Dan - FixHepC - Page 9 of 14

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21 December 2015 at 8:26 pm in reply to: Dan’s Twinvir story #6978
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Hi. Good news!!!!
Gp is happy to monitor my bloods, checked my blood pressure and ESG.

He ordered all the blood tests, including the Viral load, but said that not sure if VL will be accepted.

He will see me again in 4 weeks to order the next set of blood tests and see the progress.

My 4 weeks will be next Wednesday. Should I wait until then or not.

With Christmas coming up, do I need to stay away from sugar/cakes?

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
21 December 2015 at 8:20 pm in reply to: isaing4 Twinvir story #6977
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Good news. Merry Christmas.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
21 December 2015 at 2:54 pm in reply to: Dan’s Twinvir story #6917
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Thanks

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
21 December 2015 at 2:40 pm in reply to: Dan’s Twinvir story #6913
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Thank you Enkel.
So I need to show the percentages from the Initial analysis part:
Sof 99.7% and Led 99.7%?

Do you store your tablets in the room?

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
21 December 2015 at 1:50 pm in reply to: Dan’s Twinvir story #6905
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Hi,

I’m looking for a link on Twinvir testing, which I can take to my GP, but can’t find it.

Can someone point me into the right direction?

Thanks

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
18 December 2015 at 5:43 pm in reply to: Dan’s Twinvir story #6635
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
I will check with the doctor, if he can test autoimmune/autoantibody on Monday and ask for a scan to check the blood circulation.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
17 December 2015 at 5:45 pm in reply to: Dan’s Twinvir story #6559
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Yes, on my next appointment or through GP.

I will tell GP and he will definetly send the letter to the hospital.

Alsdad had similar experience and his GP let the hospital know.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
17 December 2015 at 5:34 pm in reply to: Dan’s Twinvir story #6557
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Thanks Nadia.

The eczema improved as well with just steroid creams.

The new sx for the past 2 days is numbness in the evening and the muscles in hand up to the elbows and legs up to knees feel so tight

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
17 December 2015 at 4:33 pm in reply to: Dan’s Twinvir story #6555
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Alsdad – Someone from the hospital rung home yesterday and I thought it is MRI hepatologist or the nurse. This is why I called today, but was told, that they didn’t call me.

I thought that they saw the VL result and wanted to bring me back into the clinic, to make sure the result is right.

Never mind, I’ll see what my GP will say next week. At least I have the evidence that it is working.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
17 December 2015 at 3:08 pm in reply to: Dan’s Twinvir story #6550
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
LG:
She didn’t say anything else Day 15 today. The Blood tests were done at 7 days.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
17 December 2015 at 2:54 pm in reply to: Dan’s Twinvir story #6546
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Thank you. I hjope so too.

2 weeks in to treatment now.

I got the second good news, first was the start of tx. The virus is dying. The VL just after one week is 29, down from 400,000. The nurse paused on the phone, before telling me the viral load.

I’m going to see my GP on Monday to get more bloods, which will be 3 weeks LFT, FBC and will arrange a private VL to see how it is doing now.

The sx at the moment: Fatigue in the evening, dizziness most days, numbness of hands and legs in the evening. Pulsating sensation only appear later in the evening, when really tired. Sometimes the feeling of fear.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
14 December 2015 at 11:25 pm in reply to: Dan’s Twinvir story #6285
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
I wouldn’t mind this in my post

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
14 December 2015 at 10:04 pm in reply to: Dan’s Twinvir story #6277
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
I called no win no fee solicitors, but mainly they look at negligence and they don’t think that NHS doing anything wrong, as they don’t refuse to treat me and offered interferon for a year.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
14 December 2015 at 9:25 pm in reply to: Dan’s Twinvir story #6274
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Thank you guys. Lots of advice and information. I will prepare for the GP appointment and see what happens. I also booked an appointment with monkmed.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
14 December 2015 at 4:40 am in reply to: Dan’s Twinvir story #6208
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
I guess my warry is to make sure that the meds are working and this should possiblity show in my blood test at 4 weeks.

I’ll leave this for a couple of weeks until I get 4 weekly results.As you say, there is no point worrying at this stage of tx.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
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