same thing, i.e.: I do not have cirrohis but do have some fibrosis but that it may be reversible with the HCV treatment. I told her I calculated my APRI and Fib4 and they were .61 and 2.15 respectively and she did not seem concerned enough to help me locate a Fibroscan.

    Yes, it is what it is! ❤️ I feel like this diagnosis has changed me for the better in many ways. I’ve stopped drinking entirely, stopped chronic pain meds entirely, and totally revolutionized my diet so hopefully I will be able to live a long life Hep C free.

    My compulsive personality, though, still wants a Fibroscan


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Ferratin level elevated #27958
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Thank you, Dr James.
    Yes, I believe they did that overload blood work when they checked for a false positive after initial elevated enzymes. I plan to ask the doc today, at my 4 week check, for a CBC, LFT and hopefully a RNA quantitative (viral load?) I think I have that right? Fingers crossed!


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Hello new guy here #27916
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Dr James, Is there any data that suggests a high viral load (14 mil) is related to length of time having HCV? I’ve probably had the virus since mid 70’s.

    Also, is such a high viral load predictive of possible SVR failure after 12 weeks Harvoni? If so, wouldnt it be prudent to have viral load tested a few weeks before end of 12 week tx so, if necessary, one could continue for longer period of time without interruption? ❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: FixHepC – Party Playlist #27896
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    A long time favorite love song but also a tribute to the ‘miracle’ of a cure for our HCV ❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Is HepB Vaccination okay during Harvoni treatment? #27895
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Thank you, Dr. James! ❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Is HepB Vaccination okay during Harvoni treatment? #27893
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    I had my 1st dose of HepB vaccination 4 weeks ago & 2nd is due this week. Is it okay to have this while on Harvoni or better to wait until after SVR?


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Started Harvoni Today #27838
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Question: I changed my diet when diagnosed about 2 months back and Now eat all very “colorful” foods. However as my Ferritin levels came back elevated: ‘352’ is it okay to continue to eat loads of spinach, kale & other high iron foods?


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Started Harvoni Today #27837
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Thank you for your support! I’m on Day 7 now and am drinking so much water! The first few days, I sweated a lot and was uncharacteristically constipated. Weird. Now everything is good.


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

    in reply to: Liver Enzymes Did Not Elevate For 4 Decades #27821
    Cristine123
    • Topics: 5
    • Replies: 16
    • Total: 21
    • Treatment Warrior
    • ★★★
    @cristine123

    Thank you, Doc, for the info. ❤️


    Probably had HCV since mid-1970s, Diagnosed HCV 2/2018, ALT:124 AST:83, GT:1b, Liver Ultrasound: Normal, Fibrosure: 0.68 or high end of F3, VL: 13,896,061, Started tx 4/9/18 w/Harvoni for 12 weeks. Scared but committed

Viewing 15 posts - 1 through 15 (of 16 total)